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Satisfaction with routine follow-up visits to the physician?: the needs of patients with breast cancer
Linköping University, Department of Medicine and Care, Nursing Science. Linköping University, Faculty of Health Sciences.
Department of Surgical Sciences, Division of Surgery, Uppsala University, Uppsala.
Linköping University, Department of Medicine and Care. Linköping University, Faculty of Health Sciences.
2001 (English)In: Acta Oncologica, ISSN 0284-186X, E-ISSN 1651-226X, Vol. 40, no 4, 454-459 p.Article in journal (Refereed) Published
Abstract [en]

Follow-up visits after surgery for breast cancer constitute a large proportion of the outpatient consultations at surgical and oncological clinics. The reasons for the follow-ups include early detection of relapse, patients' well-being, and data collection for quality assurance and scientific studies. The aim of this study was to describe the needs of the patient with breast cancer and satisfaction with routine follow-up visits to the physician. A strategic sample of 20 women with breast cancer, routinely followed-up at an oncology outpatient clinic, was interviewed. A qualitative descriptive design inspired by the phenomenographic method was used. The results identified the need for routines, accessibility, security, continuity, confidence and information. The women's views demonstrated that there are strong reasons for reviewing and changing the design of the traditional follow-up system to obtain the most effective and well-functioning system possible to better meet these women's needs.

Place, publisher, year, edition, pages
2001. Vol. 40, no 4, 454-459 p.
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:liu:diva-48346DOI: 10.1080/02841860119793OAI: oai:DiVA.org:liu-48346DiVA: diva2:269242
Available from: 2009-10-11 Created: 2009-10-11 Last updated: 2012-10-25Bibliographically approved
In thesis
1. Traditional or individualised follow-up in women after breast cancer surgery
Open this publication in new window or tab >>Traditional or individualised follow-up in women after breast cancer surgery
2004 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The general aim was to compare different follow-up approaches after breast cancer surgery, i.e. traditional follow-up to a physician and individualised approaches, with specific emphasis on satisfaction, well-being and self-care. Both quantitative and qualitative research methods have been employed. This thesis is based on two study cohorts; in studies 1-III, 264 women who had undergone surgery for breast cancer between 1991-2001 at two hospitals in Sweden were consecutively randomised to two parallel groups (study I). From this study cohort 20 women were interviewed about their experience of traditional follow-up to a physician (study II) and 19 women were interviewed about their experience from the nurse-led follow-up on demand (study III). Study I compared and evaluated the two systems; traditional physician follow-up and nurse led follow-up on demand. Studies II and III explored the needs of women after breast cancer surgery. Study IV contains a new study cohort of 96 women who had undergone surgery for breast cancer and who were consecutively selected and divided into two parallel groups between 2001-2003 at two hospitals in Sweden. Study IV compared traditional physician follow-up with a multi-disciplinary educational programme. Instruments such as The Hospitality Anxiety and Depression-scale, the Functional Assessment of Cancer Therapy-General scale and the Sense of Coherence scale as well as semi-structured interviews were used for the data collection. Analysis of the data was mainly performed by inferential statistical mainly non-parametric methods and by a phenomenographic approach. The result showed that women with breast cancer in stages I to II could be followed up by a specialist nurse leading to high patient satisfaction and good medical safety (study I). Women tend to vary in their appreciation of different aspects of the follow-up; some need routine while others require accessibility, continuity, confidence and security were demanded as self-care education and individualised information (studies II, III). A multidisciplinary education programme based on patients' needs led to a similar level of well-being, self-care and coping ability as that resulting from traditional physician follow-up and thus, can be considered as a viable alternative (study IV).

The women value the nurses professional knowledge and skills. Accessibility and early assessment by healthcare professionals or an oncology nurse are essential in a system without routine follow-up. There are good reasons for reviewing and changing the design of the traditional follow-up system in order to ensure the most effective and well-functioning system possible, to better meet the needs of women with breast cancer and to involve them in decision making concerning follow-up.

Place, publisher, year, edition, pages
Linköping: Linköpings universitet, 2004. 62 p.
Series
Linköping University Medical Dissertations, ISSN 0345-0082 ; 873
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-24054 (URN)3613 (Local ID)91-7373-852-2 (ISBN)3613 (Archive number)3613 (OAI)
Public defence
2004-12-03, Berzeliussalen, Hälsouniversitetet, Linköping, 13:00 (Swedish)
Opponent
Available from: 2009-10-07 Created: 2009-10-07 Last updated: 2012-10-25Bibliographically approved

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Koinberg, Ingalill

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