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Patients in 24-hour home care striving for control and safety
Karolinska institutet (KI), Institutionen för neurobiologi, vårdvetenskap och samhälle (NVS) .
Linköping University, Department of Behavioural Sciences and Learning, Psychology. Linköping University, Faculty of Arts and Sciences. (Grupp- och socialpsykologi)ORCID iD: 0000-0002-7117-5620
Karolinska institutet (KI), Institutionen för neurobiologi, vårdvetenskap och samhälle (NVS) .
Karolinska institutet (KI), Institutionen för neurobiologi, vårdvetenskap och samhälle (NVS) .
2012 (English)In: BMC Nursing, ISSN 1472-6955, ISSN ISSN 1472-6955, Vol. 11, no 9, 2-12 p.Article in journal (Refereed) Published
Abstract [en]

Background: This article concerns Swedish patients receiving 24-hour home care from health care assistants (HCassistants) employed by the municipality. Home care is a complex interactive process involving the patient, family,HC assistants as well as professional care providers. Previous studies exploring patient perspectives on home carehave been based mainly on patient interviews. In contrast, the present study took a broad perspective on patients’experiences and thoughts by combining field observations on care situations with patient and HC assistantinterviews. The aim of the study presented in this article was to promote a new and broadened understanding ofpatients receiving 24-hour home care by constructing a theoretical model to illuminate their main concern.Methods: Field observations and semi-structured interviews were conducted with four patients receiving 24-hourhome care and their HC assistants. Grounded theory methodology was used.Results: The core process identified was Grasping the lifeline, which describes compensatory processes throughwhich patients strived for control and safe care when experiencing a number of exposed states due to inadequatehome care. Patients tried to take control by selecting their own HC assistants and sought safe hands by instructinguntrained HC assistants in care procedures. When navigating the care system, the patients maintained contacts withprofessional care providers and coordinated their own care. When necessary, a devoted HC assistant could takeover the navigating role. The results are illuminated in a theoretical model.Conclusions: The results accentuate the importance to patients of participating in their own care, especially in theselection of HC assistants. The model illustrates some challenging areas for improvement within the organisation of24-hour home care, such as personnel continuity and competence, collaboration, and routines for acute care.Furthermore, it may be used as a basis for reflection during the planning of care for individual patients withinhome care.

Place, publisher, year, edition, pages
BioMed Central, 2012. Vol. 11, no 9, 2-12 p.
National Category
Medical and Health Sciences Nursing
URN: urn:nbn:se:liu:diva-86809DOI: 10.1186/1472-6955-11-9OAI: diva2:582690
Available from: 2013-01-06 Created: 2013-01-06 Last updated: 2016-08-31

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Hammar Chiriac, Eva
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