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Perceptions of sleep quality and stress by parents of children enrolled in hospital organized home-care
Linköping University, Department of Social and Welfare Studies. Linköping University, Faculty of Arts and Sciences.
Linköping University, Department of Medical and Health Sciences, Division of Nursing Science. Linköping University, Faculty of Health Sciences.
Linköping University, Department of Social and Welfare Studies, Division of Health, Activity and Care. Linköping University, Faculty of Health Sciences. Östergötlands Läns Landsting, Center of Paediatrics and Gynaecology and Obstetrics, Department of Paediatrics in Linköping.ORCID iD: 0000-0002-3256-5407
2013 (English)In: Nordic Advances in Health Care Sciences Research, Lund, 2013: Abstract book / [ed] Gerd Ahlström, Lena von Koch, 2013, 56-56 p.Conference paper, Poster (with or without abstract) (Other academic)
Abstract [en]

Introduction

Caring for a sick child creates much greater demands for parents than those associated with raising a healthy child. Parents of chronically ill children reports higher levels of parental stress as a consequence of the substantial social, emotional and personal demands associated with caring. Sleep quality is an important aspect of wellbeing and is strongly related to stress and quality of life. In some Swedish counties families are offered hospital organized home-care for sick children. Caring for a child at home gives the family the opportunity to be together in an environment they know well and where they can feel comfortable and secure. On the other hand it includes several sleep disturbances during the night which affects the ability to handle the situation and support their child. No other study is found about how parents sleep when their child is enrolled in hospital organized home-care.

 

Aim

To explore parents’ perceptions of sleep quality and stress when they sleep at home with a child enrolled in hospital organized home-care.

 

Material

Fifteen parents (11 mothers and 4 fathers) with children enrolled in hospital organized home-care from one university hospital and one general hospital in South-eastern Sweden were included. The children ranged in age 0-12 years.

 

Method

Parents were interviewed with open-ended questions. Data was analysed with a phenomenographic method according to Marton and Both.

 

Results

Four descriptive categories in the phenomenon of parents’ perceptions of sleep quality and stress when they sleep at home with a child enrolled in hospital organized home-care were identified; Routines helps to manage the situation, Time for oneself and the partner, Feelings of isolation and Need of support

 

Conclusion

Sleep is important for the parents in several aspects. They are in a stressful situation with high demands both from the society and from themselves and there is often a lack of support from relatives and friends. Nurses need to acknowledge and promote parents’ sleep when they care for their sick children at home and support them in the caregiving.

Place, publisher, year, edition, pages
2013. 56-56 p.
Keyword [en]
Parents, Sleep, Home Care Services, Child, Caregiver, Nursing
National Category
Medical and Health Sciences Nursing
Identifiers
URN: urn:nbn:se:liu:diva-106053OAI: oai:DiVA.org:liu-106053DiVA: diva2:713215
Conference
Nordic Conference on Advances in Health Care Sciences Research, Lund, November 13-14, 2013
Available from: 2014-04-22 Created: 2014-04-22 Last updated: 2016-05-04Bibliographically approved

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Angelhoff, CharlotteEdéll-Gustafsson, UllaMörelius, Evalotte

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Angelhoff, CharlotteEdéll-Gustafsson, UllaMörelius, Evalotte
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Department of Social and Welfare StudiesFaculty of Arts and SciencesDivision of Nursing ScienceFaculty of Health SciencesDivision of Health, Activity and CareDepartment of Paediatrics in Linköping
Medical and Health SciencesNursing

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