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Living with coeliac disease - Controlled study of the burden of illness
Linkoping Univ, Coeliac Ctr, Fac Hlth Sci, SE-58191 Linkoping, Sweden Jonkoping Hosp, Dept Internal Med, Jonkoping, Sweden Skovde Cty Hosp, Dept Internal Med, Skovde, Sweden Varnamo Hosp, Dept Internal Med, Varnamo, Sweden.
Linköping University, Faculty of Health Sciences. Linköping University, Department of Clinical and Experimental Medicine, Gastroenterology and Hepatology .
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2002 (English)In: Scandinavian Journal of Gastroenterology, ISSN 0036-5521, Vol. 37, no 1, 39-42 p.Article in journal (Refereed) Published
Abstract [en]

Background: Coeliac patients improve vastly when started on a.-gluten-free diet. After 10 years, however, women show a lower level of subjective health than men do. We investigated whether this could be explained by differences in the perceived disease burden. Methods: We studied 68 coeliac patients (34 women) (mean age 57 years, range 32-75) and matched type-2 diabetes controls treated for a mean of 10 years. They were examined by a 9-item Burden of Illness (BI) protocol comprising perceived worries, restriction., and subjective outcome. The subjective health was assessed with the Short Form 36 Health Survey (SF-36) questionnaire. Results: The importance of complying with the diet was ranked similarly high by male and female coeliac patients, However, women were less satisfied with the outcome at 10 years than men were, and expressed more concern about the impact on socializing with friends and having to abstain from important things in life. None of these aspects distinguished male and female diabetic patients, Coeliac women showed a higher BI sum score than men did, and this was inversely related to their SF-36 General health, Vitality and Mental Health scores. Conclusions: Coeliac women adhering to the treatment regimen for several years perceive the disease burden to be worse than men do. In the light of similar differences in their quality of life, inquiry is warranted into the way coeliac men and women are coping with the disorder.

Place, publisher, year, edition, pages
2002. Vol. 37, no 1, 39-42 p.
Keyword [en]
burden of illness, coeliac disease, diabetes mellitus, gluten-free diet, SF-36, well-being
National Category
Medical and Health Sciences
URN: urn:nbn:se:liu:diva-49002OAI: diva2:269898
Available from: 2009-10-11 Created: 2009-10-11 Last updated: 2011-01-13

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Midhagen, Gunnar
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