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Hälsorelaterad livskvalitet hos partner till personer med afasi: En undersökning baserad på hälsoenkäten SF-36 och semistrukturerade intervjuer
Linköping University, Department of Clinical and Experimental Medicine. Linköping University, Faculty of Health Sciences.
Linköping University, Department of Clinical and Experimental Medicine. Linköping University, Faculty of Health Sciences.
2014 (Swedish)Independent thesis Advanced level (degree of Master (One Year)), 20 credits / 30 HE creditsStudent thesisAlternative title
Health-Related Quality of Life in Significant Others of People with Aphasia : A Qualitative Study Based on the Health Survey SF-36 and Semi-Structured Interviews (English)
Abstract [en]

Around 30,000 people in Sweden suffer stroke every year, out of which about 12,000 end up with language difficulties, aphasia. Behind every person with aphasia there are significant others whose lives are also affected. Studies of how aphasia affects the health of these people are few. The overall aim of the present study was to examine how significant others of people with aphasia perceive their life situation, and how their quality of life is affected by the illness of their partner. Spouses of people with aphasia were contacted through aphasia groups and the Swedish Aphasia Association. A total of eleven people participated in the study, which consisted of the health survey SF-36 and semi-structured interviews. The results indicated that men, working people, and people at retirement age are at risk of having a lower health-related quality of life, by living with a person suffering from aphasia. Other factors that seemed to contribute to a lower quality of life were; a more severe aphasia, a big work load at home, less mutual activities as a couple, and a general decrease of communication in everyday life. The conclusion is therefore, that the health-related quality of life is at risk of becoming negatively affected by living with a person who suffers from aphasia.

Abstract [sv]

Varje år insjuknar cirka 30 000 personer i stroke i Sverige och av dem drabbas cirka 12 000 av språkliga svårigheter i form av afasi. Bakom varje person med afasi finns det anhöriga, vars liv också påverkas. Hur afasin påverkar den anhöriges hälsa är inte väl studerat. Det övergripande syftet med föreliggande studie var därmed att undersöka hur anhöriga, till personer med afasi, uppfattar sin egen livssituation, samt hur deras livskvalitet påverkas av den närståendes sjukdom. Partner till personer med afasi kontaktades genom afasigrupper och afasiföreningar. Totalt valde elva personer att deltaga i studien, vilken bestod av hälsoenkäten SF-36 samt en semistrukturerad intervju. Resultaten pekade på att män, yrkesverksamma och personer i pensionsålder riskerar att få en lägre hälsorelaterad livskvalitet av att leva med någon med afasi. Övriga faktorer, som tycktes bidra till en lägre livskvalitet, var en svårare afasi, en hög börda i hemmet, färre gemensamma aktiviteter som par samt en generell försämring av kommunikationen i vardagen. Slutsatsen är därmed att den hälsorelaterade livskvaliteten riskerar att påverkas negativt av att leva med en person som drabbats av afasi.

Place, publisher, year, edition, pages
2014. , 40 p.
Keyword [en]
significant others of people with aphasia, health-related quality of life, SF-36, semi-structured interview
Keyword [sv]
partner till personer med afasi, hälsorelaterad livskvalitet, SF-36, semistrukturerad intervju
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:liu:diva-108144ISRN: LIU-IKE/SLP-A--14/008--SEOAI: oai:DiVA.org:liu-108144DiVA: diva2:729452
Subject / course
Master (one year thesis)/Speech and Language Pathology
Presentation
2014-05-28, Karl Johan, Linköping, 11:00 (Swedish)
Supervisors
Examiners
Available from: 2014-06-26 Created: 2014-06-25 Last updated: 2014-06-26Bibliographically approved

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Department of Clinical and Experimental MedicineFaculty of Health Sciences
Medical and Health Sciences

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CiteExportLink to record
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Citation style
  • apa
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Output format
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