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Reliability of a multidimensional questionnaire for adults with treated complete cleft lip and palate
Östergötlands Läns Landsting, Reconstruction Centre, Department of Oral Surgery UHL. Östergötlands Läns Landsting, Sinnescentrum.
Östergötlands Läns Landsting.
Östergötlands Läns Landsting, Reconstruction Centre, Department of Oral Surgery UHL. Östergötlands Läns Landsting, Sinnescentrum.
Linköping University, Department of health and environment. Linköping University, Faculty of Health Sciences.
2001 (English)In: Scandinavian Journal of Plastic and Reconstructive Surgery and Hand Surgery, ISSN 2000-656X, E-ISSN 2000-6764, Vol. 35, no 3, 271-278 p.Article in journal (Refereed) Published
Abstract [en]

The purpose of this study was to evaluate the reliability of a multidimensional questionnaire for Swedish adults with treated complete unilateral or bilateral cleft lip and palate (CLP). The questionnaire was designed to be used in the evaluation of adults with treated CLP after treatment. Before any conclusions were drawn from the results of the study we assessed the test-retest reliability of the questionnaire. The questionnaire included 168 questions and assessed the following domains: aesthetics, functions associated with CLP, satisfaction with treatment and perceived need for treatment, quality of life, depression and non-specific physical symptoms, body image, and jaw function. The subjects answered the questionnaire twice at a 2-3-week interval. Sixty-one adults (38 men, 23 women) mean age 24 years (range 20-29) participated in the study. The response rate for the questionnaire was acceptable at 75%. The test-retest reliability varied among the different domains. The reliability of questions regarding aesthetics, functions associated with CLP, and treatment satisfaction was good to excellent (intraclass correlation coefficient (ICC) = 0.51 to 0.89). Good to excellent (ICC = 0.61 to 1.0) reliability was also found for the quality of life in various life domains and the wellbeing scales. The reliability of the body image scale was moderate (kappa = 0.43-0.60) for most items and lower than that of other scales used in this study. The reliability of the mean depression symptom score (ICC = 0.93) and the mean non-specific physical symptoms score (ICC = 0.85) were excellent. The reliability of the mandibular function impairment was good (ICC = 0.67). The conclusion of the study is that an overall reliability was good for the multidimensional questionnaire.

Place, publisher, year, edition, pages
2001. Vol. 35, no 3, 271-278 p.
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:liu:diva-27872DOI: 10.1080/028443101750523177Local ID: 12632OAI: oai:DiVA.org:liu-27872DiVA: diva2:248424
Available from: 2009-10-08 Created: 2009-10-08 Last updated: 2017-12-13Bibliographically approved
In thesis
1. Adult patients with treated complete cleft lip and palate: Methodological and clinical stndies
Open this publication in new window or tab >>Adult patients with treated complete cleft lip and palate: Methodological and clinical stndies
2001 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The purpose of the present thesis was to investigate the quality of life, satisfaction with treatment, prevalence of temporomandibular disorders, psychosocial distress, and occlusal stability in a treated group of adults with complete cleft lip and palate (CLP).

Sixty-eight adults ( 44 men and 24 women) with a mean age of 24.2 years (range 19.5-29.2) with treated CLP were compared with a gender- and agematched group with no clefts. The CLP subjects were born between 1968 and 1977 and had undergone standardised plastic surgery at the Department of Plastic Surgery, University Hospital, Linköping, Sweden. Logopaedic, phoniatric, otological, and orthodontic examinations and treatment had been provided locally, supervised by the Cleft Palate Team.

The subjects answered a multidimensional, self-report, standardised questionnaire regarding psychological and somatic conditions. The subjects underwent a clinical TMD examination and an evaluation of the occlusion. The reliability of the multidimensional questionnaire was analysed for the CLP group by a test-retest study within a 2-3 week interval and most questions showed an overall good reliability. A panel of professionals judged the outcome of the surgical treatment on colour slides of the CLP subjects. The dental plaster casts of 39 subjects born with complete unilateral cleft lip and palate (UCLP) were analysed (mean age 24.7 years, range 20.2-29.3) and compared with the dental plaster casts taken at mean age of 19.1 years (range 16.0-20.6).

The overall level of quality of life was rather high in both groups. The CLP group rated some detached aspects, such as life meaning, family life, and private economy, significantly lower than did the group without clefts. Overall aspects such as well-being and social life were affected by having a treated cleft but not the more practical and tangible aspects of their daily living.

There was an overall high level of satisfaction with all the different part of the body in both groups, but the CLP group reported significantly moredissatisfaction with their nose, lips, mouth, profile, and overall facial appearance than the group without clefts. The professionals and the subjects with CLP were generally not very satisfied with the results of surgical treatment. Thirty of the subjects with CLP (47%) wished to have more operations. The professional group recommended further operations in 38 of the subjects (59%) in particular, rhinoplasties.

The CLP group had significantly higher frequencies of cross-bite than the group without clefts, but no differences regarding TMD pain were found between the two groups. In the subjects with treated UCLP, there was a significant deterioration in the occlusal score and the maxillary arch dimensions between 19 and 25 years. This was irrespective of the type of retention. The persisting morphological mal occlusion with a low frequency of interferences has had no influence on TMD symptoms in the group of CLP patients studied.

The conclusion is that the CLP subjects in the present study seemed to be psycho-socially well adjusted to their disability. However, 47 per cent wished to have further surgical treatment. The persisting malocclusions did not provoke TMD symptoms.

Place, publisher, year, edition, pages
Linköping: Linköpings universitet, 2001. 57 p.
Series
Linköping University Medical Dissertations, ISSN 0345-0082 ; 666
Series
Swedish Dental Journal Supplement, ISSN 0348-6672 ; 145
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-25690 (URN)10066 (Local ID)91-7219-959-8 (ISBN)10066 (Archive number)10066 (OAI)
Public defence
2001-04-20, Berzeliussalen, Hälsouniversitetet, Linköping, 09:00 (Swedish)
Available from: 2009-10-08 Created: 2009-10-08 Last updated: 2012-09-06Bibliographically approved

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Marcusson, AgnetaPaulin, GunnarÅkerlind, Ingemar

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Department of Oral Surgery UHLSinnescentrumÖstergötlands Läns LandstingDepartment of health and environmentFaculty of Health Sciences
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Scandinavian Journal of Plastic and Reconstructive Surgery and Hand Surgery
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