Always considering the potential need for a toilet: A content analysis of 20 interviews with persons living with inflammatory bowel disease
(English)Manuscript (preprint) (Other academic)
Objective: Inflammatory bowel disease (IBD) is a well explored medical condition; in contrast, few studies have evaluated IBD as a chronic illness as experienced by the patient.
Method: Twenty participants were included in a purposeful sample. Interview responses were subjected to a qualitative systematic text condensation analysis.
Result: The main finding of the analysis was the description of life with chronic IBD as one where the patient is “always considering the potential need for a toilet”. This new description emerged from three main parts of the analysis: firstly, the experience of what it is like to be affected by the disease; secondly, the accompanying consequences of the illness; and thirdly, the adaptation needed to restore one’s normal life.
Conclusion: IBD shares several characteristics with other chronic illnesses. Patients pass through a series of stages including managing their disease, controlling the symptoms and consequences of the illness, and normalizing social interactions and restoring a normal life, all with the particularity of always having to consider the potential need for a toilet.
Lived experience, inflammatory bowel disease, content analysis, chronic illness, qualitative
Medical and Health Sciences
IdentifiersURN: urn:nbn:se:liu:diva-84632OAI: oai:DiVA.org:liu-84632DiVA: diva2:560868