liu.seSearch for publications in DiVA
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • oxford
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Disability, coping and quality of life in individuals with muscular dystrophy: a prospective study over five years
Univ Orebro, Dept Caring Sci, S-70182 Orebro, Sweden Uppsala Univ, Sect Caring Sci, Dept Publ Hlth & Caring Sci, Uppsala, Sweden Orebro Med Ctr Hosp, Dept Neurol & Neurophysiol, S-70185 Orebro, Sweden Linkoping Univ, Dept Med & Caring Sci, S-58183 Linkoping, Sweden.
Univ Orebro, Dept Caring Sci, S-70182 Orebro, Sweden Uppsala Univ, Sect Caring Sci, Dept Publ Hlth & Caring Sci, Uppsala, Sweden Orebro Med Ctr Hosp, Dept Neurol & Neurophysiol, S-70185 Orebro, Sweden Linkoping Univ, Dept Med & Caring Sci, S-58183 Linkoping, Sweden.
Linköping University, Faculty of Health Sciences. Linköping University, Department of Medicine and Health Sciences, Nursing Science.
2000 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 22, no 17, 776-785 p.Article in journal (Refereed) Published
Abstract [en]

Purpose : The present study investigates progressive muscular dystrophy over a five year period. The purpose is twofold: to describe changes over time and to investigate relations between disability, coping and quality of life. Method: The study group comprised 45 adults (16 men and 29 women), with an average age of 44 years. All were assessed in 1991 and 1996, with the following instruments: the ADL staircase, the Self-report ADL, the Mental Adjustment to Cancer scale, the Sickness Impact Profile and the Psychosocial well-being questionnaire (Kaasa). Results : Increasing disability was accompanied by an increase in dependence on others and a significant deterioration of health-related quality of life and with regard to 'Satisfaction'. The predominant type of coping was 'Fighting spirit', whilst 'Fatalism' showed the greatest decline over time. 'Ambulation' and the ADL staircase correlated with 'Physical index' on the SIP. Correlations between disability, coping and quality of life were moderate. The results can serve as a basis for planning and evaluation of recurring rehabilitation for persons with MD.

Place, publisher, year, edition, pages
2000. Vol. 22, no 17, 776-785 p.
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:liu:diva-49507OAI: oai:DiVA.org:liu-49507DiVA: diva2:270403
Available from: 2009-10-11 Created: 2009-10-11 Last updated: 2017-12-12

Open Access in DiVA

No full text

Authority records BETA

Ahlström, Gerd

Search in DiVA

By author/editor
Ahlström, Gerd
By organisation
Faculty of Health SciencesNursing Science
In the same journal
Disability and Rehabilitation
Medical and Health Sciences

Search outside of DiVA

GoogleGoogle Scholar

urn-nbn

Altmetric score

urn-nbn
Total: 21 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • oxford
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf