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Emotions related to participation restrictions as experienced by patients with early rheumatoid arthritis: a qualitative interview study (the Swedish TIRA project)
Mälardalen University, Eskilstuna, Sweden .
Linköping University, Department of Medical and Health Sciences, Division of Community Medicine. Linköping University, Faculty of Health Sciences. Östergötlands Läns Landsting, Heart and Medicine Center, Rehabilitation Center. Jönköping University, Sweden.ORCID iD: 0000-0002-1607-187X
Linköping University, Department of Clinical and Experimental Medicine, Division of Inflammation Medicine. Linköping University, Faculty of Health Sciences. Östergötlands Läns Landsting, Heart and Medicine Center, Department of Rheumatology.
Linköping University, Department of Medical and Health Sciences, Division of Community Medicine. Linköping University, Faculty of Health Sciences. Östergötlands Läns Landsting, Anaesthetics, Operations and Specialty Surgery Center, Pain and Rehabilitation Center.
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2014 (English)In: Clinical Rheumatology, ISSN 0770-3198, E-ISSN 1434-9949, Vol. 33, no 10, 1403-1413 p.Article in journal (Refereed) Published
Abstract [en]

Psychological distress is a well-known complication in rheumatoid arthritis (RA), but knowledge regarding emotions and their relationship to participation restrictions is scarce. The objective of the study was to explore emotions related to participation restrictions by patients with early RA. In this study, 48 patients with early RA, aged 20-63 years, were interviewed about participation restrictions using the critical incident technique. Information from transcribed interviews was converted into dilemmas and linked to International Classification of Functioning, Disability, and Health (ICF) participation codes. The emotions described were condensed and categorized. Hopelessness and sadness were described when trying to perform daily activities such as getting up in the mornings and getting dressed, or not being able to perform duties at work. Sadness was experienced in relation to not being able to continue leisure activities or care for children. Examples of fear descriptions were found in relation to deteriorating health and fumble fear, which made the individual withdraw from activities as a result of mistrusting the body. Anger and irritation were described in relation to domestic and employed work but also in social relations where the individual felt unable to continue valued activities. Shame or embarrassment was described when participation restrictions became visible in public. Feelings of grief, aggressiveness, fear, and shame are emotions closely related to participation restrictions in everyday life in early RA. Emotions related to disability need to be addressed both in clinical settings in order to optimize rehabilitative multi-professional interventions and in research to achieve further knowledge.

Place, publisher, year, edition, pages
Springer, 2014. Vol. 33, no 10, 1403-1413 p.
Keyword [en]
Critical incidents; Emotions; Lived experiences; Participation; Patients perspectives
National Category
Clinical Medicine Basic Medicine Sociology
Identifiers
URN: urn:nbn:se:liu:diva-111444DOI: 10.1007/s10067-014-2667-2ISI: 000342197400007PubMedID: 24838364OAI: oai:DiVA.org:liu-111444DiVA: diva2:757311
Note

Funding Agencies|County Council of Ostergotland Research Foundations; Medical Research Council of South-East Sweden (FORSS); Norrbacka-Eugenia Foundation; Swedish Rheumatism Association

Available from: 2014-10-21 Created: 2014-10-17 Last updated: 2017-12-05Bibliographically approved

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Björk, MathildaThyberg, IngridThyberg, MikaelSverker, Annette

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