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  • 1.
    Jirotka, Marina
    et al.
    Oxford University Computing Laboratory, Oxford, UK.
    Procter, Rob
    School of Informatics, University of Edinburgh, Edinburgh, UK.
    Hartswood, Mark
    School of Informatics, University of Edinburgh, Edinburgh, UK.
    Slack, Roger
    School of Informatics, University of Edinburgh, Edinburgh, UK.
    Simpson, Andrew
    Oxford University Computing Laboratory, Oxford, UK.
    Coopmans, Catelijne
    Tanaka Business School, Imperial College, London, UK.
    Hinds, Chris
    Oxford University Computing Laboratory, Oxford, UK.
    Voss, Alex
    School of Informatics, University of Edinburgh, Edinburgh, UK.
    Collaboration and trust in healthcare innovation: The eDiaMoND case study2005In: Computer Supported Cooperative Work, ISSN 0925-9724, E-ISSN 1573-7551, Vol. 14, no 4, p. 369-398Article in journal (Refereed)
    Abstract [en]

    This paper presents findings from an investigation into requirements for collaboration in e-Science in the context of eDiaMoND, a Grid-enabled prototype system intended in part to support breast cancer screening. Detailed studies based on ethnographic fieldwork reveal the importance of accountability and visibility of work for trust and for the various forms of ‘practical ethical action’ in which clinicians are seen to routinely engage in this setting. We discuss the implications of our findings, specifically for the prospect of using distributed screening to make more effective use of scarce clinical skills and, more generally, for realising the Grid’s potential for sharing data within and across institutions. Understanding how to afford trust and to provide adequate support for ethical concerns relating to the handling of sensitive data is a particular challenge for e-Health systems and for e-Science in general. Future e-Health and e-Science systems will need to be compatible with the ways in which trust is achieved, and practical ethical actions are realised and embedded within work practices.

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