Patients' perceptions of self-determination as expressed in the context of care
2001 (English)In: Journal of Advanced Nursing, ISSN 0309-2402, Vol. 35, no 1, 117-125 p.Article in journal (Refereed) Published
Aim. The aim of this study was to describe patients' perceptions of how self-determination finds expression in the context of care. Background. Self-determination is an important concept within health care as well as an important patient right. New legislation on patient rights in Sweden and Europe is aimed at increased patient self-determination. Design and method. Data were collected through semi-structured, tape-recorded interviews with 17 strategically chosen patients within somatic care and analysed using a method inspired by phenomenography. Results. The analysis found three descriptive categories of the informants' perceptions: trusting, accepting and a feeling of powerlessness. The patients expressed a great sense of trust and confidence in the care provided and they accepted the health care procedures. At the same time, they expressed a feeling of powerlessness because of not being part of decision-making, as well as lacking knowledge and information about treatment strategies. The patients wished to have the right of more self-determination but lacked the strength and knowledge to be able to influence their own care. Conclusions. Patients' perceptions of self-determination suggest that, in their encounters with the professional care, knowledge is expressed as power. The feeling of a lack of self-determination can be reduced by help and support from a nurse who allocates time for communication in order to learn the patient's needs and reach a mutual understanding.
Place, publisher, year, edition, pages
2001. Vol. 35, no 1, 117-125 p.
Autonomy, Communication, Knowledge, Patients, Perceptions, Phenomenography, Power, Professional, Qualitative method, Rights, Self-determination
IdentifiersURN: urn:nbn:se:liu:diva-47328DOI: 10.1046/j.1365-2648.2001.01828.xOAI: oai:DiVA.org:liu-47328DiVA: diva2:268224