Evaluation of knowledge, perceived control, symptoms of anxiety and depression related to a model for follow-up in adults with congenitally malformed hearts: a randomised control trial
2011 (English)Manuscript (preprint) (Other academic)
Objective: To evaluate the effects of a model including computer-based and individualised education and psychosocial support for adults with congenitally malformed hearts.
Design: Prospective randomised controlled multicentre trial.
Setting: Four hospital outpatient clinics in Sweden.
Participants: Adults with congenitally malformed hearts.
Interventions: Comparing usual care twith education and psychosocial support by a multidisciplinary team.
Main Outcome Measures: Knowledge and perceived control regarding the heart condition, and symptoms of anxiety and depression at baseline, 3 and 12-months follow-up.
Results: Out of 114 included participants, 58 were randomised to the control group, and 56 to the intervention group. The average age was 34 (SD 13.5) years. Results showed a significant between-group treatment effect in general knowledge after 3 months (effect size 0.63, p=<0.01), and 12-month (effect size 0.53, p= 0.02). Knowledge regarding endocarditis also increased significantly between-group after 3 months (effect size 0.87, p= <0.01), and over time between baseline and 3 months (effect size 1.43, p=<0.001), and between baseline and 12-months (effect size 0.58, p= 0.02). There were no changes in knowledge in domains regarding self-management of medical treatment and contraceptives and pregnancy in any of the groups. Further, the intervention did neither increase nor decrease the perceived control over the heart condition or symptoms of anxiety and depression.
Conclusion: Education and psychosocial support by a multidisciplinary team was effective in improving and maintaining knowledge about self-management in adults with heart malformation. Future research is needed to determine the long-time effects on selfmanagement behaviours and perceived control.
Place, publisher, year, edition, pages
2011. Vol. 83, no 2, 247-51 p.
Congenital heart disease, hospital outpatient clinic, follow-up studies, computer program, patient education
Medical and Health Sciences
IdentifiersURN: urn:nbn:se:liu:diva-68676OAI: oai:DiVA.org:liu-68676DiVA: diva2:419578