The Influence of Disease and Context on Patient Participation in Healthcare Service Development
2013 (English)Manuscript (preprint) (Other academic)
Background: The experience that patients have gained from their own care and disease makes them a potentially valuable resource in healthcare service development. While service developers in other domains frequently involve users, this practice remains uncommon in healthcare. An initial step for increasing patient participation in healthcare service development is to determine which patients to involve and how. This study aims to clarify the various roles a patient may have in healthcare service development and examine how type of disease (episodic/chronic) and context (home/care provider) influence what forms of patient participation are suitable in healthcare service development.
Methods: Fifty-three patients participated in a healthcare service development project in which patients submitted ideas and reflections in diaries. From the diaries, we identified 360 ideas that we coded according to their types, characteristics and sources. We used logistic regression to investigate how the characteristics and sources of the ideas depended on the type of disease and context of the patients.
Results: Patients’ ideas concerned a large variety of topics and depended on context and disease. Patients were better at identifying solutions in the home than at the care provider (p<0.01). In terms of the patient’s role in executing ideas, there were differences regarding context (p<0.01) and an interaction effect between context and type of disease (p<0.01). Chronic patients mostly suggested ideas for themselves. Negative experiences were important to the generation of ideas, with differences regarding both the type of disease (p<0.01) and the context (p<0.01). Chronic patients’ ideas often stemmed from negative incidents; for episodic patients at home, from positive events. There were differences regarding the idea’s appearance for type of disease (p<0.01); for chronic patients ideas emerged from continuous problems, for episodic patients from new situations.
Conclusions: Based on the type of disease (episodic/chronic) and context (home/care provider), we have identified four different roles that a patient can have in healthcare service development: feedback provider, problem solver, co-developer, and expert. We suggest different methods for patient participation in healthcare service development for each role. By doing so, this article helps care provider’s select appropriate methods to support patient participation in healthcare service development.
Place, publisher, year, edition, pages
Patient participation; healthcare service development; patient centred care, diaries
Engineering and Technology
IdentifiersURN: urn:nbn:se:liu:diva-105928OAI: oai:DiVA.org:liu-105928DiVA: diva2:712298
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