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Reframing dementia in Swedish self-help group conversations: Constructing citizenship
Linköping University, Department of Medical and Health Sciences, Health and Society. Linköping University, Faculty of Arts and Sciences.
2012 (English)In: International journal of self help & self care, ISSN 1091-2851, E-ISSN 1541-4450, Vol. 6, no 1, 9-41 p.Article in journal (Refereed) Published
Abstract [en]

This study explores on a micro-level the activity of a self-help group for persons with dementia in Swedish municipal care, based on audio-recordings from 18 months' ethnographic fieldwork. The study focuses on the discursive construction of a shared meaning perspective and its inherent possibilities for liberation. Applying a citizenship perspective, the study approaches people with dementia as vulnerable to marginalization while at the same time capable of agency within the boundaries of their condition. The findings paint a complex picture involving opportunities and limitations of experiential knowledge, issues of double stigmatization, and constructs of being interrelated with other people and with the surrounding society. In the center is the overarching struggle of retaining citizenship in the face of the evolving disease.

Place, publisher, year, edition, pages
Baywood Publishing Company, Inc., 2012. Vol. 6, no 1, 9-41 p.
Keyword [en]
Dementia, citizenship, self-help groups, mutual support, meaning perspective, experiential knwoledge, discourse, Sweden
National Category
Social Sciences Interdisciplinary
URN: urn:nbn:se:liu:diva-72831DOI: 10.2190/SH.6.1.cOAI: diva2:462866
Available from: 2011-12-08 Created: 2011-12-08 Last updated: 2016-07-01Bibliographically approved

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Örulv, Linda
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