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Being the next of kin of an adult person with muscular dystrophy
Linköping University, Faculty of Health Sciences. Linköping University, Department of Medicine and Health Sciences, Nursing Science.
Ahlström, G., Örebro University, Sweden, Department of Health Sciences, Örebro University, Sweden.
Örebro University, Sweden, Department of Health Sciences, Örebro University, Sweden.
2006 (English)In: Clinical Nursing Research, ISSN 1054-7738, Vol. 15, no 2, 86-104 p.Article in journal (Refereed) Published
Abstract [en]

A chronic disorder affects all members of the family in various ways. The aim of this study is to elucidate the next of kin's (N = 36) experiences when an adult family member has muscular dystrophy. The relationships were partner (36%, n = 14), parent (18%, n = 7), child (21%, n = 8), sibling (15%, n = 6), and other relative (3%, n = 1). Latent content analysis is employed and involves an interpretation of the interview text. The results show the meaning of being close to a person with muscular dystrophy through the themes that emerged: exposure of the family, the span between obligation and love, being vigilant, protective, and supportive, and striving for an ordinary life. This study reveals a need for healthcare staff to understand the next of kin's narrated meaning of changes when a family member has a progressive disease. © 2006 Sage Publications.

Place, publisher, year, edition, pages
2006. Vol. 15, no 2, 86-104 p.
Keyword [en]
Chronic disease, Family, Latent content analysis, Muscular dystrophy, Next of kin
National Category
Medical and Health Sciences
URN: urn:nbn:se:liu:diva-50226DOI: 10.1177/1054773805285706OAI: diva2:271122
Available from: 2009-10-11 Created: 2009-10-11 Last updated: 2011-01-11

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