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Att drabbas av testikelcancer: En studie av män med behandlad testikelcancer och deras anhöriga
Linköping University, The Tema Institute, Department of Communications Studies. Linköping University, Faculty of Arts and Sciences.
2000 (Swedish)Doctoral thesis, comprehensive summary (Other academic)Alternative title
Contracting Testicular Cancer : A Study of Men with Medically Treated Testicular Cancer and Their Close Relatives (English)
Abstract [en]

The aim of the thesis is to describe and analyse men's experience of testicular cancer, the interaction with caregivers during the course of the disease and in the subsequent medical care process and the attitude of close relatives during this period and how they describe their life during the medical care process.

The results reported in article I describe, on the basis of audio-taped dialogues between patients and physicians and interviews between patients and physicians, the impact the medical care program SWENOTECA has on the interaction between patient and physician and on how the patients experience their disease and the follow-up of care and treatment. As a result of the medical care program SWENOTECA, oncological care and treatment is framed in a structured care context which gives the patients a perspective of the future and very much influences their sense of safety and security. Article II describes how, in interviews, men reconstructed their discovery of a testicular tumour, how they express their thoughts about and attitudes towards cancer. The men have a functionally oriented approach to their body, which means that the ability to work and carry out their day-to-day duties is a more important sign that they are not ill than are individual physical changes in an organ. In article III, the audio-taped dialogues between patients and physicians have been analysed in order to determine how routinization in the dialogue affects the patient's ability to talk about sensitive subjects and bring up questions and problems on his own initiative. A consequence of the routinised medical care context is that follow-up consultations between patients and physicians focus on restoring trust in the value of the check-ups and the prospects of the disease being cured. In article IV, interviews with close relatives of men treated for testicular cancer are analysed. In these interviews, the parties discussed how cancer affected family life and daily routines as well as how relationships and closeness developed and what the future held. Testicular cancer is something that very much affects the men's close relatives. They do not regard themselves, or are regarded by others, as people with needs of their own and the sorrow and fear they feel results in social isolation during the period of the disease.

Place, publisher, year, edition, pages
Linköping: Linköpings universitet , 2000. , 128 p.
Series
Linköping Studies in Arts and Science, ISSN 0282-9800 ; 217
Keyword [en]
men, close relatives, testicular cancer, medical care program, oncological follow-up consultations, routinization, sensitivity, everyday life
Keyword [sv]
Testikelcancer, Andrologi, Tumörer, Onkologi, Cancer
National Category
Social Sciences Interdisciplinary
Identifiers
URN: urn:nbn:se:liu:diva-35329Local ID: 26313ISBN: 91-7219-835-4 (print)OAI: oai:DiVA.org:liu-35329DiVA: diva2:256177
Public defence
2000-10-06, Sal Elysion, Hus-T, Universitetsområdet Valla, Linköping, 13:15 (Swedish)
Supervisors
Available from: 2009-10-10 Created: 2009-10-10 Last updated: 2014-08-27Bibliographically approved
List of papers
1. The Swenoteca Medical Care Program as a Resource for Patients and Physicians
Open this publication in new window or tab >>The Swenoteca Medical Care Program as a Resource for Patients and Physicians
2002 (English)In: Vård i Norden, ISSN 0107-4083, E-ISSN 1890-4238, Vol. 22, no 2, 33-37 p.Article in journal (Refereed) Published
Abstract [en]

The overall aim is to investigate, from a communicative and interactive perspective, how physicians use the medical care program in dialogues with patients, and how patients use the program when they talk about their treatment and the disease, testicular cancer. Data consist of 23 patient-physician consultations and 23 interviews. The analysis was performed in stages. The results show that the physicians use the medical care program as an instrument in the dialogues and a structure for information when a patient is about to embark on a round of continued treatment after his operation. When the physician presents the course of treatment to the patient, he gives SWENOTECA as the reason for the choice. During the follow-up consultations, SWENOTECA is used as a basic framework for what should be checked from a medical point of view and as a structure to ensure that the checkups are performed. The medical care program seems to exert a strong influence on the men’s accounts during the interviews in terms of the medical terminology they use and as a structure for the course of the disease and for giving them a perspective of the future as well as hope.

Keyword
patient-physician interaction, communication, testicular cancer, medical care program
National Category
Social Sciences Interdisciplinary
Identifiers
urn:nbn:se:liu:diva-79287 (URN)
Available from: 2012-07-09 Created: 2012-07-09 Last updated: 2017-12-07Bibliographically approved
2. An interview study of men discovering testicular cancer
Open this publication in new window or tab >>An interview study of men discovering testicular cancer
2000 (English)In: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 23, no 4, 304-309 p.Article in journal (Refereed) Published
Abstract [en]

Testicular cancer affects men between 15 and 45 years old. The aim of this study was to show how men with testicular cancer discover their cancer, react to physical changes, and take action. In the follow-vp phase, 21 who had undergone surgery for testicular cancer were interviewed. The results show clearly that the men focus on their physical pain. The progress from the discovery of changes in the testicular glands to medical care can be divided into three phases. In the first phase, "something has happened," the men consider the changes and try to define the reasons. In the second phase, "facing the situation," they consider the situation and decide whether to talk to someone. In the third phase, "seeking medical help," it is a question of seeking help and being confronted by the medical diagnosis. In terms of time, the progression in the current study took from 1 day to 1 year. The men sought help when complications arose that made normal daily functions difficult. Six of the men suspected that the cause of their problems was cancer. Almost half of the participants in this study, including the six who suspected cancer, did not talk to anyone before they decided to seek medical help. The men who did talk to Other people did not seek medical help any more quickly than the other men. None of the men routinely inspected their bodies.

Keyword
communication, seeking medical help, self-detection, testicular cancer
National Category
Natural Sciences
Identifiers
urn:nbn:se:liu:diva-49475 (URN)10939178 (PubMedID)
Available from: 2009-10-11 Created: 2009-10-11 Last updated: 2012-07-09Bibliographically approved
3. Routinization and sensitivity: Interaction in oncological follow-up consultations
Open this publication in new window or tab >>Routinization and sensitivity: Interaction in oncological follow-up consultations
2001 (English)In: Health, ISSN 1363-4593, E-ISSN 1461-7196, Vol. 5, no 2, 139-163 p.Article in journal (Other academic) Published
Abstract [en]

The empirical data of this study were gathered in the form of audio-taped recordings of dialogues between 21 patients, who had had operations for testicular cancer and three physicians during follow-up consultations. The aim is to inquire into how routine practices affect the goals of checking up the medical conditions and providing patients with reassurance, and how practices affect the treatment of sensitive topics and the patients’ possibilities of bringing up their own problems are affected. The results show that the routines built up by the medical care programme are used as recurrent opportunities for the parties to confirm that the situation is under control and as resources when they talk about the sensitive topics of sexuality and fertility. How the routinization affected the patients’ possibilities of bringing up their own problems cannot be fully determined. Of the 50 initiatives by patients to present their problems, only nine did so solely on their own initiative.

Keyword
doctor–patient interaction, oncological, routinization, sensitivity
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-25488 (URN)10.1177/136345930100500201 (DOI)9934 (Local ID)9934 (Archive number)9934 (OAI)
Available from: 2009-10-07 Created: 2009-10-07 Last updated: 2012-07-09Bibliographically approved
4. How everyday life is affected: An interview study of relatives of men suffering from testicular cancer
Open this publication in new window or tab >>How everyday life is affected: An interview study of relatives of men suffering from testicular cancer
2002 (English)In: Journal of psychosocial oncology, ISSN 0734-7332, Vol. 20, no 2, 27-44 p.Article in journal (Refereed) Published
Abstract [en]

The aim of this study was to describe, by means of explorative interviews, the experiences of relatives of male family members suffering from testicular cancer. The central questions concerned how the disease and its treatment affected the life of the family, how its daily routines were affected, the form of relationships and closeness during the period of the disease, and how the future was given shape. The results revealed four main themes presented by the relatives during the interviews: the disease and its course, normalization, the long-term consequences of the disease, and the social network. The results showed that relatives of men suffering from cancer live in a vulnerable situation characterized by social isolation.

Keyword
Close relatives, cancer, men, testicular cancer, family life
National Category
Social Sciences Interdisciplinary
Identifiers
urn:nbn:se:liu:diva-22861 (URN)10.1300/J077v20n02_02 (DOI)2202 (Local ID)2202 (Archive number)2202 (OAI)
Available from: 2009-10-07 Created: 2009-10-07 Last updated: 2013-09-04Bibliographically approved

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