Being the next of kin of an adult person with muscular dystrophy
2006 (English)In: Clinical Nursing Research, ISSN 1054-7738, Vol. 15, no 2, 86-104 p.Article in journal (Refereed) Published
A chronic disorder affects all members of the family in various ways. The aim of this study is to elucidate the next of kin's (N = 36) experiences when an adult family member has muscular dystrophy. The relationships were partner (36%, n = 14), parent (18%, n = 7), child (21%, n = 8), sibling (15%, n = 6), and other relative (3%, n = 1). Latent content analysis is employed and involves an interpretation of the interview text. The results show the meaning of being close to a person with muscular dystrophy through the themes that emerged: exposure of the family, the span between obligation and love, being vigilant, protective, and supportive, and striving for an ordinary life. This study reveals a need for healthcare staff to understand the next of kin's narrated meaning of changes when a family member has a progressive disease. © 2006 Sage Publications.
Place, publisher, year, edition, pages
2006. Vol. 15, no 2, 86-104 p.
Chronic disease, Family, Latent content analysis, Muscular dystrophy, Next of kin
Medical and Health Sciences
IdentifiersURN: urn:nbn:se:liu:diva-50226DOI: 10.1177/1054773805285706OAI: oai:DiVA.org:liu-50226DiVA: diva2:271122