Advancing the nursing perspective in screening and genetic research: ethics, informed consent and councelling
(English)Manuscript (preprint) (Other academic)
The aim of the present study was to explore ethical attitudes and reflections among nurses and midwives involved in a primaty prevention research screening for Type 1 diabetes, ABIS (All Babies In South-East Sweden). We selected a strategic sample of ten respondents (midwives, paediatric and assistant nurses) from wards involved in all information and sampling procedures. We found a general positive attitude towards this type of screening. Even though no bioethical problems were said to be experienced, there were questions raised concerning the bio-material collected. We also found variations in the respondents understanding of aims and methods, something subsequently reflected in their information to the potential ABIS participants. We argue that the findings and the potential implications can be of importance with regard to several issues of genetic testing and screening: design, information, informed consent and counselling. The study supports the opinion that nursing perspective studies are important, not only in addressing issues in regard of the new genetics, but also because of their potential value in the ethics of nursing and of research ethics.
Medical and Health Sciences
IdentifiersURN: urn:nbn:se:liu:diva-81864OAI: oai:DiVA.org:liu-81864DiVA: diva2:556129