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  • 1.
    Appelin, G
    et al.
    Jönköping.
    Berterö, Carina
    Linköpings universitet, Hälsouniversitetet. Linköpings universitet, Institutionen för medicin och vård, Omvårdnad.
    Patients' experiences of palliative care in the home. A phenomenological study of a Swedish sample.2004Inngår i: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, s. 65-70Artikkel i tidsskrift (Fagfellevurdert)
  • 2.
    Arman, Maria
    et al.
    Omvårdnad Inst för Omv / Karolinska Institutet.
    Backman, Marie
    Pedagogisk enhet Röda Korsets Högskola Stockholm.
    Carlsson, Marianne
    Vårdvetenskap Uppsala Universitet.
    Hamrin, Elisabeth
    Linköpings universitet, Hälsouniversitetet. Linköpings universitet, Institutionen för medicin och vård, Klinisk farmakologi.
    Women's perceptions and beliefs about the genesis of their breast cancer2006Inngår i: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 29, nr 2, s. 142-148Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    A person's belief is seen as a set of assumptions, depending on perceptions, and formed with the influence of experiences and social culture. With the aim of understanding the beliefs about the genesis of their illness, 118 (59 + 59) women with different stages of breast cancer were interviewed. Half of the sample had chosen complementary care in an anthroposophical hospital, and the other half was a matched group. Qualitative content analysis was used. Three themes emerged: (1) belief in a link to life lived (71%), (2) heredity as the sole genesis (4%), and (3) rejection of the question (25%). Under beliefs in a link to life lived, external aspects to the patient's own life (eg, diet and lifestyle) were cited, as well as inner aspects such as psychosocial problems and stress. The findings show that women are well informed about medical facts, although their beliefs reveal a holistic approach. The women's beliefs, where inner psychosocial factors are uppermost, point to a reverse of the causal ranking of medical advisors. The difference between the groups was that the matching sample was more likely to reject the influence of possible causes from life lived. In a caring perspective, women's perceptions of the genesis of their illness are in some cases turned to creative health activities that may increase well-being. © 2006 Lippincott Williams & Wilkins, Inc.

  • 3.
    Arman, Maria
    et al.
    Åbo akademi Vasa.
    Rehnsfeldt, Arne
    Karlskrona.
    Lindholm, Lisbet
    Åbo Akademi Vasa.
    Hamrin, Elisabeth
    Linköpings universitet, Hälsouniversitetet. Linköpings universitet, Institutionen för medicin och vård, Klinisk farmakologi.
    The face of suffering among women with breast cancer - being in a field of forces2002Inngår i: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 25, s. 96-103Artikkel i tidsskrift (Fagfellevurdert)
  • 4.
    Berg Doukkali, Eva
    et al.
    Karolinska Institute, Sweden .
    Winterling, Jeanette
    Karolinska Institute, Sweden .
    Eriksson, Lars E.
    Karolinska Institute, Sweden .
    Lampic, Claudia
    Karolinska Institute, Sweden .
    Silvén Hagström, Anneli
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, Socialt arbete. Linköpings universitet, Filosofiska fakulteten.
    Wettergren, Lena
    Karolinska Institute, Sweden .
    Adolescents and Young Adults Experiences of Childhood Cancer: Descriptions of Daily Life 5 Years After Diagnosis2013Inngår i: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 36, nr 5, s. 400-407Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Background: less thanbrgreater than less thanbrgreater thanSurvivors of childhood cancer are a growing population in society. These young people have a high risk of developing chronic health problems with a potential strong impact on their lives. How a childhood cancer experience affects survivors in adolescence has been studied to a limited extent; an increased understanding of this young group is needed to improve follow-up care. less thanbrgreater than less thanbrgreater thanObjective: less thanbrgreater than less thanbrgreater thanThe aim of this study was to gain a deeper understanding of how childhood cancer affects the lives of survivors by exploring adolescents and young adults views of what it is like living with this experience. less thanbrgreater than less thanbrgreater thanMethods: less thanbrgreater than less thanbrgreater thanFifty-nine 11- to 22-year-olds were interviewed a median of 5 years after a cancer diagnosis (response rate, 66%). Data were collected through telephone interviews and were analyzed using qualitative content analysis techniques. less thanbrgreater than less thanbrgreater thanResults: less thanbrgreater than less thanbrgreater thanThree groups of informants were identified according to their descriptions of the influence of cancer treatment on their daily life: feeling like anyone else (informants who described that the cancer experience had almost no influence on current life) (49%), feeling almost like others (those who described some influence) (44%), and feeling different (those describing a great influence on current life) (7%). less thanbrgreater than less thanbrgreater thanConclusions: less thanbrgreater than less thanbrgreater thanMost of the adolescents and young adults appear to get along well, although many informants described that life was affected to some extent by having had cancer. less thanbrgreater than less thanbrgreater thanImplications for Practice: less thanbrgreater than less thanbrgreater thanFollow-up care is needed that can identify those young survivors of childhood cancer having trouble with daily life and offer them support to strengthen their resources in managing difficulties in relation to having had cancer.

  • 5.
    Berterö, Carina
    et al.
    Linköpings universitet, Hälsouniversitetet. Linköpings universitet, Institutionen för medicin och hälsa, Omvårdnad.
    Chamberlain, Wilmoth M.
    Chamberlain Wilmoth, M., School of Nursing, College of Health and Human Services, UNC Charlotte, Charlotte, NC, United States.
    Breast cancer diagnosis and its treatment affecting the self: A meta-synthesis2007Inngår i: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 30, nr 3, s. 194-202Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    There has been a great deal of qualitative research conducted that has examined the impact of breast cancer on the Self, however, there has been little effort to analyze these findings from a meta-perspective. This study sought to fill this gap by conducting a meta-synthesis of the qualitative research on breast cancer and its treatments affecting the Self. Meta-method and meta-synthesis techniques were used to integrate findings across 30 qualitative research reports conducted between 1990 and 2003 with a total of 795 women, from several different countries.The fusions identified from this meta-synthesis revealed 4 aspects of the Self affected by the diagnosis of breast cancer and its treatment: awareness of their own mortality, living with an uncertain certainty, attachment validation, and redefinition of Self. These findings were validated through use of a comparison study. The women adapt to being a breast cancer patient, redefining their lives and their self. This study highlights the existential process that women of many cultures move through as they incorporate the meaning of breast cancer into their lives. Nurses who are aware of these processes are better able to link women with resources to help them in their adaptation to living with breast cancer. © 2007 Lippincott Williams & Wilkins, Inc.

  • 6.
    Börjeson, Sussanne
    et al.
    Linköpings universitet, Institutionen för medicin och hälsa, Omvårdnad. Linköpings universitet, Hälsouniversitetet. Östergötlands Läns Landsting, Centrum för kirurgi, ortopedi och cancervård, Onkologiska kliniken US.
    Hursti, T J
    Department of Psychology, Uppsala University, Uppsala, Sweden.
    Peterson, C
    Linköpings universitet, Institutionen för medicin och hälsa, Avdelningen för läkemedelsforskning. Linköpings universitet, Hälsouniversitetet. Department of Clinical Pharmacology, Karolinska Hospital, Stockholm, Sweden.
    Fredikson, M
    Department of Psychology, Uppsala University, Uppsala, Sweden.
    Fürst, C J
    Stockholms Sjukhem, Stockholm, Sweden.
    Avall-Lundqvist, E
    Linköpings universitet, Institutionen för klinisk och experimentell medicin, Avdelningen för kliniska vetenskaper. Linköpings universitet, Hälsouniversitetet. Dept. of Gynaecological Oncology, Karolinska Hospital, Stockholm, Sweden.
    Steineck, G
    Clinical Epidemiology, Department of Oncology, Karolinska Hospital, Stockholm, Sweden.
    Similarities and differences in assessing nausea on a verbal category scale and a visual analogue scale.1997Inngår i: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 20, nr 4, s. 260-266Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The use of verbal category scales in assessing patient symptoms is evolving, but the extent to which reliability and precision are lost in using them as opposed to a visual analogue scale (VAS) remains uncertain. The present study analyzed the concordance between a four-point verbal category scale and a VAS in assessing nausea intensity in patients undergoing chemotherapy. The analysis of a total of 348 simultaneous ratings by 104 women over four cycles revealed good concordance between the scales. The means of the VAS ratings (range 0-100 mm) corresponding to the four verbal categories divided the scale in four almost equally large parts (no nausea = 0.7, mild = 24.8, moderate = 48.3, severe = 75.1). However, the VAS ranges were wide. On an individual level a one-step change in the verbal category was associated with an average change of 20 mm on the VAS. The choice of scale to use should be based on the need in the particular situation. When measuring intensity of nausea in patients, the VAS is a reasonable choice due to its possibly greater ability to detect changes over time. On the group level, findings on a four-point category scale and a VAS on the average seem similar.

  • 7.
    Carlsson, Marianne
    et al.
    Uppsala.
    Arman, Maria
    Karlskrona.
    Backman, Marie
    Stockholm.
    Hamrin, Elisabeth
    Linköpings universitet, Hälsouniversitetet. Linköpings universitet, Institutionen för medicin och vård, Klinisk farmakologi. Östergötlands Läns Landsting, Laboratoriemedicinskt centrum, Klinisk farmakologi.
    Perceived quality of life and coping for Swedish women with breast cancer who choose complementary medicine.2001Inngår i: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 24, s. 395-401Artikkel i tidsskrift (Fagfellevurdert)
  • 8.
    da Costa vargens, Octavio
    et al.
    Rio de Janeiro.
    Berterö, Carina
    Linköpings universitet, Institutionen för medicin och hälsa, Avdelningen för omvårdnad. Linköpings universitet, Hälsouniversitetet.
    Living with breast cancer: Its effect on the life situation and the close relationship of women in Brazil2007Inngår i: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 30, nr 6, s. 471-478Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The diagnosis and treatment of breast cancer induces adverse effects. In this interpretive phenomenological study, 11 Brazilian women diagnosed and treated for breast cancer were interviewed. Data included audiotaped interviews where the women's lived experiences were articulated. Data were interpreted through Heidegger's existential phenomenology. Themes that were found were interrelated and presented the essential structure of the essence the women were living-living side by side with the phantom of death. The 4 themes that were interpreted and identified were as follows: gaining a positive attitude for life, wanting to be recognized as a woman with certain needs, considering body image/self-image, and making efforts to hide. The findings of the study point out the importance of the fact that illness elicits more than fitting the body into traditional community expectations or surrendering the body to professional medicine. Even with all the deep changes in their lives and changed life priorities, the women want to carry on and live the best life they could. To put this idea in the front line makes the difference for the transition of these women. © 2007 Lippincott Williams & Wilkins, Inc.

  • 9.
    Drott, Jenny
    et al.
    Linköpings universitet, Institutionen för medicin och hälsa, Avdelningen för omvårdnad. Linköpings universitet, Medicinska fakulteten. Region Östergötland, Centrum för kirurgi, ortopedi och cancervård, Kirurgiska kliniken US.
    Fomichov, Victoria
    Region Östergötland, Centrum för verksamhetsstöd och utveckling, Verksamhetsutveckling vård och hälsa.
    Starkhammar, Hans
    Linköpings universitet, Institutionen för klinisk och experimentell medicin, Avdelningen för Kirurgi, Ortopedi och Onkologi. Linköpings universitet, Medicinska fakulteten. Region Östergötland, Centrum för kirurgi, ortopedi och cancervård, Onkologiska kliniken US.
    Börjeson, Sussanne
    Linköpings universitet, Institutionen för medicin och hälsa, Avdelningen för omvårdnad. Linköpings universitet, Medicinska fakulteten. Region Östergötland, Centrum för kirurgi, ortopedi och cancervård, Onkologiska kliniken US.
    Kjellgren, Karin I.
    Linköpings universitet, Institutionen för medicin och hälsa, Avdelningen för omvårdnad. Linköpings universitet, Medicinska fakulteten.
    Berterö, Carina
    Linköpings universitet, Institutionen för medicin och hälsa, Avdelningen för omvårdnad. Linköpings universitet, Medicinska fakulteten.
    Oxaliplatin-Induced Neurotoxic Side Effects and Their Impact on Daily Activities2019Inngår i: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 42, nr 6, s. E40-E48Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Background: Oxaliplatin (OXA) is frequently used in the treatment of patients with colorectal cancer, and OXA-induced neurotoxic side effects are common. Reports on real-time patient-reported neurotoxic side effects and impact on the patient's daily activities are sparse in existing studies. Objective: The aim of this study was to identify and assess patient-reported OXA-induced neurotoxic side effects and their impact on the patient's daily activities, during and after chemotherapy. Methods: In a multicenter prospective longitudinal study, 46 chemo-naïve patients with colorectal cancer treated with postoperative adjuvant OXA-based chemotherapy were monitored during treatment and at 3-, 6-, 9-, and 12-month follow-ups. Patients were recruited from September 2013 to June 2016. In total, 370 Oxaliplatin-Associated Neurotoxicity Questionnaire responses were available for analysis. A mobile phone-based system was used to receive real-time assessments. Results: All patients reported neurotoxic side effects and impact on daily activities during treatment. The side effects changed in character and body location over time and had an impact on the daily activities. Conclusions: The high prevalence of OXA-induced neurotoxic side effects significantly interfered with the patients' daily activities. We found significant differences between baseline data and follow-up time points for neurotoxicity, and the patients had not returned to baseline after 1 year. Implications for Practice: The real-time assessment using mobile phone technology seems to be a valuable tool for monitoring patient-reported neurotoxicity and interventions for tailored care. Effectively identifying neurotoxicity and its impact on the patient's daily activities is important in supportive cancer care.

  • 10.
    Enskär, Karin
    et al.
    Hälsohögskolan Jönköping.
    Berterö, Carina
    Linköpings universitet, Institutionen för medicin och hälsa, Omvårdnad. Linköpings universitet, Hälsouniversitetet.
    Young adult survivors of childhood cancer; experiences affecting self-image, relationships and present life2010Inngår i: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 33, s. E18-E24Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Knowledge about how young adults experience being a childhood cancer survivor is limited, as most previous research concerning the quality of life in survivors of childhood cancer has been conducted using standardized questionnaires. The aim of the current study was to identify and describe young adults' own experiences of long-term effects of cancer treatment on their self-image, relationships, and present life related to the impact of being a survivor of childhood cancer. Interviews were held with 7 young adults, 20 to 23 years of age. The verbatim-transcribed interviews were analyzed using constant comparative analysis. The core category was identified as "compensated life picture." All the negative and difficult experiences are compensated for with a positive view on and positive expectations regarding life. This core category was grounded in 5 categories: living a normal life, bodily changes, relationships with and support from others nearby, sentient life, and personal growth. The findings in this study illustrate the importance for healthcare staff to be aware of young adult survivors' experiences of their childhood cancer and its long-term effects. Extra attention and support from the healthcare system after the concluded treatment period are needed via a support program or support group for young adults.

  • 11.
    Linderholm, Märit
    et al.
    Östergötlands Läns Landsting, Närsjukvården i östra Östergötland, Vårdcentraler i östra länsdelen.
    Friedrichsen, Maria
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, Hälsa, Aktivitet, Vård (HAV). Linköpings universitet, Hälsouniversitetet. Östergötlands Läns Landsting, Närsjukvården i östra Östergötland, Palliativt kompetenscentrum.
    A desire to be seen:: family caregivers' experiences of their caring role in palliative home care2010Inngår i: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 33, nr 1, s. 28-36Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Primary health care is the base of Swedish healthcare, and many terminally ill patients are cared for at home. A dying relative has a profound impact on his/her family members' situation, including negative effects on roles, well-being, and health. The aim of this study was to explore how the informal carers of a dying relative in palliative home care experienced their caring role and support during the patient's final illness and after death. Fourteen family members were selected in 4 primary health care areas in Sweden. Data were collected using open, tape-recorded interviews. A hermeneutic approach was used to analyze the data. The findings revealed that being an informal carer was natural when a relative became seriously ill. More or less voluntarily, the family member took on a caring role of control and responsibility. The informal carers felt left out and had feelings of powerlessness when they did not manage to establish a relationship with the healthcare professionals. For the informal carers to feel seen, it was necessary for them to narrate about their own supporting role.

  • 12.
    Lundgren, EL
    et al.
    Karolinska Inst, Dept Nursing, SE-17176 Stockholm, Sweden Karolinska Inst, Dept Publ Hlth Sci, Div Int Hlth, SE-17176 Stockholm, Sweden Karolinska Inst, Div Int Hlth, Dept Publ Hlth Sci, Stockholm, Sweden Linkoping Univ, Dept Commun Studies, Linkoping, Sweden Karolinska Hosp, Canc Screening Unit, Oncol Ctr, S-10401 Stockholm, Sweden.
    Tishelman, C
    Karolinska Inst, Dept Nursing, SE-17176 Stockholm, Sweden Karolinska Inst, Dept Publ Hlth Sci, Div Int Hlth, SE-17176 Stockholm, Sweden Karolinska Inst, Div Int Hlth, Dept Publ Hlth Sci, Stockholm, Sweden Linkoping Univ, Dept Commun Studies, Linkoping, Sweden Karolinska Hosp, Canc Screening Unit, Oncol Ctr, S-10401 Stockholm, Sweden.
    Widmark, C
    Karolinska Inst, Dept Nursing, SE-17176 Stockholm, Sweden Karolinska Inst, Dept Publ Hlth Sci, Div Int Hlth, SE-17176 Stockholm, Sweden Karolinska Inst, Div Int Hlth, Dept Publ Hlth Sci, Stockholm, Sweden Linkoping Univ, Dept Commun Studies, Linkoping, Sweden Karolinska Hosp, Canc Screening Unit, Oncol Ctr, S-10401 Stockholm, Sweden.
    Forss, A
    Karolinska Inst, Dept Nursing, SE-17176 Stockholm, Sweden Karolinska Inst, Dept Publ Hlth Sci, Div Int Hlth, SE-17176 Stockholm, Sweden Karolinska Inst, Div Int Hlth, Dept Publ Hlth Sci, Stockholm, Sweden Linkoping Univ, Dept Commun Studies, Linkoping, Sweden Karolinska Hosp, Canc Screening Unit, Oncol Ctr, S-10401 Stockholm, Sweden.
    Sachs, L
    Tornberg, S
    Karolinska Inst, Dept Nursing, SE-17176 Stockholm, Sweden Karolinska Inst, Dept Publ Hlth Sci, Div Int Hlth, SE-17176 Stockholm, Sweden Karolinska Inst, Div Int Hlth, Dept Publ Hlth Sci, Stockholm, Sweden Linkoping Univ, Dept Commun Studies, Linkoping, Sweden Karolinska Hosp, Canc Screening Unit, Oncol Ctr, S-10401 Stockholm, Sweden.
    Midwives' descriptions of their familiarity with cancer - A qualitative study of midwives working with population-based cervical cancer screening in urban Sweden2000Inngår i: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 23, nr 5, s. 392-400Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Nurse-midwives are responsible for taking Papanicolaou (Pap) smears in Swedish population-based cervical cancer screening programs. A research project examining the screening program from the perspective of different stakeholders includes an interview study of 21 midwives working in Stockholm. This article explores the way the midwives describe cancer-related knowledge and aspects of screening, contrasting this with relevant findings from a substudy of 66 healthy women participating in screening. A semistructured interview guide with open-ended questions was used to investigate ideas about benefits and risks in the screening program, risk factors for cervical cancer, the reliability of the test itself, sources of information/knowledge relevant for cervical cancer screening, and the manner in which the midwife described her role in the screening program. The transcripts of the audiotaped interviews were analyzed thematically using a team approach. The interviewed midwives showed a great deal of consensus in their descriptions of lacking familiarity with cervical cancer and its prevention and treatment. The midwives said they lack recent education and knowledge, often avoiding use of the word "cancer" with women attending screening. It seems that the midwives experienced little professional guidance in discussing cancer-related issues with women attending the screening program. In this study, they appeared to rely on personal knowledge, valves, and experience instead.

  • 13.
    Rydé, Kerstin
    et al.
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, Hälsa, Aktivitet, Vård (HAV). Linköpings universitet, Hälsouniversitetet.
    Strang, Peter
    Linköpings universitet, Institutionen för biomedicin och kirurgi. Linköpings universitet, Hälsouniversitetet.
    Friedrichsen, Maria
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, Hälsa, Aktivitet, Vård (HAV). Linköpings universitet, Hälsouniversitetet.
    Crying in solitude or with someone for support and consolation - experiences from family members in palliative home care2008Inngår i: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 31, nr 5, s. 345-353Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Crying has not been studied from the perspective of family members of patients in palliative care. The aim of this study was to explore the significance of family members crying in a palliative care context with special reference to factors that influence crying. Interviews were carried out with 14 family members of patients admitted to palliative care. A hermeneutic approach according to Gadamer was used. Three main categories emerged. (1) Before the start of crying, some prerequisites for crying had to be fulfilled, such as an allowing attitude and courage, time, feeling secure, honesty, and trusting relationships. These prerequisites did not cause crying themselves; rather crying emerged when triggering factors occurred. (2) Triggers for crying were circumstances that created uncertainty and turbulence (bad news), exhaustion due to lack of own time, and sympathy from others. (3) Family members tried to do the best possible by adopting or hiding their crying, to ease the patient's burden and to create a positive counterbalance to suffering and grief. As an interpretation of the whole, crying could be expressed as being shared with someone for support and consolation or escape to solitude for integrity and respite. As a conclusion, crying may be an efficient strategy for family members in palliative care to express their suffering and to gain new energy to continue.

  • 14.
    Sandén, Inger
    et al.
    Linköpings universitet, Institutionen för tema, Tema Kommunikation. Linköpings universitet, Filosofiska fakulteten.
    Sätterlund Larsson, Ullabeth
    Linköpings universitet, Institutionen för tema, Tema Kommunikation. Linköpings universitet, Filosofiska fakulteten.
    Eriksson, Charli
    National Institute of Public Health, Stockholm, Sweden.
    An interview study of men discovering testicular cancer2000Inngår i: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 23, nr 4, s. 304-309Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Testicular cancer affects men between 15 and 45 years old. The aim of this study was to show how men with testicular cancer discover their cancer, react to physical changes, and take action. In the follow-vp phase, 21 who had undergone surgery for testicular cancer were interviewed. The results show clearly that the men focus on their physical pain. The progress from the discovery of changes in the testicular glands to medical care can be divided into three phases. In the first phase, "something has happened," the men consider the changes and try to define the reasons. In the second phase, "facing the situation," they consider the situation and decide whether to talk to someone. In the third phase, "seeking medical help," it is a question of seeking help and being confronted by the medical diagnosis. In terms of time, the progression in the current study took from 1 day to 1 year. The men sought help when complications arose that made normal daily functions difficult. Six of the men suspected that the cause of their problems was cancer. Almost half of the participants in this study, including the six who suspected cancer, did not talk to anyone before they decided to seek medical help. The men who did talk to Other people did not seek medical help any more quickly than the other men. None of the men routinely inspected their bodies.

  • 15.
    Wideheim, Ann-Kristin
    et al.
    Örebro.
    Edvardsson, Tanja
    Örebro.
    Påhlsson, Anneli
    Örebro.
    Ahlström, Gerd
    Linköpings universitet, Hälsouniversitetet. Linköpings universitet, Institutionen för medicin och vård, Omvårdnad.
    A family's perspective on living with a highly malignant brain tumor2002Inngår i: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 25, nr 3, s. 236-244Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The purpose of the study is to describe what it like to live with a highly malignant brain tumor from a family perspective. It is a qualitative study in which 3 families, 3 patients, and 5 next of kin have described their experiences in 15 interviews. The study is prospective, with interviews occurring 2-3 weeks after surgery and 3 and 6 months after the onset of the illness. Inductive content analysis has been employed. The results indicate that when a highly malignant brain tumor is diagnosed, the effect on the family is devastating and there is a state of crisis. Characteristically, there is distancing and a sense of helplessness. The members of the family live from day to day in a state of constant anxiety and fear of losing the patient. The affliction limits the patient's capacity regarding activities of daily life, which increases the burden of the next of kin. The next of kin attempt to cope with their grief by occupying themselves with practical tasks and activities that they believe are meaningful. The family members have only good words to say about their encounter with healthcare staff and about the information given. Negative information that the family have not asked for can cause a long period of frustration and anxiety, and they believe that their hope has been taken away from them.

  • 16.
    Wikblad, Karin
    et al.
    Linköpings universitet, Hälsouniversitetet. Linköpings universitet, Institutionen för vård och välfärd, Sjuksköterskeprogrammet.
    Rudberg, L
    Carlsson, M
    Nilsson, S
    Self-perceived physical, psychologic, and general symptoms in survivors of testicular cancer 3 to 13 years after treatment2002Inngår i: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 25, nr 3, s. 187-195Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Due to the large group of patients with advanced testicular cancer now being cured, it is important to identify the men who are at risk of deteriorated health. The purposes of this study were: (1) to delineate and compare frequency of self-perceived physical, psychologic, and general symptoms in men treated for testicular cancer with those of a general population sample and (2) to compare self-perceived physical, psychologic, and general symptoms in relation to secondary Raynaud phenomena, sexual dysfunction, infertility, and self-perceived attractiveness in different treatment modalities. The subjects were 277 survivors of testicular cancer (M = 42.2 years) who had completed a self-reported questionnaire (75.5% response rate). A population survey comprising 392 men was used as a comparison group (M = 45 years). The result demonstrated that although survivors of testicular cancer as a group reported significantly less frequency of backache, leg pain, cough, and eye problems than did the general population sample, they described that they significantly more often felt cold. Men reporting secondary Raynaud phenomena, infertility, and/or feeling less attractive had experienced significantly more self-perceived symptoms. Oncologist nurses could play an important role in psychologic counseling for those men.

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