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Patients' Perspective of Factors Influencing Quality of Life While Living With Crohn Disease
Linköping University, Department of Medical and Health Sciences. Linköping University, Faculty of Health Sciences. Östergötlands Läns Landsting, Heart and Medicine Center, Department of Endocrinology and Gastroenterology UHL.
Linköping University, Department of Clinical and Experimental Medicine, Gastroenterology and Hepatology. Linköping University, Faculty of Health Sciences. Östergötlands Läns Landsting, Heart and Medicine Center, Department of Endocrinology and Gastroenterology UHL.
Linköping University, Department of Medical and Health Sciences, Nursing Science. Linköping University, Faculty of Health Sciences.
Linköping University, Department of Medical and Health Sciences, Nursing Science. Linköping University, Faculty of Health Sciences.
2010 (English)In: Gastroenterology Nursing, ISSN 1042-895X, E-ISSN 1538-9766, Vol. 33, no 1, 37-44 p.Article in journal (Refereed) Published
Abstract [en]

Crohn disease is a chronic inflammatory bowel disease of unknown etiology. The chronic, relapsing nature of Crohn disease produces physical, psychological, and social stress. The disease occurs early in life, and the effects of Crohn disease on daily life are associated with symptom burden; thus, managing their disease and coping with its impact is a lifelong process for sufferers. This study was undertaken to identify and describe the meaning of quality of life in patients with Crohn disease. Using a grounded theory methodology, 11 interviews were performed with 6 men and 5 women, 29–83 years of age, all suffering from Crohn disease. The experience of quality of life was associated with limitations in daily activity, the major theme that emerged from the analysis. Quality of life varied depending on how the patient managed limitations related to the symptoms of the disease. The categories of self-image, confirmatory relations, powerlessness, attitude toward life, and sense of well-being were conceptualized as the dominant themes derived from the data. When caring for these patients, it is important to identify limitations and provide support so that patients are able to maintain a daily life that can be perceived as normal and routine.

Place, publisher, year, edition, pages
Lippincott Williams & Wilkins, 2010. Vol. 33, no 1, 37-44 p.
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Medical and Health Sciences
Identifiers
URN: urn:nbn:se:liu:diva-63183DOI: 10.1097/SGA.0b013e3181cd49d0OAI: oai:DiVA.org:liu-63183DiVA: diva2:376772
Available from: 2010-12-13 Created: 2010-12-13 Last updated: 2017-12-11Bibliographically approved

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Pihl Lesnovska, KatarinaHjortswang, HenrikEk, Anna-ChristinaHollman Frisman, Gunilla

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Pihl Lesnovska, KatarinaHjortswang, HenrikEk, Anna-ChristinaHollman Frisman, Gunilla
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Department of Medical and Health SciencesFaculty of Health SciencesDepartment of Endocrinology and Gastroenterology UHLGastroenterology and HepatologyNursing Science
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