liu.seSearch for publications in DiVA
Change search
ReferencesLink to record
Permanent link

Direct link
Grief and loss for patients before and after heart transplant
School of Social Work, Faculty of Community Services, Ryerson University, Toronto, Ontario, Canada.
School of Social Work, Faculty of Community Services, Ryerson University, Toronto, Ontario, Canada.
Division of Cardiology and Transplant, University Health Network, 585 University Avenue, Toronto, Ontario, Canada.
Linköping University, Department of Thematic Studies, The Department of Gender Studies. Linköping University, Faculty of Arts and Sciences.ORCID iD: 0000-0002-9360-0931
Show others and affiliations
2016 (English)In: Heart & Lung, ISSN 0147-9563, E-ISSN 1527-3288, Vol. 45, no 3, 193-198 p.Article in journal (Refereed) Published
Abstract [en]

Objectives

The purpose of the study was to examine the loss and grief experiences of patients waiting for and living with new hearts.

Background

There is much scholarship on loss and grief. Less attention has been paid to these issues in clinical transplantation, and even less on the patient experience.

Methods

Part of a qualitative inquiry oriented to the work of Merleau-Ponty, a secondary analysis was carried out on audiovisual data from interviews with thirty participants.

Results

Patients experience loss and three forms of grief. Pre-transplant patients waiting for transplant experience loss and anticipatory grief related to their own death and the future death of their donor. Transplanted patients experience long-lasting complicated grief with respect to the donor and disenfranchised grief which may not be sanctioned.

Conclusions

Loss as well as anticipatory, complicated and disenfranchised grief may have been inadvertently disregarded or downplayed. More research and attention is needed.

Place, publisher, year, edition, pages
Philadelphia, PA, USA: Mosby, Inc. , 2016. Vol. 45, no 3, 193-198 p.
Keyword [en]
Grief; Transplantation; Heart; Qualitative; Merleau-Ponty; Disenfranchised
National Category
Other Medical Sciences not elsewhere specified
Identifiers
URN: urn:nbn:se:liu:diva-126230DOI: 10.1016/j.hrtlng.2016.01.006ISI: 000375819900006PubMedID: 26897722OAI: oai:DiVA.org:liu-126230DiVA: diva2:913063
Note

Funding agencies: Faculty of Community Services at Ryerson University

Available from: 2016-03-18 Created: 2016-03-18 Last updated: 2016-06-10Bibliographically approved

Open Access in DiVA

No full text

Other links

Publisher's full textPubMed

Search in DiVA

By author/editor
Shildrick, Margrit
By organisation
The Department of Gender StudiesFaculty of Arts and Sciences
In the same journal
Heart & Lung
Other Medical Sciences not elsewhere specified

Search outside of DiVA

GoogleGoogle Scholar
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

Altmetric score

Total: 164 hits
ReferencesLink to record
Permanent link

Direct link