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Genetic counsellors in Sweden: their role and added value in the clinical setting.
Linköping University, Department of Clinical and Experimental Medicine, Division of Cell Biology. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Center for Diagnostics, Department of Clinical Pathology and Clinical Genetics.
CLINTECH, Obstretrics and Gynaecology, Karolinska Institute, Solna, Sweden.
Department of Applied Health Genetics, Plymouth University, Plymouth, UK.
2016 (English)In: European Journal of Human Genetics, ISSN 1018-4813, E-ISSN 1476-5438, Vol. 24, no 3, 350-355 p.Article in journal (Refereed) Published
Abstract [en]

Genetic testing is becoming more commonplace in general and specialist health care and should always be accompanied by genetic counselling, according to Swedish law. Genetic counsellors are members of the multi-disciplinary team providing genetic counselling. This study examined the role and added value of genetic counsellors in Sweden, using a cross-sectional on-line survey. The findings showed that the genetic counsellors added value in the clinical setting by acting as the 'spider-in-the-web' regarding case management, having a more holistic, ethical and psychological perspective, being able to offer continuous support and build a relationship with the patient, and being more accessible than medical geneticists. The main difference between a genetic counsellor and medical geneticist was that the doctor had the main medical responsibility. Thus genetic counsellors in Sweden contribute substantially to the care of patients in the clinical genetic setting.

Place, publisher, year, edition, pages
Nature Publishing Group, 2016. Vol. 24, no 3, 350-355 p.
National Category
Health Care Service and Management, Health Policy and Services and Health Economy Social and Clinical Pharmacy Nursing Ethics Other Medical Sciences not elsewhere specified
Identifiers
URN: urn:nbn:se:liu:diva-125896DOI: 10.1038/ejhg.2015.110ISI: 000370469500011PubMedID: 26014428OAI: oai:DiVA.org:liu-125896DiVA: diva2:909535
Note

Funding agencies:  Department of Clinical Pathology and Clinical Genetics; Department of Clinical and Experimental Medicine, Linkoping University, Linkoping, Sweden

Available from: 2016-03-07 Created: 2016-03-07 Last updated: 2016-03-15Bibliographically approved

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Pestoff, Rebecka
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Division of Cell BiologyFaculty of Medicine and Health SciencesDepartment of Clinical Pathology and Clinical Genetics
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European Journal of Human Genetics
Health Care Service and Management, Health Policy and Services and Health EconomySocial and Clinical PharmacyNursingEthicsOther Medical Sciences not elsewhere specified

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