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Sjukvårdens och skolans insatser för barn med AD/HD - föräldrars erfarenheter.: En intervjustudie
Linköping University, Department of Department of Health and Society, Center for Medical Technology Assessment. Linköping University, Faculty of Health Sciences.
Linköping University, Department of Department of Health and Society, Center for Medical Technology Assessment. Linköping University, Faculty of Health Sciences.
Linköping University, Department of Molecular and Clinical Medicine, Child and Adolescent Psychiatry. Linköping University, Faculty of Health Sciences.
2006 (Swedish)Report (Other academic)
Abstract [sv]

Denna rapport är framtagen i ett samarbete mellan CMT, avdelningen för Barnoch ungdomspsykiatri vid IMK, Hälsouniversitetet i Linköping och Elevhälsan inom Specialverksamheter i Linköpings kommun. Tidigare har AD/HD och relaterade tillstånd belysts vad gäller epidemiologi, behandling och hälsoeffekter i CMT-rapport 2003:4. Nyligen har området studerats mer från ett samhällsperspektiv i CMT-rapport 2005:3. I denna tredje rapport tillförs ett anhörigperspektiv från intervjuer med anhöriga i Östergötland.

I litteraturen har få utvärderingar från ett anhörigperspektiv av insatser vid AD/HD och relaterade tillstånd kunnat återfinnas. Det är vår förhoppning att denna rapport kan bidra till ett bredare perspektiv.

Vi vill rikta ett varmt tack till alla deltagande familjer. Vi tackar även skolpsykiater Ann Fristedt och Elevhälsan i Linköpings kommun, docent Per Gustafsson och avdelningen för Barn- och Ungdomspsykiatri vid Hälsouniversitetet i Linköping, samt Landstinget i Östergötland som på olika sätt stöttat arbetet.

Abstract [en]

Since 1996-97, the Municipality of Linköping has been using a structured model for investigation and intervention in children with learning difficulties. In this model   pedagogical,   psychological,   and   child-   and   adolescent   psychiatric competences are linked to the child in the school environment.

The main purpose of this report has been to illustrate how such interventions from school and healthcare have worked for children with AD/HD and related disorders. A second purpose has been to increase knowledge on the situation of the  families  in  the  fields  of  work,  family  life  and  social  life.  Data  from interviews with 14 parents are summarised.

It appears  from the literature  that AD/HD  in a societal  perspective  has been sparsely  studied.  Life  with  an AD/HD  child  has been  described  by some  as chaotic,  filled  with  conflicts  and  exhausting.  Variations  between  countries, ethnical groups and between the sexes (boys are investigated more often than girls) are seen in help-seeking, aetiological explanations, other peoples’ attitudes and in intervention patterns. We have found only few scientific studies on how interventions were perceived by relatives.

In this study, time elapsed from onset of symptoms  until investigations  were undertaken was as long as 4-8 years in 9 out of 14 cases. Otherwise, a general impression is that in most cases diagnosing was helpful and that interventions facilitated   schooling,   maturation   and  development.   Today,   13  of  the  14 adolescents  are in upper secondary school. Most parents experience  that their child  performs  well.  Their  thoughts  on  how  the  situation  would  have  been without early interventions are quite pessimistic.

Most parents describe various impacts from their AD/HD child on their working hours, economy, family life and social life. In many cases both the family and a third person were extra involved in the supervision and care of the child.

This  study  shows  the  need  for  schools  and  healthcare  providers  to establish competence and efficient working methods for early diagnostics and treatment of  children  with  AD/HD  and  related  disorders.  Long  and  time-consuming admittance  procedures  should  be  avoided  when  efficient  interventions  and treatments  are  available.  The  model  in  the  Municipality  of  Linköping  is  a positive example that should be disseminated and further developed.

Place, publisher, year, edition, pages
Linköping: Linköping University Electronic Press , 2006. , 40 p.
CMT Report, ISSN 0283-1228 (print), 1653-7556 (online) ; 2006:2
National Category
Social Sciences
URN: urn:nbn:se:liu:diva-34032ISRN: LIU CMT RA/0602Local ID: 20516OAI: diva2:254880
Available from: 2009-10-10 Created: 2009-10-10 Last updated: 2014-10-27Bibliographically approved

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Nordfeldt, SamBernfort, LarsArvidsson, Elisabeth
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