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The Unsteady Mainstay of the Family: Now Adult Children's Retrospective View on Social Support in Relation to Their Parent's Heart Transplantation.
Linköping University, Department of Medical and Health Sciences, Division of Nursing Science. Linköping University, Faculty of Health Sciences. Östergötlands Läns Landsting, Heart and Medicine Center, Department of Thoracic and Vascular Surgery.
Department of Cardiothoracic Surgery, Clinical Sciences, Lund University, Lund, Sweden; Department of Cardiothoracic Surgery/THAI, Skåne University Hospital and Medical Services, Lund, Sweden.
School of Health Sciences, Jönköping University, Jönköping, Sweden.
2014 (English)In: Nursing Research and Practice, ISSN 2090-1429, E-ISSN 2090-1437, Vol. 2014, 541241Article in journal (Refereed) Published
Abstract [en]

The needs for support among children with a seriously ill parent, who is waiting for heart transplantation, are unknown today. The aim was to describe now adult children's experiences of social support in relation to a parent's heart transplant during childhood. Nine females and four males were interviewed. The median age for the children was 18 at the transplantation and their parents had been ill before for 18 months (median) and on waiting list for 161 days (mean). Three categories emerged: health care professionals' approaches, family and friends' approaches, and society approaches. Our results show that there was lack of support for children of heart transplantation patients. Support in the shape of information was in most cases provided by the sick or healthy parent. It is of great clinical importance to develop psychosocial support programs for children with a seriously ill parent waiting for heart transplantation (before, during, and after surgery).

Place, publisher, year, edition, pages
Hindawi Publishing Corporation, 2014. Vol. 2014, 541241
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URN: urn:nbn:se:liu:diva-113777DOI: 10.1155/2014/541241PubMedID: 25431662OAI: diva2:784690
Available from: 2015-01-30 Created: 2015-01-30 Last updated: 2016-02-08Bibliographically approved

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Ågren, Susanna
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Division of Nursing ScienceFaculty of Health SciencesDepartment of Thoracic and Vascular Surgery
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