The Glimmering Embers: Experiences of hope among cancer patients in palliative home care
2011 (English)In: Palliative and Supportive Care, ISSN 1478-9515; eISSN: 1478-9523, Vol. 9, no 1, 43-54 p.Article in journal (Refereed) Published
The experience of hope among cancer patients in palliative care is important knowledge for health care providers, but research is sparse. The aim of this paper was to explore how cancer patients admitted to palliative home care experienced the significance of hope and used hope during six weeks throughout the last phase of their life and to assess their symptoms and hope status during six weeks throughout the last phase of their lives.
Eleven adult patients with cancer participated in twenty interviews and completed seven diaries. The participants were recruited from two palliative care units in South-East of Sweden. The methods used were Grounded Theory (GT), and analysis was based on the constant comparative method.
The core category, glimmering embers, was generated from four processes: (1) The creation of “convinced” hope, with a focus on positive events, formed in order to have something to look forward to; (2) The creation of “simulated hope”, including awareness of the lack of realism, but including attempts to believe in unrealistic reasons for hope; (3) The collection of and maintaining of moments of hope, expressing a wish to “seize the day” and hold on to moments of joy and pleasure; and (4) “Gradually extinct” hope, characterized by a lack of energy and a sense of time running out. The different processes of hope helped the patients to continue to live when they were close to death. Hope should be respected and understood by the professionals giving them support.
Place, publisher, year, edition, pages
Cambridge University Press, 2011. Vol. 9, no 1, 43-54 p.
Hope, meaning, grounded theory, cancer, palliative care
Medical and Health Sciences
IdentifiersURN: urn:nbn:se:liu:diva-65794DOI: 10.1017/S1478951510000532OAI: oai:DiVA.org:liu-65794DiVA: diva2:399011