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Patient-Nurse Communication about Prognosis and End-of-Life Care
Linköping University, Department of Social and Welfare Studies, Division of Health, Activity and Care. Linköping University, Faculty of Medicine and Health Sciences.
Linköping University, Department of Social and Welfare Studies, Division of Health, Activity and Care. Linköping University, Faculty of Medicine and Health Sciences. University of Groningen, Netherlands.
Linköping University, Department of Social and Welfare Studies, Division of Health, Activity and Care. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Local Health Care Services in East Östergötland, Center of Palliative Care.ORCID iD: 0000-0002-9606-3238
Jonköping University, Sweden.
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2015 (English)In: Journal of Palliative Medicine, ISSN 1096-6218, E-ISSN 1557-7740, Vol. 18, no 10, 865-871 p.Article in journal (Refereed) Published
Abstract [en]

Background: Although several studies advise that discussions about prognosis and end-of-life care should be held throughout the whole heart failure (HF) trajectory, data is lacking on the prevalence and practice of such discussions in HF care. Objective: The study objective was to explore how often and why HF nurses in outpatient clinics discuss prognosis and end-of-life care in the context of patient education. Methods: This was a descriptive and comparative study. Participants were HF nurses from Swedish and Dutch HF outpatient clinics. Measurements were taken via a survey for both quantitative and qualitative data. Additional data was collected via open-ended questions and analyzed with content analysis. Results: Two hundred seventy-nine nurses registered 1809 patient conversations using a checklist. Prognosis and end-of-life care were among the least frequently discussed topics, whereas symptoms of HF was discussed most often. Prognosis was discussed with 687 patients (38%), and end-of-life care was discussed with 179 patients (10%). Prognosis and end-of-life care were discussed more frequently in The Netherlands than in Sweden (41% versus 34%, pless than0.001, 13% versus 4%, pless than0.001). The nurses did not always recognize prognosis and end-of-life care discussions as a part of their professional role. Conclusions: Currently, patient-nurse communication about prognosis and end-of-life care does not seem to be routine in patient education in HF clinics, and these discussions could be included more often. The reasons for nurses to discuss these topics were related to clinical routines, the patients situation, and professional responsibilities. To improve future care, communication with patients needs to be further developed.

Place, publisher, year, edition, pages
MARY ANN LIEBERT, INC , 2015. Vol. 18, no 10, 865-871 p.
National Category
Sociology Clinical Medicine
Identifiers
URN: urn:nbn:se:liu:diva-122208DOI: 10.1089/jpm.2015.0037ISI: 000362268900013PubMedID: 26068058OAI: oai:DiVA.org:liu-122208DiVA: diva2:864335
Note

Funding Agencies|Heart and Lung Foundation; King Gustaf V and Queen Victorias Foundation of the Freemasons

Available from: 2015-10-26 Created: 2015-10-23 Last updated: 2015-10-26

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Hjelmfors, LisaFriedrichsen, MariaStrömberg, AnnaJaarsma, Tiny
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Division of Health, Activity and CareFaculty of Medicine and Health SciencesCenter of Palliative CareDivision of Nursing ScienceDepartment of Cardiology in Linköping
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Journal of Palliative Medicine
SociologyClinical Medicine

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