Sleep of Parents Living With a Child Receiving Hospital-Based Home Care: A Phenomenographical Study.
2015 (English)In: Nursing Research, ISSN 0029-6562, E-ISSN 1538-9847, Vol. 64, no 5, 372-380 p.Article in journal (Refereed) Published
Background: Caring for an ill child at home gives the family the chance to be together in a familiar environment. However, this involves several nocturnal sleep disturbances, such as frequent awakenings and bad sleep quality, which may affect parents' ability to take care of the child and themselves.Objectives: The aim of this study was to describe parents' perceptions of circumstances influencing their own sleep when living with a child enrolled in hospital-based home care (HBHC) services.Method: This is a phenomenographical study with an inductive, exploratory design. Fifteen parents (11 mothers and 4 fathers) with children enrolled in HBHC services were interviewed. Data were analyzed to discover content-related categories describing differences in ways parents experienced sleep when caring for their children receiving HBHC.Results: Four descriptive categories were detected: sleep influences mood and mood influences sleep; support influences safeness and safeness influences sleep; the child's needs influence routines and routines influence sleep; and "me time" influences sleep.Discussion: Sleep does not affect only the parents' well-being but also the child's care. Symptoms of stress may limit the parents' capacity to meet the child's needs. Support, me time, and physical activity were perceived as essential sources for recovery and sleep. It is important for nurses to acknowledge parental sleep in the child's nursing care plan and help the parents perform self-care to promote sleep and maintain life, health, and well-being.
Place, publisher, year, edition, pages
Lippincott-Ravn Publisher , 2015. Vol. 64, no 5, 372-380 p.
children, chronic illness, home care services, parents, qualitative research, sleep
IdentifiersURN: urn:nbn:se:liu:diva-121085DOI: 10.1097/NNR.0000000000000108ISI: 000361361000006PubMedID: 26325279OAI: oai:DiVA.org:liu-121085DiVA: diva2:851600
ProjectsParents’ stress and sleep quality when their children need medical care
FunderÖstergötland County CouncilMedical Research Council of Southeast Sweden (FORSS)
Funding text: Medical Research Council of South East Sweden (FORSS); County Council of Ostergotland, Sweden2015-09-072015-09-072016-05-04Bibliographically approved