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Epidemiology of haemoglobin disorders in Europe: An overview
UCL Centre for Health Informatics and Multiprofessional Education (CHIME), UCL Centre of Health Informatics and Multiprofessional Education, Holborn Union Building, Whittington Campus, Highate Hill, London N19 5LW, United Kingdom.
UCL Centre for Health Informatics and Multiprofessional Education (CHIME).
Department of Haematology, Herlev Hospital, University of Copenhagen, Herlev, Denmark.
Department of Pediatrics, University Hospital Ulm, Ulm, Germany.
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2007 (English)In: Scandinavian Journal of Clinical and Laboratory Investigation, ISSN 0036-5513, Vol. 67, no 1, 39-69 p.Article, review/survey (Refereed) Published
Abstract [en]

Objective. As a result of global population movements, haemoglobin disorders (thalassaemias and sickle cell disorders) are increasingly common in the formerly non-indigenous countries of Northern and Western Europe and in the indigenous countries of Southern Europe. This article presents an overview of the changing picture and a method for assessing service needs. Method. Data on country of birth or ethnic origin of residents are adjusted to obtain the estimated proportions of residents and births in non-indigenous groups at risk for haemoglobin disorders in European countries. The results are combined with prevalence data in each country of origin to obtain country prevalence estimates. Service indicators (annual tests or other interventions required to ensure equitable delivery of treatment and prevention) are then derived by country. Results. Haemoglobin disorders now occur at comparable frequency throughout Northern, Western and Southern Europe. Annually, there are more affected conceptions in Northern and Western than in Southern Europe, and sickle cell disorders are more common than thalassaemias. There is growing need for health policy-makers to support motivated professionals working to develop optimal patient care, carrier diagnosis, genetic counselling and access to prenatal diagnosis throughout the Region. Conclusion. There is a strong case for pan-European collaboration on haemoglobin disorders to share policies, standards and the instruments required to support them. These include methods for needs assessment, service standards, education and information strategies and materials, and methods for evaluating service delivery. © 2007 Taylor & Francis.

Place, publisher, year, edition, pages
2007. Vol. 67, no 1, 39-69 p.
Keyword [en]
Epidemiology, Europe, Haemoglobin disorders, Policy, Prevention, Screening, Sickle cell, Thalassaemia
National Category
Natural Sciences
URN: urn:nbn:se:liu:diva-49992DOI: 10.1080/00365510601046557OAI: diva2:270888
Available from: 2009-10-11 Created: 2009-10-11 Last updated: 2010-01-27

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Theodorsson, Elvar
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Clinical ChemistryFaculty of Health SciencesDepartment of Clinical Chemistry
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