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Children with myelomeningocele and independence in the toilet activity: A pilot study
Linköping University, Department of Clinical and Experimental Medicine. Linköping University, Faculty of Health Sciences.
Linköping University, Department of Clinical and Experimental Medicine, Pediatrics. Linköping University, Faculty of Health Sciences. Östergötlands Läns Landsting, Centre of Paediatrics and Gynecology and Obstetrics, Department of Paediatrics in Linköping.
Linköping University, Department of Clinical and Experimental Medicine, Pediatrics. Linköping University, Faculty of Health Sciences. Östergötlands Läns Landsting, Centre of Paediatrics and Gynecology and Obstetrics, Department of Paediatrics in Linköping.
2013 (English)In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 20, no 1, 64-70 p.Article in journal (Refereed) Published
Abstract [en]

Objective: Regarding adult life and independence the most common obstacles for young adults with myelomeningocele (MMC) are cognitive dysfunction and difficulties in performing toilet activities. A step-by-step method with goal setting for the training of self-care in toilet activities for children with MMC was evaluated. Method: Twenty-two children with MMC and bladder and bowel dysfunction (12 girls, 10 boys) aged 3-17.2 (m 9.1) were included. The toilet activities were observed at home jointly by an occupational therapist and urotherapist. Goal-setting procedures of self-training were promoted. Observation scores before and after intervention were compared, the goal setting being evaluated on a Goal Attainment Scale (GAS). Results: Fifteen children who trained in self-catheterization had a median observation score of 22 before and 37 after the training period (p = 0.002). Another seven trained in trans-rectal irrigation with a median score of 30 before and 49 after (p = 0.02). As a result of GAS all children improved, of whom 17 reached the goal or even more so than expected. Conclusions: In this pilot study mutual goal setting in a step-by-step training programme based on professional observation of the toilet activity at home showed a better outcome than traditionally performed training in a hospital setting or with traditional habilitation support.

Place, publisher, year, edition, pages
Informa Healthcare , 2013. Vol. 20, no 1, 64-70 p.
Keyword [en]
toilet training, spina bifida, self-care, neurogenic bladder and bowel dysfunction
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:liu:diva-87962DOI: 10.3109/11038128.2012.700729ISI: 000312785300009OAI: oai:DiVA.org:liu-87962DiVA: diva2:601031
Note

Funding Agencies|Medical Research Council of Southeast Sweden||County Council of Ostergotland||Swedish Inheritance Fund||

Available from: 2013-01-28 Created: 2013-01-28 Last updated: 2017-12-06

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Donlau, MarieMattsson, SvenGlad Mattsson, Gunilla

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Donlau, MarieMattsson, SvenGlad Mattsson, Gunilla
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Department of Clinical and Experimental MedicineFaculty of Health SciencesPediatricsDepartment of Paediatrics in Linköping
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Scandinavian Journal of Occupational Therapy
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