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Exploring factors and caregiver outcomes associated with feelings of preparedness for caregiving in family caregivers in palliative care: A correlational, cross-sectional study
Ersta Skondal University of Coll, Sweden Ersta Hospital, Sweden Dalens Hospital, Sweden Karolinska Institute, Sweden .
Linköping University, Department of Medical and Health Sciences, Division of Nursing Science. Linköping University, Faculty of Health Sciences.
2013 (English)In: Palliative Medicine: A Multiprofessional Journal, ISSN 0269-2163, E-ISSN 1477-030X, Vol. 27, no 7, 639-646 p.Article in journal (Refereed) Published
Abstract [en]

less thansec id="section1-0269216313486954"greater than Background: Family caregivers in palliative care often report feeling insufficiently prepared to handle the caregiver role. Preparedness has been confirmed as a variable that may actually protect family caregiver well-being. Preparedness refers to how ready family caregivers perceive they are for the tasks and demands in the caregiving role. less thansec id="section2-0269216313486954"greater than Aim: The aim of this study was to explore factors associated with preparedness and to further investigate whether preparedness is associated with caregiver outcomes. less thansec id="section3-0269216313486954"greater than Design: This was a correlational study using a cross-sectional design. less thansec id="section4-0269216313486954"greater than Setting/participants: The study took place in three specialist palliative care units and one haematology unit. A total of 125 family caregivers of patients with life-threatening illness participated. less thansec id="section5-0269216313486954"greater than Result: Preparedness was significantly associated with higher levels of hope and reward and with a lower level of anxiety. In contrast, preparedness was not associated with depression or health. Being female and cohabiting with the patient were significantly associated with a higher level of preparedness. The relationship to the patient was significantly associated with preparedness, while social support, place of care, time since diagnosis and age of the patients showed no association. less thansec id="section6-0269216313486954"greater than Conclusion: Feelings of preparedness seem to be important for how family caregivers experience the unique situation when caring for a patient who is severely ill and close to death. Our findings support the inclusion of preparedness in support models for family caregivers in palliative care. Psycho-educational interventions could preferably be designed aiming to increase family caregivers preparedness to care, including practical care, communication and emotional support.

Place, publisher, year, edition, pages
SAGE Publications (UK and US) , 2013. Vol. 27, no 7, 639-646 p.
Keyword [en]
Preparedness; family caregivers; palliative care
National Category
Medical and Health Sciences
URN: urn:nbn:se:liu:diva-96462DOI: 10.1177/0269216313486954ISI: 000320502600009OAI: diva2:642930
Available from: 2013-08-23 Created: 2013-08-20 Last updated: 2013-08-23

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Franzén Årestedt, Kristofer
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