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Quality of life in relation to ICD shocks and uncertainty in patients living with an ICD: a 5-year old follow-up
Linköping University, Department of Medicine and Care, Nursing Science. Linköping University, Faculty of Health Sciences.
Division of Cardiology, Sahlgrenska University Hospital, Göteborg, Sweden.
School of Social and Health Sciences, Halmstad University, Halmstad, Sweden.
Division of Cardiology, Sahlgrenska University Hospital, Göteborg, Sweden.
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(English)Manuscript (preprint) (Other academic)
Abstract [en]

Aim: To describe quality of life (QoL) in relation to ICD (implantable cardioverter defibrillator) shocks and uncertainty in patients living with an ICD and to identify QoL predictors over a 5-year period.

Methods: The Mishel Uncertainty in Illness Scale and Quality of Life Index were used for 35 patients. Higher scores indicate higher uncertainty and QoL.

Results: From baseline to year 1, QoL overall (p = 0.033) and in the socioeconomic domain (p = 0.006) decreased. From year 1 to 5, QoL in the socioeconomic domain increased (p = 0.027) but decreased in the family domain (p = 0.039) as did uncertainty (p = 0.009). From baseline to year 5, uncertainty (p = 0.009) and QoL in the family domain decreased (p = <0.001). Patients reporting few ICD shocks were less troubled over time, thus uncertainty is a predictor of decreased QoL.

Conclusion: ICD-patients felt better at year 5 than year 1. QoL was reasonably good 5 years post-implant, and patients felt more certain and perceived the ICD as a lifesaver.

Keyword [en]
Defibrillators implantable, ICD shocks, quality of life, satisfaction, uncertainty
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:liu:diva-97347OAI: oai:DiVA.org:liu-97347DiVA: diva2:647038
Available from: 2013-09-10 Created: 2013-09-10 Last updated: 2013-09-10
In thesis
1. Health-related quality of life in recipients with an implantable cardioverter defibrillator due to life-threatening arrhythmias: a 5 year follow-up
Open this publication in new window or tab >>Health-related quality of life in recipients with an implantable cardioverter defibrillator due to life-threatening arrhythmias: a 5 year follow-up
2004 (English)Licentiate thesis, comprehensive summary (Other academic)
Abstract [en]

The general aim of this thesis was to describe self-reported health-related quality of life (HRQoL) in recipients with an implantable cardioverter defibrillator (ICD) due to life-threatening arrhythmias over a 5-year period. The design was prospective and longitudinal. Fifty-six patients participated in Paper I, and 35 of these patients, who had survived at least five years, were included in paper II. All patients had received their ICD as a form of secondary prevention. The Quality of Life Index-Cardiac version (QLI-C), Mishel Uncertainty in Illness Scale-Community version (MUIS-C), and multiple regression analysis were used. Higher scores indicate higher HRQoL and uncertainty. The questionnaires were completed on four occasions: before implantation, at three months and at 1 year and 5 years after implantation. ICD recipients were also asked how many shocks they had perceived. At the 5-year data collection, the average ICD recipient had lived with an ICD for 6 years and 9 months. In general HRQoL was lower at year 1 than at baseline (p = 0-033). A decrease in the socioeconomic domain was observed at year 1 (p = 0.006) but improved again at year 5 (p = 0.027) although it remained below the baseline value. ICD recipients' satisfaction with the family domain decreased from the time of the ICD implantation (p < 0.001) and from year 1 (p = 0.039) to year 5 after implantation. Uncertainty related to information had decreased at year 1 in relation to baseline (p < 0.001). A decrease in overall uncertainty was observed at year 5 in relation to year 1 (p = 0.009) as well as at year 6 in relation to baseline (p = 0.009). The longer the ICD recipient had lived with the device, the greater the risk of receiving a shock. However, ICD recipients who received shocks reported being less troubled by them over time. Uncertainty was identified as a predictor of Low HRQoL. The recipients reported a higher level of HRQoL at year 5 than at year 1. HRQoL was reasonably good 5 years after implantation, and the ICD recipients felt more secure and perceived their ICD as a lifesaver.

Publisher
52 p.
Series
Linköping Studies in Health Sciences. Thesis, ISSN 1100-6013 ; 67
Series
Omvårdnadsforskning vid Hälsouniversitetet i Linköping, 13
Keyword
defibrillators implantable, ICD shocks, life-threatening arrhythmia, quality of life, satisfaction, uncertainty
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:liu:diva-24302 (URN)3921 (Local ID)91-7373-844-1 (ISBN)3921 (Archive number)3921 (OAI)
Available from: 2009-10-07 Created: 2009-10-07 Last updated: 2013-09-10

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