To protect and to support: How citizenship and self-determination are legally constructed and managed in practice for people living with dementia in Sweden
2016 (English)In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 15, no 3, 343-357 p.Article in journal (Refereed) PublishedText
Since living with dementia implies increasing difficulties in taking charge of rights due to cognitive as well as communicative impairments, many people with dementia are vulnerable and in need of support in order to realize full citizenship. In Sweden, all adults right to self-determination is strongly emphasized in law, regulations, and policies. Further, and in contrast to the situation in many other countries, people living with dementia cannot be declared as incompetent of making decisions concerning social care and their right to self-determination cannot legally be taken away. The article shows that in the Swedish welfare system, the focus is more on protecting the self-determination of citizens than on supporting people in making decisions and exercising citizenship. Subsequently, this causes legally constructed zones of inclusion and exclusion. This article examines and problematizes how different institutional contexts, legal constructions, norms, and practices in Sweden affect the management of issues concerning guardianship, supported decision-making and self-determination, and outline the implications for people living with dementia.
Place, publisher, year, edition, pages
SAGE PUBLICATIONS LTD , 2016. Vol. 15, no 3, 343-357 p.
Citizenship; self-determination; decision-making capacity; legal representative; Sweden
Gerontology, specializing in Medical and Health Sciences
IdentifiersURN: urn:nbn:se:liu:diva-129170DOI: 10.1177/1471301216638966ISI: 000376264100006PubMedID: 27170586OAI: oai:DiVA.org:liu-129170DiVA: diva2:936018
Funding Agencies|FORTE: Swedish Research Council for Health, Working Life and Welfare as part of the project Democracy, Autonomy and Justice Citizenship Practice for People with Dementia [2014-0921]; bank of Sweden Tercentenary Foundation as part of the programme Dementia: Agency, Personhood and Everyday Life Grant [M10-0187:1]2016-06-132016-06-132016-07-07