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Adolescents and Young Adults Experiences of Childhood Cancer: Descriptions of Daily Life 5 Years After Diagnosis
Karolinska Institute, Sweden .
Karolinska Institute, Sweden .
Karolinska Institute, Sweden .
Karolinska Institute, Sweden .
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2013 (English)In: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 36, no 5, 400-407 p.Article in journal (Refereed) Published
Abstract [en]

Background: less thanbrgreater than less thanbrgreater thanSurvivors of childhood cancer are a growing population in society. These young people have a high risk of developing chronic health problems with a potential strong impact on their lives. How a childhood cancer experience affects survivors in adolescence has been studied to a limited extent; an increased understanding of this young group is needed to improve follow-up care. less thanbrgreater than less thanbrgreater thanObjective: less thanbrgreater than less thanbrgreater thanThe aim of this study was to gain a deeper understanding of how childhood cancer affects the lives of survivors by exploring adolescents and young adults views of what it is like living with this experience. less thanbrgreater than less thanbrgreater thanMethods: less thanbrgreater than less thanbrgreater thanFifty-nine 11- to 22-year-olds were interviewed a median of 5 years after a cancer diagnosis (response rate, 66%). Data were collected through telephone interviews and were analyzed using qualitative content analysis techniques. less thanbrgreater than less thanbrgreater thanResults: less thanbrgreater than less thanbrgreater thanThree groups of informants were identified according to their descriptions of the influence of cancer treatment on their daily life: feeling like anyone else (informants who described that the cancer experience had almost no influence on current life) (49%), feeling almost like others (those who described some influence) (44%), and feeling different (those describing a great influence on current life) (7%). less thanbrgreater than less thanbrgreater thanConclusions: less thanbrgreater than less thanbrgreater thanMost of the adolescents and young adults appear to get along well, although many informants described that life was affected to some extent by having had cancer. less thanbrgreater than less thanbrgreater thanImplications for Practice: less thanbrgreater than less thanbrgreater thanFollow-up care is needed that can identify those young survivors of childhood cancer having trouble with daily life and offer them support to strengthen their resources in managing difficulties in relation to having had cancer.

Place, publisher, year, edition, pages
Lippincott, Williams and Wilkins , 2013. Vol. 36, no 5, 400-407 p.
Keyword [en]
Childhood cancer, Qualitative, Sense of coherence, Survivorship
National Category
Social Sciences
Identifiers
URN: urn:nbn:se:liu:diva-98219DOI: 10.1097/NCC.0b013e31829fd80eISI: 000323883800016OAI: oai:DiVA.org:liu-98219DiVA: diva2:653218
Note

Funding Agencies|Swedish Society of Nursing||Swedish Childhood Cancer Foundation||Radiumhemmets forskningsfonder||Karolinska Institutet||

Available from: 2013-10-03 Created: 2013-10-03 Last updated: 2017-12-06

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Silvén Hagström, Anneli

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