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Children and youth with myelomeningoceles independence in managing clean intermittent catheterization in familiar settings
Linköping University, Faculty of Health Sciences. Östergötlands Läns Landsting, Local Health Care Services in Central Östergötland, Habilitation in Central County. Linköping University, Department of Clinical and Experimental Medicine, Pediatrics. (Vuxenhabiliteringen)
School of Occupational Therapy, La Trobe University and Murdoch Children’s Research Institute, Melbourne, Vic., Australia.
Linköping University, Department of Clinical and Experimental Medicine, Pediatrics. Linköping University, Faculty of Health Sciences. Östergötlands Läns Landsting, Centre of Paediatrics and Gynecology and Obstetrics, Department of Paediatrics in Linköping.
Linköping University, Department of Clinical and Experimental Medicine, Pediatrics. Linköping University, Faculty of Health Sciences. Östergötlands Läns Landsting, Centre of Paediatrics and Gynecology and Obstetrics, Department of Paediatrics in Linköping.
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2011 (English)In: ACTA PAEDIATRICA, ISSN 0803-5253, Vol. 100, no 3, 429-438 p.Article in journal (Refereed) Published
Abstract [en]

Aim: To examine the ability of children and youth with myelomeningocele to independently manage clean intermittent catheterization. Methods: There were 50 participants with myelomeningocele (5-18 years); 13 of them had also participated in a previous hospital-based study. Their abilities and interest in completing the toilet activity were examined at home or in school using an interview and the Canadian Occupational Performance Measure (COPM). Actual performance was observed and rated. Background variables were collected from medical records and KatAD+E tests. Results: In total, 48% were observed to perform the toilet activity independently, in comparison with 74% who self-reported independence. Univariate analyses found KatAD+E could predict who was independent. COPM failed to do so. Ability to remain focused and ambulation were predictors of independence, but age, sex and IQ were not. Multivariable analysis found time to completion to be the strongest predictor of independence. Four children were independent in their familiar environment, but not in the hospital setting, and six of 13 children maintained focus only in their familiar environment. Conclusions: Interviews were not sufficiently accurate to assess independence in the toilet activity. Instead, observations including time to completion are recommended. The execution of the toilet activity is influenced by the environmental context.

Place, publisher, year, edition, pages
Wiley-Blackwell, 2011. Vol. 100, no 3, 429-438 p.
Keyword [en]
Catheter intervention, Clean intermittent catheterization, Independence, Neurogenic bladder dysfunction, Spina bifida
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Medical and Health Sciences
Identifiers
URN: urn:nbn:se:liu:diva-66906DOI: 10.1111/j.1651-2227.2010.02044.xISI: 000286837700024OAI: oai:DiVA.org:liu-66906DiVA: diva2:405235
Available from: 2011-03-21 Created: 2011-03-21 Last updated: 2012-03-25

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Donlau, MarieGlad Mattsson, GunillaMattsson, SvenFalkmer, Torbjörn

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Donlau, MarieGlad Mattsson, GunillaMattsson, SvenFalkmer, Torbjörn
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Faculty of Health SciencesHabilitation in Central CountyPediatricsDepartment of Paediatrics in LinköpingRehabilitation Medicine
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