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Everyday life for women with celiac disease
Linköping University, Department of Social and Welfare Studies, Division of Health, Activity and Care. Linköping University, Faculty of Health Sciences.
Linköping University, Department of Social and Welfare Studies, Division of Health, Activity and Care. Linköping University, Faculty of Health Sciences.
Linköping University, Department of Social and Welfare Studies, Division of Health, Activity and Care. Linköping University, Faculty of Health Sciences. Östergötlands Läns Landsting, Local Health Care Services in East Östergötland, Department of Internal Medicine in Norrköping.
Linköping University, Department of Medical and Health Sciences, Division of Nursing Science. Linköping University, Faculty of Health Sciences. Östergötlands Läns Landsting, Local Health Care Services in West Östergötland, Research & Development Unit in Local Health Care.
2013 (English)In: Gastroenterology Nursing, ISSN 1042-895X, E-ISSN 1538-9766, Vol. 36, no 4, 266-273 p.Article in journal (Refereed) Published
Abstract [en]

The aim of this research was to explore how women with celiac disease experience everyday life. It is important that healthcare professionals understand what it is like to live with a chronic illness, and also the factors that affect the lives of women who have celiac disease. The study has a qualitative approach and the data were collected using interviews with 16 women. A conventional content analysis was used for the subjective interpretation of the qualitative interviews. Three main themes emerged in the analysis: illness trajectory and treatment, socializing with others, and feelings of loneliness and worry. The findings indicate that living with celiac disease affects the person's entire life from the past, in the present, and into the future, especially when daily routines must be altered. The women expressed a sense of loneliness and invisibility, especially when socializing with others. The diet could be a friend, enemy, obstacle, or opportunity in terms of enjoying a good life. Supporting women diagnosed with celiac disease appears to be a major task for healthcare professionals. Such professionals need to pay attention to women's symptoms, worries, and their feeling of being invisible.

Place, publisher, year, edition, pages
Lippincott Williams & Wilkins, 2013. Vol. 36, no 4, 266-273 p.
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:liu:diva-96441DOI: 10.1097/SGA.0b013e31829ed98dISI: 000330364800004PubMedID: 23899485OAI: oai:DiVA.org:liu-96441DiVA: diva2:641947
Available from: 2013-08-20 Created: 2013-08-20 Last updated: 2017-12-06Bibliographically approved

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Roos, SusanneIngrid, HellströmHallert, ClaesSusan, Wilhelmsson

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Roos, SusanneIngrid, HellströmHallert, ClaesSusan, Wilhelmsson
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Division of Health, Activity and CareFaculty of Health SciencesDepartment of Internal Medicine in NorrköpingDivision of Nursing ScienceResearch & Development Unit in Local Health Care
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Gastroenterology Nursing
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