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ICD Recipients Understanding of Ethical Issues, ICD Function, and Practical Consequences of Withdrawing the ICD in the End-of-Life
Linköping University, Department of Medical and Health Sciences, Division of Nursing Science. Linköping University, Faculty of Health Sciences. Östergötlands Läns Landsting, Heart and Medicine Center, Department of Cardiology in Linköping.ORCID iD: 0000-0002-4259-3671
Östergötlands Läns Landsting, Heart and Medicine Center, Department of Cardiology in Linköping.
University of Kentucky, KY, USA .
University of Kentucky, KY USA .
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2014 (English)In: Pacing and Clinical Electrophysiology, ISSN 0147-8389, E-ISSN 1540-8159, Vol. 37, no 7, 834-842 p.Article in journal (Refereed) Published
Abstract [en]

Background: The current international expert consensus statements recommend that clinicians should discuss elective implantable cardioverter defibrillator (ICD) deactivation before implantation of the device, and then consistently during the illness trajectory. However, no previous studies have investigated predictors of ICD patients knowledge about end-of-life issues or whether knowledge influences patients attitudes about deactivation. Methods: This nationwide survey study (n = 3,067) had a cross-sectional correlational design of self-reported data. Participants were recruited from the Swedish ICD and Pacemaker Registry and asked to complete a questionnaire about knowledge in relation to the ICD and end-of-life. Results: Only 79 respondents (3%) scored correctly on all 11 questions. The mean sample score was 6.6 +/- 2.7 out of a maximum score of 11. A total of 835 participants (29%) had an insufficient knowledge when using the 25th percentile as a cutoff. Younger ICD recipients, those cohabiting, male participants, and those who had received shocks, had a generator replacement, or who had discussed illness trajectory with their physician were more likely to have sufficient knowledge on the end-of-life issues. Insufficient knowledge was associated with indecisiveness to make decisions about ICD deactivation in the end-of-life situations, and with favorable attitudes about replacing the ICD even if seriously ill or have reached an advanced age, and keeping the shock therapy of the ICD even in a terminal phase of life when dying from cancer or other serious chronic illnesses. Conclusion: Insufficient knowledge is common among ICD recipients and is associated with attitudes and decisions that may result in a stressful and potentially painful end-of-life situation.

Place, publisher, year, edition, pages
Wiley-Blackwell, 2014. Vol. 37, no 7, 834-842 p.
Keyword [en]
communication; end-of-life; implantable cardioverter defibrillator; quality-of-life; knowledge
National Category
Clinical Medicine
URN: urn:nbn:se:liu:diva-109600DOI: 10.1111/pace.12353ISI: 000339486900007PubMedID: 24483943OAI: diva2:739425
Available from: 2014-08-21 Created: 2014-08-21 Last updated: 2014-09-23Bibliographically approved

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Strömberg, AnnaThylén, Ingela
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Division of Nursing ScienceFaculty of Health SciencesDepartment of Cardiology in Linköping
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