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Self-care among patients with Inflammatory Bowel Disease: An interview study
Linköping University, Department of Medical and Health Sciences, Division of Nursing Science. Linköping University, Faculty of Medicine and Health Sciences. County Council of Kalmar, Kalmar, Sweden.
Linköping University, Department of Medical and Health Sciences, Division of Nursing Science. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Local Health Care Services in West Östergötland, Research & Development Unit in Local Health Care.
Linköping University, Department of Clinical and Experimental Medicine, Division of Neuro and Inflammation Science. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Heart and Medicine Center, Department of Gastroentorology.
University of Pennsylvania, School of Nursing, Philadelphia, USA.
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2016 (English)In: Gastroenterology Nursing, ISSN 1042-895X, Vol. 39, no 2, 121-128 p.Article in journal (Refereed) Published
Abstract [en]

Inflammatory bowel disease (IBD) is a chronic disease of unknown etiology. The disease occurs early in life and the burden of symptoms is significant. Patients need to perform self-care to handle their symptoms, but knowledge about what kind of self-care patients do is limited and these individuals need to learn how to manage the symptoms that arise. The aim of this study was to explore self-care among patients with IBD. Twenty adult patients with IBD, 25-66 years of age, were interviewed. Data were analyzed by performing a qualitative content analysis. Four categories with 10 subcategories emerged from the analysis of the interviews. The self-care patients perform consists of symptom recognition (subcategories: physiological sensations and psychological sensations), handling of symptoms (subcategories: adapting the diet, using medical treatment, stress management, and using complementary alternative medicine), planning life (subcategories: planning for when to do activities and when to refrain from activities), and seeking new options (subcategories: seeking knowledge and personal contacts). Self-care consists of symptom recognition, handling life through planning, and accommodating the existing situation with the ultimate goal of maintaining well-being. Being one step ahead facilitates living with IBD. A decision to actively participate in care of a chronic illness is a prerequisite for self-care. Healthcare professionals must consider patients' potential for and desire for self-care when giving advice on self-care activities. Doing so may help people better cope with IBD.

Place, publisher, year, edition, pages
Lippincott Williams & Wilkins, 2016. Vol. 39, no 2, 121-128 p.
National Category
Nursing
Identifiers
URN: urn:nbn:se:liu:diva-126617DOI: 10.1097/SGA.0000000000000120ISI: 000377983500007PubMedID: 26166423OAI: oai:DiVA.org:liu-126617DiVA: diva2:915919
Note

Funding agencies: Medical Research Council of Southeast Sweden-FORSS; County Council of Kalmar; Florence Nightingale Foundation; Ruth and Richard Juhlins foundation

Available from: 2016-03-31 Created: 2016-03-31 Last updated: 2016-07-13Bibliographically approved

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Lovén Wickman, UlricaYngman Uhlin, PiaHjortswang, HenrikHollman Frisman, Gunilla
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Division of Nursing ScienceFaculty of Medicine and Health SciencesResearch & Development Unit in Local Health CareDivision of Neuro and Inflammation ScienceDepartment of GastroentorologyAnaesthetics, Operations and Specialty Surgery Center
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