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Living with facial disfigurement- Strategies for individuals and care management
National Oral Disability Centre, Institute for Postgraduate Dental Education, Jönköping, Sweden.
Mun-H-Center, National Orofacial Resource Center for Rare Disorders, Gothenburg, Sweden.
Department of Plastic Surgery, Sahlgrenska University Hospital, Gothenburg, Sweden.
Linköping University, Department of Neuroscience and Locomotion, Dental Surgery. Linköping University, Faculty of Health Sciences. Östergötlands Läns Landsting, Sinnescentrum, Department of Oral Surgery UHL.
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2011 (English)In: Special Care in Dentistry, ISSN 0275-1879, Vol. 31, no 6, 216-219 p.Article in journal (Refereed) Published
Abstract [en]

Individuals and families affected by craniofacial disorders have expressed dissatisfaction with their experiences in the healthcare system, with day care, and in school situations. To capture their views, focus group encounters were done in a group of young individuals with these disorders and in a group of parents whose children were affected. The aim was to synthesize their attitudes and experiences into improved strategies for parents, teenagers, and professionals in the healthcare system. Their views were compiled into a document that emphasizes the responsibilities of persons with craniofacial disorders and their parents to actively seek information on diagnosis and treatment options and to participate in decisions on therapy. The conclusion was that it is not lack of specific knowledge but rather a lack of implementation of existing recommendations that makes living with facial disfigurement difficult for many individuals and their families. © 2011 Special Care Dentistry Association and Wiley Periodicals, Inc.

Place, publisher, year, edition, pages
Wiley-Blackwell , 2011. Vol. 31, no 6, 216-219 p.
Keyword [en]
Care strategies; Craniofacial disorders; Facial disfigurement; Multiprofessional network
National Category
Medical and Health Sciences
URN: urn:nbn:se:liu:diva-89940DOI: 10.1111/j.1754-4505.2011.00215.xOAI: diva2:610489
Available from: 2013-03-11 Created: 2013-03-11 Last updated: 2013-03-11

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Marcusson, Agneta
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Dental SurgeryFaculty of Health SciencesDepartment of Oral Surgery UHL
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