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Children's Views on Long-Term Screening for Type 1 Diabetes
Lund University, Sweden.
Karolinska Institute, Sweden.
Linköping University, Department of Clinical and Experimental Medicine, Division of Clinical Sciences. Linköping University, Faculty of Health Sciences. Östergötlands Läns Landsting, Center of Paediatrics and Gynaecology and Obstetrics, Department of Paediatrics in Linköping.
Uppsala University, Sweden.
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2014 (English)In: Journal of Empirical Research on Human Research Ethics, ISSN 1556-2646, E-ISSN 1556-2654, Vol. 9, no 4Article in journal (Refereed) Published
Abstract [en]

There are an increasing number of medical research studies involving children, including many long-term birth cohort studies. Involving children raises many issues, and little is known about childrens own views. This study explored childrens views (N = 5,851) on participation in a long-term screening study for type 1 diabetes. The results show that children 10 to 13 years of age have in general a positive attitude to pediatric research and emphasized trust in researchers. The children stressed the importance to receive information and to be involved in decisions. The children also reported feeling concerned about blood sampling and disease risk. Researchers involved in long-term pediatric research need to address these issues to promote involvement and decrease worry.

Place, publisher, year, edition, pages
University of California Press , 2014. Vol. 9, no 4
Keyword [en]
research ethics; screening; children; type 1 diabetes; assent
National Category
Clinical Medicine Other Humanities
URN: urn:nbn:se:liu:diva-111750DOI: 10.1177/1556264614544456ISI: 000342637300001OAI: diva2:759789

Funding Agencies|Swedish Research Council (VR); Swedish Diabetes Foundation (Diabetesfonden); Swedish Child Diabetes Foundation (Barndiabetesfonden)

Available from: 2014-10-31 Created: 2014-10-31 Last updated: 2015-02-16

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Ludvigsson, JohnnyNordgren, Anders
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Division of Clinical SciencesFaculty of Health SciencesDepartment of Paediatrics in LinköpingArts and HumanitiesFaculty of Arts and Sciences
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Journal of Empirical Research on Human Research Ethics
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