Chronicity and moral quests: Sense-making and self-making in narratives about chronic fatigue
(English)Manuscript (preprint) (Other academic)
This article discusses how moral questions raised by an illness like Chronic Fatigue Syndrome (CFS) become part of people's illness narratives. Drawing on the writings of the philosopher Charles Taylor (1989), about moral quests and identity, two individual sufferers' illness narratives are analysed concergning how they try to make sense of life with respect to morality and how to maintain oneself as a moral person in and through narratives. The analysis shows that the narrative reconstruction and the anchoring of illness in the personal life story seem to be of significance for orienting oneself in a moral space. This orientation, or sometimes re-orientation, also included the question of where they were heading, that is the future. One exampe is the shift in moral frameworks about what it means to lead a good life. The analysis also shows that people through their narratives resist threats against their sense of self by striving to maintain their views of themselves as moral persons. This was for instance done by presenting themselves as trustworthy persons and as persons with dignity.
illness narratives, narrative analysis, morality, identity, contested illness
Social Sciences Interdisciplinary
IdentifiersURN: urn:nbn:se:liu:diva-78968OAI: oai:DiVA.org:liu-78968DiVA: diva2:537298