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Self-Care Agency and Perceived Health Among Persons Using Advanced Medical Technology at Home
Linköping University, Department of Medical and Health Sciences, Nursing Science. Linköping University, Faculty of Health Sciences.
Linköping University, Department of Medical and Health Sciences, Nursing Science. Linköping University, Faculty of Health Sciences.
Linköping University, Department of Medical and Health Sciences, Nursing Science. Linköping University, Faculty of Health Sciences. Östergötlands Läns Landsting, Local Health Care Services in Central Östergötland, Department of Acute Internal Medicine.
Department of Nursing, Health and Culture, University West, Sweden/Department of Health and Nursing Sciences, Faculty of Health and Sport Sciences, University of Agder, Norway.
2012 (English)In: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 68, no 4, 806-815 p.Article in journal (Refereed) Published
Abstract [en]

Aim. This paper is a report of a study of self-care agency and perceived health in a group ofpersons using advanced medical technology at home.

Background. An increasing number of persons are using medical technology for self-care. Few studies describe daily life in this context at an overriding level, irrespective of the specific sort of technology. A connection between self-care, perceived health and sense of coherence has previous been implied.

Methods. A descriptive, comparative, cross-sectional quantitative design was used. Data were collected from a questionnaire in the winter 2009/2010. The questionnaire addressed perceiveed health and daily life with medical technology, and applied Swedish versions of the Appraisal of Self-care Agency scale and the 13-item version of Antonovsky’s sense of coherence scale.

Results. The questionnaire was answered by 180 adults performing self-care at home involving long-term oxygen, a ventilator, peritoneal or blood dialysis. Health-related and technology-related variables in daily life were rated as satisfactory to a high extent. Perceived health was rated significantly lower among participants using long-term oxygen. Sufficient sense of coherence and knowledge of how to use technology, close contacts with other persons, and not feeling helpless contributed positively as factors for self-care agency. Positive factors for perceived health were being satisfied with life, having an active life, and not feeling helpless, while age was a negative factor.

Conclusion. Daily life is manageable for persons using these types of technology. Long-term oxygen treatment and advanced age can be seen as risk factors for perceiving ill health.

Place, publisher, year, edition, pages
2012. Vol. 68, no 4, 806-815 p.
Keyword [en]
Appraisal of self-care agency scale, high-tech care; home ventilator; home dialysis; long-term oxygen; nursing; sense of coherence
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:liu:diva-63741DOI: 10.1111/j.1365-2648.2011.05781.xISI: 000301426000009OAI: oai:DiVA.org:liu-63741DiVA: diva2:382683
Note
Funding Agencies|Department of Nursing, Health and Culture, University West||Division of Nursing Science, Department of Medicine and Health Sciences, Faculty of Health Sciences, Linkoping University||University of Agder||University West, Sweden||University of Agder, Norway||Available from: 2011-01-03 Created: 2011-01-03 Last updated: 2017-12-11Bibliographically approved
In thesis
1. From Novice Towards Self-Care Expert: Studies of self-care among persons using advanced medical technology at home
Open this publication in new window or tab >>From Novice Towards Self-Care Expert: Studies of self-care among persons using advanced medical technology at home
2010 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The use of advanced medical technology at home has increased in most industrialized countries. The overall aim of this thesis was to develop knowledge of self-care and transition and issues that influence daily life and health among persons using advanced medical technology at home.

Three qualitative studies were performed to describe the structure of self-care (I) and elucidate meanings of health-illness transition experiences among persons using long-term oxygen, or a ventila-tor, or performing blood or peritoneal dialysis (II), and to gain a deeper understanding of the meaning of living with an adult family member in this context (III). Ten interviews with adult patients (I-II) and ten with adult next of kin (III) in this context were performed and analysed with descriptive phenome-nological (I), phenomenological hermeneutical (II) and hermeneutical (III) methods. A quantitative, descriptive, comparative, cross-sectional design was used to describe and find factors that influence self-care agency and perceived health in a larger group of persons (180 patients) using the enumerated types of advanced medical technology at home (IV).

In the results, (I) self-care among persons using long-term oxygen, a ventilator, or equipment for blood or peritoneal dialysis at home was described at a generic level, independent of the specific type of technology used. The general description of self-care in this context involved prerequisites for, activities for and consequences of self-care; (II) the health-illness transition among adult persons in this context was interpreted as contentment at being part of the active and conscious process towards transcending into a new state of living, in which the individual and the technology were in tune. The successful and healthy transition experience was characterized by human growth and becoming; (III) living with a family member who is using advanced medical technology at home was interpreted as meaning rhythmical patterns of being closely connected to but also separated from him or her, and of sorrow versus reconciliation. Dependence on others was reflected in a need for support from the healthcare professionals and significant others; (IV) health-related and technology-related variables in daily life were rated as satisfactory to quite a high extent, but participants using long-term oxygen perceived their health as significantly lower compared to the other technology groups. Further, a significant difference in sense of coherence was found between users of long-term oxygen and peri-toneal dialysis. Factors that contributed to self-care agency and sense of coherence were found.

In conclusion, self-care in a high-tech home context means more than simply mastering the technology. With the goal of maintaining an active, social life, the health-illness transition involves a learning process of accepting and integrating the technology into daily life. With knowledge and support, patients and next of kin are able to assume substantial responsibility for self-care/dependent-care. Daily life seems to be manageable for patients using this kind of technology at home.

Place, publisher, year, edition, pages
Linköping: Linköping University Electronic Press, 2010. 54 p.
Series
Linköping University Medical Dissertations, ISSN 0345-0082 ; 1207
Keyword
Dependent-care, health, hermeneutics, home dialysis, home ventilator, long-term oxygen, next of kin, phenomenology, transition
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-63742 (URN)978-91-7393-313-1 (ISBN)
Public defence
2010-12-15, Berzeliussalen, Campus US, Linköpings universitet, Linköping, 13:00 (Swedish)
Opponent
Supervisors
Available from: 2011-01-03 Created: 2011-01-03 Last updated: 2011-01-03Bibliographically approved

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Fex, AngelikaFlensner, GullviEk, Anna-Christina

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