Coeliac disease: Women’s experiences in everyday life
2012 (English)In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 21, no 23-24, 3442-3450 p.Article in journal (Refereed) Published
Aim. This paper is a report of a descriptive study on what life is like as a woman living with coeliac disease (CD).
Background. The therapy for CD is a gluten-free diet (GFD), and if sufferers keep strictly to this it is suggested that they will stay well. However, previous studies point out that people who are treated for CD, particularly women, experience various kinds of inconvenience in relation to having CD and to being treated with GFD.
Methods. A phenomenological approach as devised by Giorgi was used. Taperecorded qualitative interviews with a total of 15 women who were being treated for CD were conducted in 2008 in Sweden.
Results. The results demonstrated that CD can influence women’s lives in different ways. The general structure of being a woman with coeliac disease was described as a striving towards a normalised lifeworld. Three conditions necessary to achieve a normalised life were described, namely being secure, being in control and being seen and included.
Conclusion. The results of this study can help caregivers, and others, to understand and develop support for women with this condition.
Place, publisher, year, edition, pages
Blackwell Publishing, 2012. Vol. 21, no 23-24, 3442-3450 p.
Chronic disease, illness experience, phenomenology research, nursing
Medical and Health Sciences
IdentifiersURN: urn:nbn:se:liu:diva-72451DOI: 10.1111/j.1365-2702.2012.04279.xISI: 000310978000013OAI: oai:DiVA.org:liu-72451DiVA: diva2:459717
funding agencies|Medical Research Council of Southeast Sweden FORSS||Ostergotland County Council||2011-11-282011-11-282016-03-24