liu.seSearch for publications in DiVA
Change search
ReferencesLink to record
Permanent link

Direct link
Patient-reported outcomes in the Swedish National Quality Registers
Linköping University, Department of Medical and Health Sciences. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Local Health Care Services in West Östergötland, Research & Development Unit in Local Health Care.
Linköping University, Department of Clinical and Experimental Medicine, Division of Clinical Sciences. Region Östergötland, Anaesthetics, Operations and Specialty Surgery Center, Department of Anaesthesiology and Intensive Care in Linköping. Linköping University, Faculty of Medicine and Health Sciences.
Linköping University, Department of Medical and Health Sciences, Division of Community Medicine. Linköping University, Faculty of Medicine and Health Sciences.
2016 (English)In: Journal of Internal Medicine, ISSN 0954-6820, E-ISSN 1365-2796, Vol. 279, no 2, 141-153 p.Article, review/survey (Refereed) PublishedText
Abstract [en]

Patient-reported outcomes (PROs) are important in the healthcare system to gain understanding of patients views on the effects of a treatment. There is an abundance of available patient-reported outcome measures (PROMs), both disease specific and generic. In the Swedish healthcare system, the national quality registers are obliged to incorporate PROs for certification at a high level. A review of the latest annual applications for funding (n = 108) shows that at present, 93 national quality registers include some form of PROM or patient-reported experience measure (PREM). Half of the registers include some type of generic measure, more than half include disease/symptom-specific measures, and around 40% include PREMs. Several different measures and combinations of measures are used, the most common of which are the EQ-5D, followed by the SF-36/RAND-36. About one-fifth of the registers report examples of how patient-reported data are used for local quality improvement. These examples include enhancing shared decision-making in clinical encounters (most common), as a basis for care plans, clinical decision aids and treatment guidelines, to improve the precision of indications for surgery (patient and healthcare professional assessments may differ), to monitor complications after the patient has left hospital and to improve patient information. In addition, funding applications reveal that most registers plan to extend their array of PROMs and PREMs in future, and to increase their use of patient-reported data as a basis for quality improvement.

Place, publisher, year, edition, pages
WILEY-BLACKWELL , 2016. Vol. 279, no 2, 141-153 p.
Keyword [en]
health-related quality of life; PREM; PROM; quality improvement; quality register
National Category
Clinical Medicine Basic Medicine
Identifiers
URN: urn:nbn:se:liu:diva-126847DOI: 10.1111/joim.12409ISI: 000371617500003PubMedID: 26306802OAI: oai:DiVA.org:liu-126847DiVA: diva2:917176
Note

Funding Agencies|Quality Register Center Stockholm; PROMcenter; Swedish Intensive Care Register; Executive Committee for the National Quality Registers

Available from: 2016-04-05 Created: 2016-04-05 Last updated: 2016-04-05

Open Access in DiVA

No full text

Other links

Publisher's full textPubMed

Search in DiVA

By author/editor
Nilsson, E.Orwelius, LottiKristenson, Margareta
By organisation
Department of Medical and Health SciencesFaculty of Medicine and Health SciencesResearch & Development Unit in Local Health CareDivision of Clinical SciencesDepartment of Anaesthesiology and Intensive Care in LinköpingDivision of Community Medicine
In the same journal
Journal of Internal Medicine
Clinical MedicineBasic Medicine

Search outside of DiVA

GoogleGoogle Scholar
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

Altmetric score

Total: 110 hits
ReferencesLink to record
Permanent link

Direct link