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Effects of a support group programme for patients with life-threatening illness during ongoing palliative care
University of Örebro, Sweden .
Linköping University, Department of Medical and Health Sciences, Nursing Science. Linköping University, Faculty of Health Sciences. Linnaeus University, Sweden .
Linnaeus University, Sweden .
Ersta Skondal University of Coll, Sweden .
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2013 (English)In: Palliative Medicine: A Multiprofessional Journal, ISSN 0269-2163, E-ISSN 1477-030X, Vol. 27, no 3, 257-264 p.Article in journal (Refereed) Published
Abstract [en]

Background: Health care systems in many countries are moving towards outpatient care in which family members are central in providing care for patients with life-threatening illness. Several studies show that family members report a lack of preparation, knowledge and the ability to handle the caregiver role, and a need for information and psychosocial support. less thanbrgreater than less thanbrgreater thanAim: The aim was to investigate the effects of a support group programme for family members of patients with life-threatening illness during ongoing palliative care. less thanbrgreater than less thanbrgreater thanDesign: A prospective quasi-experimental design, including an intervention group and a comparison group, was used. less thanbrgreater than less thanbrgreater thanSettings/participants: A support group programme was offered to family members during ongoing palliative care at three intervention settings: two specialist palliative care units and one haematology unit. A fourth setting, a specialist palliative care unit, was used for comparisons. less thanbrgreater than less thanbrgreater thanResults: Family members taking part in the support group programme significantly increased their perceptions of preparedness for caregiving, competence for caregiving, and rewards of caregiving. Hope, anxiety, depression symptoms and health showed no significant changes. less thanbrgreater than less thanbrgreater thanConclusions: The intervention, including a support group programme delivered to family members of patients with life-threatening illness during ongoing palliative care, proved to be effective in certain domains of caregiving. No negative outcomes were detected. The results indicate that this intervention could be implemented and delivered to family members during ongoing palliative care.

Place, publisher, year, edition, pages
SAGE Publications (UK and US) , 2013. Vol. 27, no 3, 257-264 p.
Keyword [en]
Palliative care, family members, intervention, support groups
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:liu:diva-91551DOI: 10.1177/0269216312446103ISI: 000316752200006OAI: oai:DiVA.org:liu-91551DiVA: diva2:620034
Note

Funding Agencies|Health Care Sciences Postgraduate School||Erling-Person Family Foundation||Signhild Engkvist Foundation||

Available from: 2013-05-07 Created: 2013-04-26 Last updated: 2017-12-06

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Arestedt, Kristofer

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