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End of Life Care for Patients Dying of Stroke: A Comparative Registry Study of Stroke and Cancer
Linköping University, Faculty of Medicine and Health Sciences. Linköping University, Department of Social and Welfare Studies, Division of Nursing Science. Norrköping, Sweden.
Linköping University, Department of Social and Welfare Studies, Division of Nursing Science. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Local Health Care Services in East Östergötland, Center of Palliative Care. Region Östergötland, Local Health Care Services in East Östergötland, Department of Advanced Home Care in Norrköping.
Linköping University, Faculty of Medicine and Health Sciences. Linköping University, Department of Social and Welfare Studies, Division of Nursing Science.
Linköping University, Faculty of Medicine and Health Sciences. Linköping University, Department of Social and Welfare Studies, Division of Nursing Science. Region Östergötland, Local Health Care Services in East Östergötland, Center of Palliative Care.ORCID iD: 0000-0002-9606-3238
2016 (English)In: PLoS ONE, ISSN 1932-6203, E-ISSN 1932-6203, Vol. 11, no 2, e0147694- p., 26845149Article in journal (Refereed) Published
Abstract [en]

Background

Although stroke is a significant public health challenge and the need for palliative care has been emphasized for these patients, there is limited data on end-of-life care for patients dying from stroke.

Objective

To study the end-of-life care during the last week of life for patients who had died of stroke in terms of registered symptom, symptom management, and communication, in comparison with patients who had died of cancer.

Design

This study is a retrospective, comparative registry study.

Methods

A retrospective comparative registry study was performed using data from a Swedish national quality register for end-of-life care based on WHO`s definition of Palliative care. Data from 1626 patients who had died of stroke were compared with data from 1626 patients who had died of cancer. Binary logistic analyses were used to calculate odds ratios, with 95% CI.

Results

Compared to patients who was dying of cancer, the patients who was dying of stroke had a significantly higher prevalence of having death rattles registered, but a significantly lower prevalence of, nausea, confusion, dyspnea, anxiety, and pain. In addition, the stroke group had significantly lower odds ratios for health care staff not to know whether all these six symptoms were present or not. Patients who was dying of stroke had significantly lower odds ratio of having informative communication from a physician about the transition to end-of-life care and of their family members being offered bereavement follow-up.

Conclusions

The results indicate on differences in end-of-life care between patients dying of stroke and those dying from cancer. To improve the end-of-life care in clinical practice and ensure it has consistent quality, irrespective of diagnosis, education and implementation of palliative care principles are necessary.

Place, publisher, year, edition, pages
PUBLIC LIBRARY SCIENCE , 2016. Vol. 11, no 2, e0147694- p., 26845149
Keyword [en]
palliative care;stroke, end-of-life-care;
National Category
Nursing
Identifiers
URN: urn:nbn:se:liu:diva-125282DOI: 10.1371/journal.pone.0147694ISI: 000369552800013PubMedID: 26845149OAI: oai:DiVA.org:liu-125282DiVA: diva2:904580
Note

Funding agencies: Stroke Riksforbund [2012-00185]; Stahls stiftelse [4813101041]; Forss [479071]

Available from: 2016-02-19 Created: 2016-02-19 Last updated: 2017-11-30

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Eriksson, HeleneMilberg, AnnaHjelm, KatarinaFriedrichsen, Maria

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Eriksson, HeleneMilberg, AnnaHjelm, KatarinaFriedrichsen, Maria
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Faculty of Medicine and Health SciencesDivision of Nursing ScienceCenter of Palliative CareDepartment of Advanced Home Care in Norrköping
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