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Cohort Profile: The National Prostate Cancer Register of Sweden and Prostate Cancer data Base Sweden 2.0
Kings Coll London, England .
University of Uppsala Hospital, Sweden .
University of Uppsala Hospital, Sweden .
Kings Coll London, England .
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2013 (English)In: International Journal of Epidemiology, ISSN 0300-5771, E-ISSN 1464-3685, Vol. 42, no 4, 956-967 p.Article in journal (Refereed) Published
Abstract [en]

In 1987, the first Regional Prostate Cancer Register was set up in the South-East health-care region of Sweden. Other health-care regions joined and since 1998 virtually all prostate cancer (PCa) cases are registered in the National Prostate Cancer Register (NPCR) of Sweden to provide data for quality assurance, bench marking and clinical research. NPCR includes data on tumour stage, Gleason score, serum level of prostate-specific antigen (PSA) and primary treatment. In 2008, the NPCR was linked to a number of other population-based registers by use of the personal identity number. This database named Prostate Cancer data Base Sweden (PCBaSe) has now been extended with more cases, longer follow-up and a selection of two control series of men free of PCa at the time of sampling, as well as information on brothers of men diagnosed with PCa, resulting in PCBaSe 2.0. This extension allows for studies with case-control, cohort or longitudinal case-only design on aetiological factors, pharmaceutical prescriptions and assessment of long-term outcomes. The NPCR covers andgt; 96% of all incident PCa cases registered by the Swedish Cancer Register, which has an underreporting of andlt; 3.7%. The NPCR is used to assess trends in incidence, treatment and outcome of men with PCa. Since the national registers linked to PCBaSe are complete, studies from PCBaSe 2.0 are truly population based.

Place, publisher, year, edition, pages
Oxford University Press (OUP): Policy B - Oxford Open Option D , 2013. Vol. 42, no 4, 956-967 p.
National Category
Medical and Health Sciences
URN: urn:nbn:se:liu:diva-100498DOI: 10.1093/ije/dys068ISI: 000325167800008OAI: diva2:662879

Funding Agencies|Swedish Research Council|2010-5950|Vasterbotten County Council||

Available from: 2013-11-08 Created: 2013-11-08 Last updated: 2013-11-08

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Varenhorst, Eberhard
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UrologyFaculty of Health SciencesDepartment of Urology in Östergötland
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