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What to do when 'there is nothing more to do'? A study within a salutogenic framework of family members' experience of palliative home care staff
Linköping University, Faculty of Health Sciences. Linköping University, Department of Social and Welfare Studies, Äldre - vård - civilsamhälle (ÄVC) . Östergötlands Läns Landsting, Local Health Care Services in Central Östergötland, Department of Geriatric and Hospital Based Homecare UHL.
Karolinska institutet.
2007 (English)In: Psycho-Oncology, ISSN 1057-9249, E-ISSN 1099-1611, Vol. 16, no 8, 741-51 p.Article in journal (Refereed) Published
Abstract [en]

The aim of this study was to develop a theoretical framework of family members' experience of palliative home care staff based on a secondary analysis of four previous studies. A salutogenic framework was used, i.e. with the origin of health in focus. Data had been collected (semi-structured tape-recorded interviews and postal questionnaires with open-ended questions) from 469 family members of mainly cancer patients referred to advanced palliative home care. Walker and Avant's strategies for theory construction were used. The secondary analysis generated three theoretical blocks: (1) general components of staff input (including five generalized resistance resources (GRRs): competence, support, spectrum of services, continuity, and accessibility); (2) specific interactions with staff (including two GRRs: being in the centre and sharing caring); (3) emotional and existential consequences of staff support (including six health-disease continuums: security-insecurity, hope-hopelessness, congruent inner reality-chaos, togetherness-isolation, self-transcendence-feelings of insufficiency and retained everyday life-disrupted everyday life). It seems important that all three aspects of family members' experience of palliative care staff are to be considered in evaluations of palliative care, in goal-setting and in teaching role models. The study is specific to the Swedish model of palliative home care and replication of the work in other countries is recommended.

Place, publisher, year, edition, pages
2007. Vol. 16, no 8, 741-51 p.
Keyword [en]
family member • staff • salutogenesis • cancer • oncology
National Category
Social Sciences
URN: urn:nbn:se:liu:diva-40568DOI: 10.1002/pon.1124Local ID: 53495OAI: diva2:261417
Available from: 2009-10-10 Created: 2009-10-10 Last updated: 2010-05-31

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Milberg, Anna
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Faculty of Health SciencesÄldre - vård - civilsamhälle (ÄVC) Department of Geriatric and Hospital Based Homecare UHL
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