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Everyday life among next of kin of haemodialysis patients
Linköping University, Department of Medicine and Care, Nursing Science. Linköping University, Faculty of Health Sciences.
2005 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Everyday life can be complex when next of kin of haemodialysis patients are preoccupied with taking care of the patient and his/her health. which implies the difficulties and requirements needed. The general aim of this thesis was to explore and describe everyday life among next of kin of haemodialysis patients with focus on the life situation, health, time and professional support. Two perspectives of the thesis was applied: a holistic perspective on the everyday life of next of haemodialysis patient and a social perspective with focus on human communication and understanding of next of kin's experience of everyday life. A qualitative descriptive and explorative design. comprising a phenomenographic and content analysis was used in Studies I-IV. The data collected in the studies consisted of interviews with next of kin to haemodialysis patient and analysis of professional support for next of kin to chronic haemodialysis patients in nursing documentation from two hospitals in Sweden.

The experience of time in everyday life among next of kin of haemodialysis patients demonstrated that time for them is minimised and life space contracted. Next of kin experienced ambivalence towards their own health, especially in cases of patients' spouses When next of kin of haemodialysis patient's became involved in the patients' care, they experienced arduousness in relation to their own health as well as less uninterrupted time for themselves in everyday life. and their life situation was characterised by confinement and social isolation. They were aware of the prognosis of renal disease and the fact that haemodialysis is a life-sustaining treatment, which forced them to live for the moment. The everyday life among the next of kin changed when the family became involved in the care. which in turn lead to a changed life situation and restrictions in everyday life. Lack of knowledge in nursing documentation of professional support revealed necessity of the readiness of next of kin. It is therefore important to be familiar with this in the nursing process. especially when the patient and their next of kin need support and attention in everyday life.

Place, publisher, year, edition, pages
Linköping: Linköpings universitet , 2005. , 58 p.
Series
Linköping University Medical Dissertations, ISSN 0345-0082 ; 926
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:liu:diva-32086Local ID: 17942ISBN: 91-85497-65-7 (print)OAI: oai:DiVA.org:liu-32086DiVA: diva2:252908
Public defence
2005-12-15, Ekensalen, Hälsouniversitetet, Linköping, 13:00 (Swedish)
Opponent
Available from: 2009-10-09 Created: 2009-10-09 Last updated: 2012-09-25Bibliographically approved
List of papers
1. Conceptions of life situation among next-of-kin of haemodialysis patients
Open this publication in new window or tab >>Conceptions of life situation among next-of-kin of haemodialysis patients
2001 (English)In: Journal of Nursing Management, ISSN 0966-0429, E-ISSN 1365-2834, Vol. 9, no 4, 231-239 p.Article in journal (Refereed) Published
Abstract [en]

The presence of renal disease in a family is a strain on both the patient and the next-of-kin, affecting their life situations. Surprisingly, few studies dealing with the ways that the next-of-kin experience their situation are available. The aim of this study was to describe how the next-of-kin of haemodialysis patients conceive their life situation. Data were collected by interviewing 12 people who live with someone with dialysis-treated renal disease and analysed according to a qualitative method inspired by the phenomenographic approach. Six description categories of how the subjects construed their life situation emerged: a feeling of confinement; a feeling of social isolation; a feeling that the way of life has changed; a feeling of security in life; a feeling of a threatening future; and promoting health. The next-of-kin generally expressed a large degree of commitment to and concern for the sick person. In spite of their life situation having been dramatically changed, the next-of-kin described an ability to adapt. With the help of society the feelings of confinement and social isolation can be dispersed, enabling the next-of-kin to promote the health of the sick person. A suggestion for further research is to study what adaptation strategies next-of-kin use in their life situation.

National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-27214 (URN)10.1046/j.1365-2834.2001.00233.x (DOI)11863 (Local ID)11863 (Archive number)11863 (OAI)
Available from: 2009-10-08 Created: 2009-10-08 Last updated: 2017-12-13Bibliographically approved
2. Health in everyday life among spouses of haemodialysis patients: a content analysis
Open this publication in new window or tab >>Health in everyday life among spouses of haemodialysis patients: a content analysis
(English)Manuscript (preprint) (Other academic)
Abstract [en]

Despite the fact that haemodialysis requires that spouses support and assist their partner during the treatment period, little attention has been focused on their health. The aim of this study was to explore experiences of health in everyday life in spouses of haemodialysis patients. The study had an explorative and descriptive design based on content analysis. Thirteen participants were interviewed in their home without the presence of the patient. The results show that arduousness was experienced when that spouses' everyday life was taken up by caring for the patient at the expense of his/her own health. Spouses exhibited stamina and neglected their own health when focusing on the patient and minimising their own condition. Independence in everyday life revealed that spouses who cared about themselves and looked after their own health experienced relaxation and happiness, which protected their health. Clinical interventions should include an assessment of the spouses' health and everyday life in order to plan the care to ensure that it is directed towards increasing their independence. Future study could be done with a grounded theory method on this population to determine relationships between elements of the social process of arduousness, stamina and/or independence in the context ofhaving a spouse experiencing haemodialysis.

Keyword
health experience, everyday life, spouses, haemodialysis patients, content analysis
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-81931 (URN)
Available from: 2012-09-25 Created: 2012-09-25 Last updated: 2012-09-25Bibliographically approved
3. Time in everyday life as experienced by next of kin of haemodialysis patients
Open this publication in new window or tab >>Time in everyday life as experienced by next of kin of haemodialysis patients
(English)Manuscript (preprint) (Other academic)
Abstract [en]

Aim The aim of this study was to explore the content of time in everyday life as experienced by the next of kin of haemodialysis patients.

Background Chronic renal disease often requires haemodialysis which is a time-consuming treatment that necessitates careful planning of everyday life and involves next of kin to a large degree. Next of kin's time can be severely restricted when his/her life is devoted to the needs of the haemodialysis patient.

Method This study used explorative and descriptive design with a qualitative content analysis approach. Twenty next of kin selected purposive with the criterion of having at least one year of experience as a next of kin of a patient on haemodialysis.

Results Analysis of data from the interviews revealed experiences of time in everyday lives of the next of kin of haemodialysis patients. Their experiences were reflected in the concepts fragmented time, vacuous time and uninterrupted time.

Conclusion The experience of time in the everyday lives of next of kin of haemodialysis patients demonstrated that time for themselves was minimised and that common life space contracted. The next of kin were also aware of the prognosis of renal disease and the fact that haemodialysis was a life-sustaining treatment, which forced them to live in the present. They afforded wellness when they experienced a break from everyday live and could use their time for their own needs. Attention should be focused on time in the nurse's assessment of the next of kin's everyday life and whether or not next of kin have sufficient time required for the patient's care. There is need for further research that focuses on a generalisation of the fmdings by means of the development of instruments that can contribute assessment of time in everyday life among next of kin of chronically ill patients.

Keyword
Time, everyday life, next of kin, haemodialysis patients, content analysis
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-81932 (URN)
Available from: 2012-09-25 Created: 2012-09-25 Last updated: 2012-09-25Bibliographically approved
4. Professional support for next of kin of patients receiving chronic haemodialysis treatment: a content analysis study of nursing documentation
Open this publication in new window or tab >>Professional support for next of kin of patients receiving chronic haemodialysis treatment: a content analysis study of nursing documentation
2007 (English)In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 16, no 2, 353-361 p.Article in journal (Refereed) Published
Abstract [en]

Aim and objectives.  The aim of this study was to examine the content of nursing documentation with a focus on professional support for next of kin (NoK) of patients receiving chronic haemodialysis treatment.

Background.  Professional support in nursing focuses on promotion, maintenance and restoration of health and prevention of illness.

Design.  The study had a descriptive design and qualitative content analysis was used to search for themes based on descriptions contained in the collected nursing documentation.

Methods.  The total number of nursing records of patients receiving chronic haemodialysis treatment (n = 50) for the 5-year period 1998–2002 was included. All nursing documentation was systematic in accordance with the VIPS-documentation model.

Results.  The professional support could be described within the framework of three themes: to explore NoK's supportive resources, to enable NoK’ readiness in caring for the patient and to co-operate with NoK in the care of the patient in the home, captured by the core theme which described the professional support as a continuous process.

Conclusions.  Next of kin are a supportive resource in the nursing care of patients receiving chronic haemodialysis treatment and professional support for NoK focuses on planning their participation in the care of patients in the home.

Relevance to clinical practice.  Professional support for NoK should be documented in family focused nursing diagnoses, which would make it possible to search for different types of support. Future research might explore nurses’ or NoK's views on carer support.

Keyword
Content analysis, Haemodialysis, Next of kin, Nursing, Nursing documentation, Professional support
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-49996 (URN)10.1111/j.1365-2702.2006.01597.x (DOI)
Available from: 2009-10-11 Created: 2009-10-11 Last updated: 2017-12-12Bibliographically approved

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