Representing the absent user: A dilemma for citizens by proxy
2007 (English)In: Mental retardation (Washington, D.C. Print), ISSN 0047-6765Article in journal (Other academic) Submitted
Audio recordings of “user-centered” team meetings are used toinvestigate how participants discursively account for decisions and opinionsabout the everyday treatment of five non-participating “users” with severecognitive impairments. The meetings take place in the Swedish rehabilitationsector and the users’ ages vary. Two accounting forms are discerned and relatedto theories of proxy decision-making proposed in medical ethics. “Accountsreflecting user preferences” mirror autonomy values by including references tointerpretations of the user’s preferences. “Accounts reflecting proxy beliefs” lacksimilar references and mirror the values of beneficence and nonmaleficence. It isargued that the participants shall seek to advance the user’s involvementcontinuously and reflect on to what extent his/her expressions of agency shalldetermine the proxy decision-making.
Place, publisher, year, edition, pages
Disability, proxy decision-making, democracy, person-centered planning, discourse analysis
IdentifiersURN: urn:nbn:se:liu:diva-52955OAI: oai:DiVA.org:liu-52955DiVA: diva2:286303