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Important aspects of participation and participation restrictions in people with a mild intellectual disability
Örebro University, Sweden; Uppsala University, Sweden .
Örebro University, Sweden; Jönköping University, Sweden .
Linköping University, Department of Clinical and Experimental Medicine, Division of Inflammation Medicine. Linköping University, Faculty of Health Sciences. Östergötlands Läns Landsting, Heart and Medicine Center, Department of Rheumatology.
Linköping University, Department of Medical and Health Sciences, Division of Community Medicine. Linköping University, Faculty of Health Sciences. Östergötlands Läns Landsting, Anaesthetics, Operations and Specialty Surgery Center, Pain and Rehabilitation Center. Örebro University, Sweden.
2014 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 36, no 15, 1264-1272 p.Article in journal (Refereed) Published
Abstract [en]

Purpose: This study explored a possibility to assess the concepts of participation and participation restrictions in the International Classification of Functioning, Disability and Health (ICF) by combining self-ratings of the perceived importance with the actual performance of different everyday activities in people with a mild intellectual disability. Method: Structured interviews regarding 68 items from the ICF activity/participation domain were conducted (n = 69). The items were ranked by perceived importance, performance and by combined measures. Furthermore, the measures were related to a single question about subjective general well-being. Results: Rankings of performance highlighted about the same items as "important participation", while rankings of low performance addressed quite different items compared with "important participation restriction". Significant correlations were found between subjective general well-being and high performance (r = 0.56), high performance/high importance (important participation) (r = 0.56), low performance (r = -0.56) and low performance/high importance (important participation restriction; r -0.55). Conclusions: The results support the clinical relevance of the ICF and the studied selection of 68 items. Although performance only may sometimes be a relevant aspect, knowledge about the relationship between the perceived importance and the actual performance is essential for clinical interventions and for research aiming to understand specific needs regarding participation.

Place, publisher, year, edition, pages
Informa Healthcare, 2014. Vol. 36, no 15, 1264-1272 p.
Keyword [en]
Assessment; ICF; intellectual disability; participation; self-ratings
National Category
Clinical Medicine
URN: urn:nbn:se:liu:diva-110499DOI: 10.3109/09638288.2013.845252ISI: 000340450300005PubMedID: 24160858OAI: diva2:746417

Funding Agencies|County Council of Gavleborg, Sweden; FAS (Swedish Research Council on Work and Social Life)

Available from: 2014-09-12 Created: 2014-09-12 Last updated: 2014-10-09Bibliographically approved

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Thyberg, IngridThyberg, Mikael
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Division of Inflammation MedicineFaculty of Health SciencesDepartment of RheumatologyDivision of Community MedicinePain and Rehabilitation Center
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