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  • 1.
    Abramsson, Marianne
    et al.
    Linköping University, Department of Social and Welfare Studies, Division Ageing and Social Change. Linköping University, Faculty of Arts and Sciences.
    Hyden, Lars-ChristerLinköping University, Department of Social and Welfare Studies, Division Ageing and Social Change. Linköping University, Faculty of Arts and Sciences.Motel-Klingebiel, AndreasLinköping University, Department of Social and Welfare Studies, Division Ageing and Social Change. Linköping University, Faculty of Arts and Sciences.
    Vem är den äldre? Äldrebilder i ett åldrande Sverige.2017Collection (editor) (Other academic)
  • 2.
    Bjorkman, Berit
    et al.
    Karolinska Institutet.
    Arner, Staffan
    Karolinska Institutet.
    Hyden , Lars-Christer
    Linköping University, Department of Medicine and Health Sciences, Health and Society. Linköping University, Faculty of Arts and Sciences.
    Phantom Breast and Other Syndromes After Mastectomy: Eight Breast Cancer Patients Describe Their Experiences Over Time2008In: Journal of Pain, ISSN 1526-5900, E-ISSN 1528-8447, Vol. 9, no 11, p. 1018-1025Article in journal (Refereed)
    Abstract [en]

    Patients often experience hard-to-treat neuropathic pain and other sensations after surgery; consequently, they could develop chronic pain conditions. The phantom limb phenomenon is a well-documented postoperative pain condition. However, phantom phenomena after mastectomies are less documented. The reviews report several views on the prevalence of breast phantoms and coexisting distress. Researchers observed that new methodological approaches might facilitate further research of these issues. This prospective, qualitative study used semistructured interviews to acquire knowledge of if and how phantom breast phenomena appear within the range of other postmastectomy symptoms and sensations. The study revealed that a phantom breast could be difficult to describe and position spatially. The phantom breast phenomenon varied from classic phantom extremity phenomenon and did not seem to cause much distress. However, it proved to be a phenomenon so unknown and different that there is urgent need for more knowledge. This study highlights the importance of further investigation regarding how information and communication related to a phantom breast might be developed.

    Perspective: The phantom breast is only one piece of a complicated puzzle. Because it was relatively unknown for the women in the study, it is important that analyses of this phenomenon, as a part of a postmastectomy syndrome, be conducted in a dialogue with the patients, by scientifically using qualitative methods.

  • 3.
    Björkman, Berit
    et al.
    Karolinska Institutet.
    Lund, Irene
    Karolinska Institutet.
    Anér, Staffan
    Karolinska Institutet.
    Hydén, Lars-Christer
    Linköping University, Department of Medical and Health Sciences, Health and Society. Linköping University, Faculty of Arts and Sciences.
    Adult limb and breast amputees' experience and descriptions of phantom phenomena: a qualitative study2010In: Scandinavian Journal of Pain, ISSN 1877-8860, E-ISSN 1877-8879, Vol. 1, no 1, p. 43-49Article in journal (Refereed)
    Abstract [en]

    Background

    Phantom phenomena – pain or other sensations appearing to come from amputated body parts – are frequent consequences of amputation and can cause considerable suffering. Also, stump pain, located in the residual limb, is in the literature often related to the phantom phenomena. The condition is not specific to amputated limbs and has, to a lesser extent, been reported to be present after radical surgery in other body parts such as breast, rectum and teeth.

    Multi-causal theories are used when trying to understand these phenomena, which are recognized as the result of complex interaction among various parts of the central nervous system confirmed in studies using functional brain imaging techniques.

    Functional brain imaging has yielded important results, but without certainty being related to phantom pain as a subjective clinical experience.

    There is a wide range of treatment methods for the condition but no documented treatment of choice.

    Aims

    In this study a qualitative, explorative and prospective design was selected, in the aim to understand the patients’ personal experience of phantom phenomena.

    The research questions focused at how patients affected by phantom pain and or phantom sensations describe, understand, and live with these phenomena in their daily life.

    This study expanded ‘phantom phenomena’ to also encompass phantom breast phenomenon. Since the latter phenomenon is not as well investigated as the phantom limb, there is clinical concern that this is an underestimated problem for women who have had breasts removed.

    Methods

    The present study forms the first part of a larger, longitudinal study. Only results associated with data from the first interviews with patients, one month after an amputation, are presented here. At this occasion, 28 patients who had undergone limb amputation (20) or mastectomy (8) were interviewed. The focused, semi-structured interviews were recorded, transcribed, and then analyzed using discourse-narrative analysis.

    Results

    The interviewees had no conceptual problems in talking about the phenomena or distinguishing between various types of discomfort and discomfort episodes. Their experience originated from a vivid, functioning body that had lost one of its parts. Further, the interviewees reported the importance of rehabilitation and advances in prosthetic technology. Loss of mobility struck older amputees as loss of social functioning, which distressed them more than it did younger amputees. Phantom sensations, kinetic and kinesthetic perceptions, constituted a greater problem than phantom pain experienced from the amputated body parts. The descriptions by patients who had had mastectomies differed from those by patients who had lost limbs in that the phantom breast could be difficult to describe and position spatially.

    The clinical implication of this study is that when phantom phenomena are described as everyday experience, they become a psychosocial reality that supplements the definition of phantom phenomena in scientific literature and clinical documentation.

    Conclusions

    There is a need for clinical dialogues with patients, which besides, providing necessary information about the phenomena to the patients creates possibilities for health professionals to carefully listen to the patients’ own descriptions of which functional losses or life changes patients fear the most. There is a need for more qualitative studies in order to capture the extreme complexity of the pain–control system will be highlighted.

  • 4.
    Björkman, Berit
    et al.
    Karolinska Institutet, Stockholm.
    Lund, Irene
    Karolinska Institutet, Stockholm.
    Anér, Staffan
    Karolinska Institutet, Stockholm.
    Hydén, Lars-Christer
    Linköping University, Department of Medical and Health Sciences, Health and Society. Linköping University, Faculty of Arts and Sciences.
    Phantom phenomena – Their perceived qualities and consequences from the patient’s perspective2012In: Scandinavian Journal of Pain, ISSN 1877-8860, E-ISSN 1877-8879, Vol. 3, no 3, p. 134-140Article in journal (Refereed)
    Abstract [en]

    Background and aim: The curious phenomenon phantom limbs early became the object of research, and its underlying mechanisms have been discussed over the years. The complex nature of phantom phenom- ena makes interpretation of the results ambiguous, regarding both prevalence and the accompanying suffering. There is a lack of knowledge about how amputees experience the meaning and consequences of phantom phenomena. The present aim, therefore, was to investigate how individuals, in an interview situation, described the qualities of possible perceived phantom phenomena, and how their experience affected their lives one month after the amputation/mastectomy.

    Methods: Twenty-eight women and men who had undergone a limb amputation or mastectomy were interviewed. The focused, narrative-oriented interviews were transcribed verbatim and the scripts were analysed with content analysis.Results: One month after the amputation the informants described and related their phantom pain and phantom sensations in sensory-discriminative, motivational-affective and cognitive-evaluative dimen- sions. The phantom sensations were experienced mainly as more agonizing than the phantom pain.

    Despite both the high intensity of and the high annoyance at the phantom pain and phantom sensations, a majority felt that the phantom phenomena were not a hindrance in their attempts to recapture ordinary life. But when the hindrance was evaluated as high, the annoyance was evaluated as the highest possible for both phenomena or for the phantom sensations alone, never for phantom pain alone. The interviewees’ reported attitudes of hindrance were also described and estimated in the light of their sociocultural circumstances. Thus, other preceding and/or co-existent pain conditions as well as factors such as pre- operative information, the respondents’ views on pain treatment, and their knowledge and understanding of phantom phenomena were mentioned and related to the pain-producing situation.

    Two-thirds of the interviewees had received post-surgical information and for some, the phenomena were well-known from earlier experience. A majority applied some version of the medical explanation model, irrespective of age or level of education. However neither information nor medical explanation, or both, sufficed for them to understand their own phantom phenomena. Thus, differences between the concepts explanation and understanding seemed significant for the annoyance related to the phantom phenomena.

    Regarding background data: (i) the majority of the interviewees had had pre-amputation pain prob- lems; (ii) the breast-cancer phantoms differed in several ways; (iii) there were some age and gender differences in the descriptions of hindrance.Conclusions and implications: These findings highlight the importance of observing the individual approach to the phenomena as a process of evaluation and selection. In addition, experience and under- standing of the phantoms also have sociocultural aspects. There follows the need for individualized communication and information from the clinician, and for incorporating a socioscientific and meaning- centred approach in future studies. The present insights could also be of value in other iatrogenic pain conditions. 

  • 5.
    Björkman, Berit
    et al.
    Department of Physiology and Pharmacology, Section of Anesthesiology and Intensive Care, Karolinska Institutet, Stockholm, Sweden.
    Lund, Iréne
    Department of Physiology and Pharmacology, Karolinska Institutet, Stockholm, Sweden.
    Arnér, Staffan
    Department of Physiology and Pharmacology, Section of Anesthesiology and Intensive Care, Karolinska Institutet, Stockholm, Sweden.
    Hyden, Lars-Christer
    Linköping University, Department of Medical and Health Sciences. Linköping University, Faculty of Medicine and Health Sciences.
    The meaning and consequences of amputation and mastectomy from the perspective of pain and suffering2017In: Scandinavian Journal of Pain, ISSN 1877-8860, E-ISSN 1877-8879, Vol. 14, no 1, p. 100-107Article in journal (Refereed)
    Abstract [en]

    Background

    The concepts ‘pain’ and ‘suffering’ are frequently treated as synonymous. However, they are clearly distinct phenomena. Phantom phenomena including pain and sensory disturbances are still recognized as long-lasting problems after limb amputation and after mastectomy. The complex nature of phantom phenomena makes the interpretation of its results ambiguous, regarding the prevalence of pain, sensory disturbances and the accompanying suffering. There is clinical experience that suffering is a great burden for the individual but there is a lack of systematic studies of patients’ own evaluations of the suffering caused by their phantom phenomena.

    Objectives

    The overall aim of this study was to identify and describe patients’ suffering related to, and as a part, of their post-amputation situation.

    Methods

    The present study constitutes a part of a prospective, two-year follow up project investigating interviews of 28 men and women in different ages and who have undergone a limb amputation or mastectomy. The reason for amputation or mastectomy varied among the patients and included vascular diseases, cancer (sarcoma and breast-cancer) and trauma. Our ambition was to extract as much variations as possible in different, individualized aspects of the actual pain and suffering producing situation. The participants were, here, invited to open-ended, narrative-oriented interviews one month after the surgery. The interviews were transcribed verbatim and analyzed within qualitative methodology: thematic content analysis.

    Results

    Twenty-two of 28 interviewees experienced phantom pain and phantom sensations. The two surgical processes amputation and mastectomy meant for a majority of the interviewees a critical event with threatening consequences for everyday life such as loss of function and personal integrity. Nine interviewees felt even stigmatized as a result of their lost body part. Numerous inter-related factors following the amputation/mastectomy, which can inflict severe suffering on the amputee, were uncovered. The context in which the interviewees were informed about the decision to amputate proved to be one such critical and important factor.

    Conclusion

    To understand potential suffering in relation to phantom phenomena, it will never be enough merely to have knowledge of the underlying physiological or neurological mechanisms and/or the intensity of phantom pain and phantom sensations. Rather, it is necessary to find out how the loss of the body part and its everyday consequences are experienced by patients.

    Implications

    It is important to create time for real dialogue with the patients both during pre-operative preparation and post-operative rehabilitation in order to clarify and verbalize elements that constitute the patients individual suffering. Hopefully this strategy can alleviate future chronic pain problems, severe psycho-social distress and suffering. Such an approach ought to have impact also for perceived suffering after other types of surgery or different invasive treatments.

  • 6.
    Brusén, Peter
    et al.
    Socialstyrelsen.
    Hydén, Lars-ChristerLinköping University, Faculty of Arts and Sciences. Linköping University, Department of Thematic Studies.
    Ett liv som andra: Livsvillkor för personer med funktionshinder2000Collection (editor) (Other academic)
    Abstract [sv]

    Denna bok belyser några centrala frågor i den handikappolitiska utvecklingen under de senaste åren. Vad var det som dolde sig bakom de goda intentionerna och strävan efter välfärd för personer med funktionshinder? Klienter och patienter är inte längre nöjda med enbart anonym planläggning utan vill själva bestämma över sina liv. Ett genomgående tema i boken är därför att lyfta fram och belysa handikappolitikens konsekvenser ur de funktionshindrade personernas eget perspektiv. Boken vill ge några bilder av funktionshindrade personers levnadsförhållanden och hur deras möte med den offentliga vården och omsorgen ser ut. Den visar på gränser och möjligheter i dagens handikappolitik och hur den i praktiken verkställs. Svensk handikappomsorg är bra men det finns också samtidigt en praktisk vardag som inte alltid stämmer med lagarnas bild av möjligheter och rättigheter. Bakgrunden till boken är främst handikappreformen från 1994, men även psykiatrireformen ett år senare. Boken är i första hand tänkt för undervisning inom högskolans sociala utbildningar och vårdutbildningar. Boken vänder sig också till verksamhetspersonal, handläggare och beslutsfattare, liksom till anhöriga och funktionshindrade personer. Mer information om våra bokserier och övriga böcker inom ämnesområdet finns på webbplatsen

  • 7.
    Bülow, Pia
    et al.
    Linköping University, The Tema Institute. Linköping University, Faculty of Arts and Sciences.
    Hydén, Lars-Christer
    Linköping University, The Tema Institute. Linköping University, Faculty of Arts and Sciences.
    In dialogue with time: Identity and illness in narratives about chronic fatigue2003In: Narrative Inquiry, ISSN 1387-6740, E-ISSN 1569-9935, Vol. 13, no 1, p. 71-97Article in journal (Refereed)
    Abstract [en]

    When we are stricken with an illness or some other affliction, the temporal frameworks that we take for granted in our everyday lives are overturned. Thus suffering and illnesses raise questions associated with temporality: were the past events necessary and unavoidable, could anything else have happened, and what will happen next? In this article we will discuss two intertwined problems that have to do with the organization of time in narratives about illness: the interviewee's attempt to create an interview narrative and the researcher's need to create a temporal order and coherence in the interview material properly founded in research. With a foothold in the literary scholars Morson's and Bernstein's theories about shadows of time we base our argument on an analysis of narratives given in interviews by people affected by Chronic Fatigue Syndrome (CFS). The analysis shows various ways time can be used as a discursive tool to temporalize illness and suffering including temporalities that frequently go outside linear time perceptions by the use of “sideshadowings“. These various ways of temporalizing illness influence, for instance, factors like issues of responsibility and freedom of action. Findings like these indicate the importance of including the interviewees' own temporalizations in the analysis of illness narratives in social science.

  • 8.
    Bülow, Pia
    et al.
    Linköping University, The Tema Institute.
    Hydén, Lars-Christer
    Linköping University, Faculty of Arts and Sciences. Linköping University, The Tema Institute.
    Patient school as a way of creating meaning in a contested illness: The case of CFS2003In: Health, ISSN 1363-4593, E-ISSN 1461-7196, Vol. 7, no 2, p. 227-249Article in journal (Refereed)
    Abstract [en]

    Creating meaning in a situation of contested illness like Chronic Fatigue Syndrome (CFS) is an interactive process. As an example of how meaning is created, a CFS patient school organized by a hospital clinic in Sweden is discussed. This school can be seen as both a school and a medically oriented activity. The presence of different frameworks provides an opportunity to use different perspectives to understand CFS. It makes it possible for the participating men and women to regard the illness both from the outside as a social object, from the inside through personal experiences and to put the diagnosis and suffering in a larger 'sickness' perspective. Consequently, a number of different interpretations are brought up and used to create meaning in a situation of illness. The patients/students are thus learning discursively to manage the illness at the same time as they examine different ways to interpret their experiences through this discursive activity.

  • 9.
    Carlsson, E
    et al.
    Sahlgrenska University Hospital, Gothenburg, Sweden.
    Pettersson, M
    University of Gothenburg, Sweden .
    Hydén, Lars-Christer
    Linköping University, Department of Medical and Health Sciences, Division of Health and Society. Linköping University, Faculty of Arts and Sciences. University of Gothenburg, Sweden .
    Öhlen, J
    University of Gothenburg, Sweden .
    Friberg, F
    University of Gothenburg, Sweden .
    Structure and content in consultations with patients undergoing surgery for colorectal cancer2013In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 17, no 6, p. 820-826Article in journal (Refereed)
    Abstract [en]

    PURPOSE:

    To explore the structure and content of pre-planned consultations as part of the care and treatment of patients undergoing surgery for colorectal cancer.

    METHODS:

    The study was based on 50 transcripts of audio-recorded pre-planned consultations between seven patients and 36 healthcare professionals from the time of diagnosis, pre-operative consultation, discharge consultation and pathology report in a colorectal unit.

    RESULTS:

    The spread of consultation time between professions was considerable. Total mean consultation time for patients during the care process (7 consultations/patient) was 111 min (range 83-191). The mean consultation time for surgeons was 18 min (7-40), anaesthesiologists 12 min (5-18) and nurses 14 min (5-49). Patients took up 40% of the word space, healthcare professionals used 59% and significant others 1%. Word space changed in such a way that the patient became more active towards the final consultation. Neither during the diagnosis consultation nor during the pre-operative consultation did the patients meet the operating surgeon. Six major subjects emerged: general health, diagnosis, surgical procedure, pre-operative preparations, recovery and treatment and follow-up.

    CONCLUSIONS:

    There is a need for clearer structure in the consultations. Most consultations lacked a clear introduction to the subject of the conversation. The study makes it possible to develop methods and structure for supporting conversations in which the patient is given space to help with the difficult issues present after undergoing surgery for colorectal cancer. The study also contributes to providing knowledge of how to organise surgical consultations in order to optimise person-centeredness, teamwork and clinical efficiency.

     

  • 10.
    Efraimsson, E.
    et al.
    School of Health Sciences, University College of Boras, Boras, Sweden, School of Health Sciences, University College of Boras, Allegatan 1, Boras, S-501 90, Sweden.
    Sandman, P.-O.
    Department of Nursing, Umea University, Umea, Sweden.
    Hydén, Lars-Christer
    Linköping University, Faculty of Arts and Sciences. Linköping University, Department of Medicine and Health Sciences, Health and Society.
    Holritz, Rasmussen B.
    Holritz Rasmussen, B., Department of Nursing, Umea University, Umea, Sweden.
    How to get one's voice heard: The problems of the discharge planning conference2006In: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 53, no 6, p. 646-655Article in journal (Refereed)
    Abstract [en]

    Aims. This paper reports a study describing how patients, relatives and healthcare professionals dealt with the variety of problems and responsibilities that occur in discharge planning conferences and especially how they managed to do this given the institutional frame that surrounded the meeting. Background. In Sweden, the aim of a discharge planning conference is to co-ordinate social and healthcare resources as patients are discharged from hospitals. Patients, relatives and hospital staff, along with healthcare professionals responsible for outpatient care, assemble to achieve an individual care plan. One of the explicit principles informing the discharge planning conference is to increase patients' influence on decision-making. However, research points at shortcomings in this respect. Method. A discourse analysis was conducted using transcriptions of eight video-recorded discharge planning conferences. The selected patients were eight older women expected to be discharged from hospital. Other participants were staff nurses, social workers and occasionally relatives, an occupational therapist, district nurse or home care aide. Findings. Participants adopted different roles as persons/patients, relative/next of kin and healthcare professionals/institutional representatives during the discharge planning conference, which they simultaneously struggled to act upon. The findings are presented under the categories 'ss14Clashing roles and perspectives' and 'ss18Facing the institutional frame'. Conclusions. The performance of the discharge planning conference in its present form interferes with a caring perspective that protects patients' integrity and gives prominence to their life worlds. Moreover, it does not satisfy patients' and relatives' right to expect proceedings that enhance their possibility to express their personal wishes in a dignified manner. © 2006 Blackwell Publishing Ltd.

  • 11.
    Efraimsson, E.
    et al.
    School of Health Sciences, University College of Borås, Borås, Sweden, Department of Nursing, Umeå University, Umeå, Sweden, School of Health Sciences, University College of Borås, Allégatan 1, S-501 90 Borås, Sweden.
    Sandman, P.O.
    Department of Nursing, Umeå University, Umeå, Sweden.
    Hydén, Lars-Christer
    Linköping University, Faculty of Arts and Sciences. Linköping University, Department of Medicine and Health Sciences, Health and Society.
    Rasmussen, B.H.
    Department of Nursing, Umeå University, Umeå, Sweden.
    Discharge planning: 'Fooling ourselves?' - Patient participation in conferences2004In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 13, no 5, p. 562-570Article in journal (Refereed)
    Abstract [en]

    Background. The aim of discharge planning conferences (DPCs) is to co-ordinate resources and to enhance patient involvement in care in connection with relocation from hospital. DPCs can be characterized as institutional conversations, and are often executed as standard procedures, but the scientific basis for the activity is weak. Aims and objectives. The aim of this study was to illuminate and describe the communication at DPCs. Design. A purposeful and consecutive sample of eight DPCs was collected in which the future care of eight women, aged 70 years or more, was discussed. Methods. Transcribed video recordings were analysed in two steps. 'The initial analysis' aimed at describing the structure and content of the communication. This description constituted the basis for an interpretation, leading to 'the focused analysis' aiming at finding evidence for the assumptions made in the interpretation. Results. The result revealed that the participation of patients was very less the DPCs. The decisions had often already been made, and the women were expected to be pleased with the decision, institutional representatives (IRs) frequently justified their actions by referring to bureaucratic praxis. Conclusions. The women were both encouraged and excluded from participation by the IRs. This dichotomy occurred because the IRs, as professionals, struggled to simultaneously realize their caring mission and their obligation to enforce the values and rules of the institution, i.e. efficiency and rationality. Thus, IRs and patients were equally imprisoned within the institutional system. Relevance to clinical research. This result illustrates how conflicting paradigms are imbedded and reproduced by healthcare professionals in their communicative praxis. Awareness of this is a prerequisite for improvements in working procedures congruent with a caring paradigm that support patient participation.

  • 12.
    Gunnarsson, Nina
    et al.
    Jönköping University, Sweden.
    Hemmingsson, Helena
    Linköping University, Department of Social and Welfare Studies, Division of Health, Activity and Care. Linköping University, Faculty of Health Sciences.
    Hydén, Lars-Christer
    Linköping University, Department of Medical and Health Sciences, Health and Society. Linköping University, Faculty of Health Sciences.
    Mothers’ accounts of healthcare encounters: Negotiating culpability and fulfilling the active mother role2013In: Discourse & Society, ISSN 0957-9265, E-ISSN 1460-3624, Vol. 24, no 4, p. 1-15Article in journal (Refereed)
    Abstract [en]

    This article explores mothers’ accounts of initial interactions and encounters with healthcare professionals and the outcomes where questions about their children’s problems are concerned. A case-based storyline was reconstructed as part of the analysis, focusing on

    when and how mothers claimed to be responsible parents. The outcomes of these encounters were presented by the mothers in this study as a drawn-out process, with disagreement between mothers and healthcare providers, resulting in different performances of moral agency. Some mothers portrayed themselves as dependent on healthcare expertise and made moral claims by attributing and deflecting blame, negotiating back and forth about their own and the healthcare professionals’ culpability, restoring moral agency. Other mothers did not generally defend or justify their actions or place blame, but appealed instead to fulfilment of the active mother role where they controlled the interaction and claimed full responsibility for their child’s care, hence presenting their moral agency as indisputable.

  • 13.
    Gunnarsson, Nina
    et al.
    Karolinska Institutet, Stockholm.
    Hydén , Lars-Christer
    Linköping University, Department of Medicine and Health Sciences, Health and Society. Linköping University, Faculty of Arts and Sciences.
    Organizing allergy and being a good parent: parents narratives about their childrens emerging problems2009In: Health, ISSN 1363-4593, E-ISSN 1461-7196, Vol. 13, no 2, p. 157-174Article in journal (Refereed)
    Abstract [en]

    The article focuses on the early and problem-solving phases of the childs illness trajectory and on how child allergies are constructed and organized by the parents in a moral everyday context. The parents narratives were reconstructed as narratives, describing the pathways parents take before they decide to seek professional medical aid as well as showing how they construct themselves as responsible parents. Before consulting health professionals the parents have often tried a range of different ways to define, control and manage their childrens various problems. Allergy problems were interpreted and responded to differently, depending on the way they emerged in everyday life. Acute reactions quickly led to an illness definition and a diagnosis. Gradual and diffuse problems were not so easily defined. They were at first interpreted and responded to as normal infant problems, but, through the parents readiness and various situational and temporal clues, they were organized as symptoms of illness. Parents seek medical aid when their own strategies fail or do not fully work, but their decisions are also formed within a pre-problem context of their moral accountability as parents.

  • 14.
    Hallqvist, Anders
    et al.
    Linköping University, Department of Behavioural Sciences and Learning, Education and Sociology. Linköping University, Faculty of Arts and Sciences. Linköping University, HELIX Vinn Excellence Centre. Linköping University, Department of Behavioural Sciences and Learning, Work and Working Life.
    Ellström, Per-Erik
    Linköping University, Department of Behavioural Sciences and Learning, Education and Sociology. Linköping University, Faculty of Arts and Sciences.
    Hydén, Lars-Christer
    Linköping University, Department of Medical and Health Sciences, Health and Society. Linköping University, Faculty of Arts and Sciences.
    The many faces of biographical learning2012In: Studies in the Education of Adults, ISSN 0266-0830, E-ISSN 1478-9833, Vol. 44, no 1, p. 70-84Article in journal (Refereed)
    Abstract [en]

    Our aim in this article is to look for more diversity within the concept of biographical leaning. As a conceptual tool for investigating learning in life transitions, biographical learning has gained some recognition over recent years. The concept centres on people’s abilities and possibilities to cope with change in a rapidly changing environment. As transitions have become more common, ‘learning processes within transition’ has become an important area for educational research. The development of the concept of biographical learning is related to this trend, since biographical learning processes appear to be more explicitly triggered when a person’s life course is changing and people are faced with transitions in it. In this article, biographical learning will be discussed in relation to research on restructuring, job loss and enforced work transitions. The article will suggest that such transitions may be understood in terms of biographical learning, acknowledging that learning in work transitions is not only about ensuring one’s ‘professional competence’ or ‘employability’ but includes identity issues and decision-making that affect one’s biography.

    Alheit and Dausien portray biographical learning as a certain perspective on lifelong learning, suggesting a ‘shift in analytic perspective’ and a departure from the policy-focused view in which lifelong learning is framed by political and economic precepts. Acknowledging the inner tensions between the ‘instrumentalist’ and ‘emancipative’ power of lifelong learning, the authors place some confidence in the latter, calling for an outlook in which the learning individual ‘is taken more seriously’. There are empirical reasons for such a preference. Although traditional lifeworlds are eroding, people’s responses are not inevitably a ‘panic’ reaction. Instead, people cope with changes rather creatively by using different action strategies that affect both their own biography and the social world in which they live.

    The concept of biographical learning is regarded as useful in this context, firstly because it takes account both of social structures and of the individual’s subjectivity. Hence, it recognizes people’s sense of being able to control their own lives interacting with biographical and structural conditions. Even though life chances are unequally distributed and agency is always ‘bounded’, when people face transitions decisions must be made and actions taken that are affected by and affect their biography. Secondly, biographical learning could be considered valuable because its scope is wider than predominant lifelong learning policies and because its aim extends beyond instrumental skills and ‘employability’. Thirdly, biographical learning can be regarded as helpful because it includes not only formal and organized aspects of learning, but also ‘cognitive and reflexive dimensions of learning as much as the emotional, embodied, pre-reflexive and non-cognitive aspects of everyday learning processes and practices’.

    However, further investigations of the concept are called for, as pointed out by Alheit and Dausien. One possible development concerns challenging its somewhat uniform character. While Alheit has identified three current ‘biographical coping patterns’ (‘patchworking’, ‘networking’ and ‘designing’; Alheit, 1999, p. 75), further analysis will probably reveal new insights and perhaps lead to a more complex description of what biographical learning is. It seems reasonable to assume, for example, that there might be differences between more continuous and more disruptive versions of biographical learning. In order to encompass a wider spectrum of approaches, the aim of this paper is to analyse, explore and expand the notion of biographical learning and to suggest a number of different modes of such learning.

  • 15.
    Hallqvist, Anders
    et al.
    Linköping University, Department of Behavioural Sciences and Learning, Education and Adult Learning. Linköping University, Faculty of Educational Sciences. Linköping University, HELIX Vinn Excellence Centre. Linköping University, Faculty of Arts and Sciences.
    Hydén, Lars-Christer
    Linköping University, Department of Social and Welfare Studies, NISAL - National Institute for the Study of Ageing and Later Life. Linköping University, Faculty of Arts and Sciences.
    End of journey, end of story? A longitudinal study of involuntary work transitions among laid-off workers2014In: Studies in Continuing Education, ISSN 0158-037X, E-ISSN 1470-126X, Vol. 36, no 2, p. 201-217Article in journal (Refereed)
    Abstract [en]

    The purpose of this study is to increase knowledge regarding involuntary work transitions among laid-off workers. It is part of an ongoing cooperation with two outplacement agencies enrolling white-collar workers. The particular arrangements, which are based on collective agreements, include relatively generous support, both economically and regarding the educational and counselling arrangements offered. A narrative research approach is used and the analysis is based on interviews with 15 people, conducted on two occasions with about a year in between. Conceptualizing the transition as a biographical learning process, the findings point out a great variety within and between cases. While the basic distinction is drawn between people who have changed their status and those who have not, a number of rhetorical varieties are identified, pointing to different modes of biographical learning. The originality of the paper lies in its narrative approach and the particular conceptual framework showing that biographical learning is a vital part of enforced work transitions.

  • 16.
    Hallqvist, Anders
    et al.
    Linköping University, Department of Behavioural Sciences and Learning, Education and Sociology. Linköping University, Faculty of Arts and Sciences. Linköping University, HELIX Vinn Excellence Centre. Linköping University, Department of Behavioural Sciences and Learning, Work and Working Life.
    Hydén, Lars-Christer
    Linköping University, Department of Medical and Health Sciences, Health and Society. Linköping University, Faculty of Arts and Sciences.
    Learning in occupational transitions: a study of the process following job loss2012In: Work: A Journal of Prevention, Assessment and Rehabilitation, ISSN 1051-9815, Vol. 43, no 3, p. 331-343Article in journal (Refereed)
    Abstract [en]

    Objective: This article examines how workers supported by outplacement services engage with an occupational transition through problem solving and learning.

    Participants: The participants were 23 mid-life redundant white collar workers with at least eight years in their sector, organization or occupation. The selected interviewees either participated in training to broaden their professional competence or did not make any such ‘expansive’ efforts.

    Methods: The study was based on narrative interviews, which enabled a detailed cross case examination of individuals’ actions and choices and how the process unfolds over time.

    Results: The results showed that people treat their job loss as a practical problem to be solved using various strategies. This problemsolving process is structured, with people passing similar crossroads defining particular challenges and opportunities giving people limited sets of choices.

    Conclusion: The results point to the significance of creativity and learning in occupational transitions.

  • 17.
    Hallqvist, Anders
    et al.
    Linköping University, Department of Behavioural Sciences and Learning, Education and Sociology. Linköping University, HELIX Vinn Excellence Centre. Linköping University, Department of Behavioural Sciences and Learning, Work and Working Life. Linköping University, Faculty of Educational Sciences.
    Hydén, Lars-Christer
    Linköping University, Department of Medical and Health Sciences, Health and Society. Linköping University, Faculty of Arts and Sciences.
    Work transitions as told: a narrative approach to biographical learning2013In: Studies in Continuing Education, ISSN 0158-037X, E-ISSN 1470-126X, Vol. 35, no 1, p. 1-16Article in journal (Refereed)
    Abstract [en]

    In this article, we introduce a narrative approach to biographical learning; that is, an approach that considers autobiographical storytelling as a practice through which claims about life history are performed and negotiated. Using insights from narrative theory, we highlight evaluations in those narratives and suggest their crucial role in promoting self-reflective thought. The research area is unemployment, more specifically, work transitions following company restructuring and redundancy supported by outplacement services. Recognizing the learning potential in autobiographical storytelling, the article examines job-loss narratives told by people made redundant. The analysis focuses on strategies used in moments of evaluation. Our findings point to a variety of rhetorical strategies, different kinds of reflexivity and, in turn, variation in the potential for biographical learning.

  • 18.
    Harding, Andrew J. E.
    et al.
    Univ Lancaster, England.
    Morbey, Hazel
    Univ Lancaster, England.
    Ahmed, Faraz
    Univ Lancaster, England.
    Opdebeeck, Carol
    Manchester Metropolitan Univ, England.
    Wang, Ying-Ying
    Univ Lancaster, England.
    Williamson, Paula
    Univ Liverpool, England.
    Swarbrick, Caroline
    Univ Manchester, England.
    Leroi, Iracema
    Univ Manchester, England.
    Challis, David
    Univ Manchester, England.
    Davies, Linda
    Univ Manchester, England.
    Reeves, David
    Univ Manchester, England.
    Holland, Fiona
    Univ Manchester, England.
    Hann, Mark
    Univ Manchester, England.
    Hellström, Ingrid
    Linköping University, Department of Social and Welfare Studies, Division of Nursing Science. Linköping University, Faculty of Medicine and Health Sciences.
    Hydén, Lars-Christer
    Linköping University, Department of Social and Welfare Studies, Division Ageing and Social Change. Linköping University, Faculty of Arts and Sciences.
    Burns, Alistair
    Univ Manchester, England.
    Keady, John
    Univ Manchester, England; Greater Manchester Mental Hlth NHS Fdn Trust, England.
    Reilly, Siobhan
    Univ Lancaster, England.
    Developing a core outcome set for people living with dementia at home in their neighbourhoods and communities: study protocol for use in the evaluation of non-pharmacological community-based health and social care interventions2018In: Trials, ISSN 1745-6215, E-ISSN 1745-6215, Vol. 19, article id 247Article in journal (Refereed)
    Abstract [en]

    Background: The key aim of the study is to establish an agreed standardised core outcome set (COS) for use when evaluating non-pharmacological health and social care interventions for people living at home with dementia. Methods/design: Drawing on the guidance and approaches of the Core Outcome Measures in Effectiveness Trials (COMET), this study uses a four-phase mixed-methods design: 1 Focus groups and interviews with key stakeholder groups (people living with dementia, care partners, relevant health and social care professionals, researchers and policymakers) and a review of the literature will be undertaken to build a long list of outcomes. 2 Two rounds of Delphi surveys will be used with key stakeholder groups. Statements for the Delphi surveys and participation processes will be developed and informed through substantial member involvement with people living with dementia and care partners. A consensus meeting will be convened with key participant groups to discuss the key findings and finalise the COS. 3 A systematic literature review will be undertaken to assess the properties of tools and instruments to assess components of the COS. Measurement properties, validity and reliability will be assessed using the Consensus-based Standards for the Selection of Health Measurement (COSMIN) and COMET guidance. 4 A stated preference survey will elicit the preferences of key stakeholders for the outcomes identified as important to measure in the COS. Discussion: To the best of our knowledge, this study is the first to use a modified Delphi process to involve people living with dementia as a participant group. Though the study is confined to collecting data in the United Kingdom, use of the COS by researchers will enhance the comparability of studies evaluating non-pharmacological and community-based interventions.

  • 19.
    Hellström, Ingrid
    et al.
    Linköping University, Department of Social and Welfare Studies, Division of Health, Activity and Care. Linköping University, Faculty of Medicine and Health Sciences.
    Hydén, Lars-ChristerLinköping University, NISAL - National Institute for the Study of Ageing and Later Life. Linköping University, Department of Social and Welfare Studies. Linköping University, Faculty of Arts and Sciences.
    Att leva med demens2016Collection (editor) (Other academic)
    Abstract [sv]

    För att personer med demenssjukdom ska kunna leva ett fullgott liv behövs mer kunskap. I grunden handlar det om att förändra föreställningar och attityder till personer som lever med en demenssjukdom så att personerna själva, deras anhöriga och personal inom hälso- och sjukvården och politiker, kan se nya möjligheter i stället för enbart förluster. I den här boken presenteras kunskap och forskning som sätter personer med demenssjukdom i centrum. Boken utgår alltså inte i första hand från vården eller anhöriga, utan från dem som lever med sjukdomen. På så sätt skapas en tankeram som ger stöd vid både utvecklingsarbete och reflektion bland människor som på olika sätt arbetar med och för personer med demenssjukdom.

    Cirka 110 000 och 170 000 svenskar har i dag en demenssjukdom. Om ett tiotal år är det betydligt fler: ökad livslängd och en större medvetenhet om demenssjukdomar gör att allt fler personer får en diagnos tidigt i förloppet. Som en konsekvens av detta kommer alltfler personer att leva med en demenssjukdom under lång tid, och ofta i hemmet. Detta innebär inte bara en utmaning för vård, omsorg och socialpolitik, utan väcker också frågor som berör såväl personer med demens, som anhöriga och andra i det sociala nätverket: Hur kan personer med demens leva och fungera i sitt hem tillsammans med eventuella familjemedlemmar? Hur kan de fungera som medborgare och delta i samhällslivet, ha makt över sitt eget vardagsliv och fatta egna beslut om sitt eget liv?

    I boken medverkar forskare från Centrum för demensforskning (CEDER) vid Linköpings universitet. Den innehåller många pedagogiska exempel och riktar sig till utbildningar inom vård, omvårdnad, socialt arbete och omsorg.

  • 20.
    Henriksen, Oystein
    et al.
    University of Nordland, Norway.
    Hydén, Lars-Christer
    Linköping University, Department of Social and Welfare Studies, NISAL - National Institute for the Study of Ageing and Later Life. Linköping University, Faculty of Arts and Sciences.
    Communicating parent community at prevention meetings in Norwegian schools2016In: Qualitative Social Work, ISSN 1473-3250, E-ISSN 1741-3117, Vol. 15, no 1, p. 55-69Article in journal (Refereed)
    Abstract [en]

    Parental cooperation has increasingly become a key component in alcohol prevention efforts in schools. Many prevention programs actively utilize parent participation in order to strengthen the sense of community between parents, develop shared attitudes toward alcohol use, delay the beginning of alcohol use for adolescents, and limit alcohol usage by young people. Strengthening community is thus a core goal in prevention activities. This article analyses how community is developed and expressed in discussions during formal school meetings involving parents. The data used in the analysis consists of audio recordings of parent meetings in alcohol prevention programs for eighth-grade students at four separate schools in different regions of Norway. The analysis focuses on how personal pronouns are used in the conversations to signal inclusion or exclusion from the community. The article also discusses how different discursive expressions of community are used by meeting participants to position themselves as responsible parents, and the relevance of these meetings for social work.

  • 21.
    Hyden, Lars- Christer
    Linköping University, Department of Medical and Health Sciences, Health and Society. Linköping University, Faculty of Arts and Sciences.
    The Importance of Providing Scaffolding to Support Patient Narratives When Brain Damage Impairs Storytelling Ability2011In: TOPICS IN STROKE REHABILITATION, ISSN 1074-9357, Vol. 18, no 1, p. 52-54Article in journal (Refereed)
    Abstract [en]

    Boundaries connected to illness are defined and redefined through new ways of interacting with other people and especially by storytelling and listening to the stories of others. Diseases or traumas that affect the brain can result in memory loss, impaired cognition, and difficulties in expressing oneself clearly, hence making it difficult to present and negotiate identities. In such situations, others often try to remediate the communicative problems by taking over those narrative functions that are lost or impaired and thereby scaffolding the injured persons storytelling capacity. This narrative scaffolding is directed at keeping interpersonal relationships functional and makes it possible for persons with communicative disabilities to continue to be participants in a shared life.

  • 22.
    Hydén, Lars-Christer
    Linköping University, Department of Medical and Health Sciences, Health and Society. Linköping University, Faculty of Arts and Sciences.
    Ansikten i möte2012In: Människans ansikten: Känslor, karaktärer och karikatyrer / [ed] Viveka Adelswärd och Per-Aanders Forstorp, Stockholm: Carlsson Bokförlag, 2012, p. 107-123Chapter in book (Other academic)
    Abstract [sv]

    "There will be time, there will be time, To prepare a face to meet the faces that you meet", lyder några rader ur T. S. Eliots dikt The Love Song of J. Alfred Prufrock. Människans ansikte är komplext och mångtydigt. Det uttrycker våra känslor och reaktioner, medvetet eller omedvetet. När vi ser en annan människas ansikte läser vi  eller tror oss läsa  hennes sinnesstämning och karaktär, hennes tankar och intentioner. Samtidigt är vi medvetna om att andra läser våra ansikten. Ett intrikat samspel mellan genuint och spelat, medvetet och omedvetet, pågår.

    I denna antologi presenterar sju forskare i åtta bidrag en del av den mångfacetterade forskning som finns kring hur människan tolkar ansikten, såväl naturliga som animerade och skulpterade. Vi kan bland annat läsa om datoranimerade ansikten och deras användningsområden; om ansiktet i mänskliga möten, hur människor gestaltar och reglerar sitt samspel i ansikte-mot-ansikte-situationer; om karikatyren och ansiktet som skämt. Bidragen kommer från ett brett mångvetenskapligt fält och vill ge underlag för diskussioner om ansiktets kraft, dess implikationer och innebörder. En tankeväckande och användbar bok, både för forskare och allmänhet. Boken innehåller intressanta bilder av konstnärer som Gert Germeraad, Mark Gilbert och Lovisa Ringborg.

  • 23.
    Hydén, Lars-Christer
    Linköping University, Faculty of Arts and Sciences. Linköping University, Department of Thematic Studies.
    Arminen, Ilkka: Therapeutic Interaction. A Study of Mutual Help in the Meetings of Alcoholics Anonymous.2000In: Nordic Studies on Alcohol and Drugs, ISSN 1455-0725, E-ISSN 1458-6126, Vol. 17, no English Supplement, p. 107-110Article in journal (Other academic)
  • 24.
    Hydén, Lars-Christer
    Linköping University, Faculty of Arts and Sciences. Linköping University, The Tema Institute.
    Att analysera berättelser i forskningsintervjuer2008In: Narrativa metoder i socialt arbete / [ed] Sam Larsson, Yvonne Sjöblom & John Lilja, Lund: Studentlitteratur , 2008, 1, p. 111-132Chapter in book (Other academic)
    Abstract [sv]

    Denna antologi ger en bred introduktion till hur man kan använda berättelsemetoder inom forskning med fokus på olika typer av psykosociala problemområden. Teoretiska perspektiv presenteras liksom empiriska exempel på vad en narrativ strategi kan innebära vid forskning inom samhällsvetenskap och socialt arbete. Författarna diskuterar bland annat följande frågor:- Vad menas med en berättelse?- Hur kan man förstå och analysera berättelser inom det sociala fältet?- Hur kan man rent konkret använda berättelser i forskning inom socialt arbete? Boken innehåller också en diskussion om evaluerings- och bedömningskriterier inom narrativ forskning. Narrativa metoder i socialt arbete vänder sig främst till universitets- och högskolestudenter vid socionomutbildningar samt yrkesverksamma socialarbetare, psykologer och vårdpersonal som ska genomföra mindre undersökningar.

  • 25.
    Hydén, Lars-Christer
    Linköping University, Faculty of Arts and Sciences. Linköping University, The Tema Institute.
    Att bemöta och bemötas2001In: Utan fast punkt. Om förvaltning, kunskap, språk och etik i socialt arbete, Stockholm: Socialstyrelsen , 2001, p. 48-63Chapter in book (Other (popular science, discussion, etc.))
  • 26.
    Hydén, Lars-Christer
    Linköping University, Faculty of Arts and Sciences. Linköping University, Department of Thematic Studies.
    Att känna igen sig själv i den moderna världen2003In: På väg mot en kommunikativ demokrati? :: sexton humanister om makten, medierna och medborgarkompetensen / [ed] Martin Kylhammar och Jean-François Battail, Stockholm: Carlssons , 2003, 1, p. 331-354Chapter in book (Other academic)
    Abstract [sv]

    På väg mot en kommunikativ demokrati?" tar 16 tänkande humanister till orda om det moderna, demokratiska samhällets grundläggande frågor: allas delaktighet och upplysta förståelse. Men att förena dessa demokratins drömmar är inte alltid så enkelt. Därför är humanisternas perspektiv nog så riktigt. I dag handlar mycket i det västerländska livet om kommunikation. Det gör också denna bok, som därtill sätter kommunikation i relation till makt, till bildning och medborgarskap, till mediernas samhällsroll, liksom till identitet och existens. "Makt skall vila på kommunikativ tillit, på samtal, diskussion, offentlighet.. skriver Kylhammar/Battail inledningsvis och fortsätter : "Makt skall vila på upplysning, vetande, insikt och reflektion; på det bästa argumentet och det rationella skälet". Boken är strukturerad i fyra avdelningar: Kommunikation, kunskap och makt; Medierna och det offentliga samtalet; Bildning och medborgarskap samt Identitet och existens.. L14

  • 27.
    Hydén, Lars-Christer
    Linköping University, Faculty of Arts and Sciences. Linköping University, The Tema Institute.
    Att leva ett eget liv: normalisering i den nya psykiatrin2000In: Ett liv som andra : livsvillkor för personer med funktionshinder / [ed] Peter Brusén, Lars-Christer Hydén, Lund: Studentlitteratur , 2000, p. 157-181Chapter in book (Other academic)
    Abstract [sv]

      

  • 28.
    Hydén, Lars-Christer
    Linköping University, Department of Social and Welfare Studies, NISAL - National Institute for the Study of Ageing and Later Life. Linköping University, Faculty of Arts and Sciences.
    Att leva med demenssjukdom2016In: Att leva med demens / [ed] Ingrid Hellström, Lars-Christer Hydén, Malmö: Gleerups Utbildning AB, 2016, 1, p. 17-39Chapter in book (Other academic)
  • 29.
    Hydén, Lars-Christer
    Linköping University, Faculty of Arts and Sciences. Linköping University, The Tema Institute.
    Att samtala om socialbidrag2000In: Socialbidrag i forskning och praktik / [ed] Annika Puide, Stockholm: GothiaCentrum för utvärdering av socialt arbete , 2000, 1, p. 224-243Chapter in book (Other academic)
    Abstract [sv]

    En antologi om socialbidrag. Boken behandlar olika delar av socialbidragsarbetet: Fattigvårdens historia och den moderna sociallagstiftningens framväxt; Vilka är de som får socialbidrag och får t.ex. ungdomar och invandrare mer än andra?; Hur ser socialbidraget ut i andra länder, en jämförelse mellan Sverige och EU; Hur lyckas man aktivera arbetslösa socialbidragstagare?; Har socialbyråns organisering någon betydelse för vilka som får socialbidrag?; Skuldproblem och ekonomisk rådgivning. Det finns inte mycket skrivet om socialbidrag och boken fyller därför ett viktigt tomrum. Den har tillkommit på initiativ av CUS (Centrum för utvärdering av socialt arbete).

  • 30.
    Hydén, Lars-Christer
    Linköping University, Department of Social and Welfare Studies, NISAL - National Institute for the Study of Ageing and Later Life. Linköping University, Faculty of Arts and Sciences.
    Bakom ansiktet2011In: Diagnos & identitet / [ed] Georg Drakos, Lars-Christer Hydén och Forsberg, Jonas, Stockholm: Gothia Förlag AB, 2011, 1, p. 184-205Chapter in book (Other academic)
  • 31.
    Hydén, Lars-Christer
    Linköping University, Faculty of Arts and Sciences. Linköping University, The Tema Institute.
    Bekännelsen skapade individens inre rum2000In: Svenska dagbladet, ISSN 1101-2412, Vol. 2000-10-22Article in journal (Other (popular science, discussion, etc.))
  • 32.
    Hydén, Lars-Christer
    Linköping University, Faculty of Arts and Sciences. Linköping University, The Tema Institute.
    Berättelseforskning2008In: Forskningsmetodik för socialvetare / [ed] Anna Meeuwisse, Hans Swärd, Rosmari Eliasson-Lappalainen, Katarina Jacobsson, Stockholm: Natur och Kultur , 2008, 1, p. 89-104Chapter in book (Other academic)
    Abstract [sv]

    Vilka är de särskilda utmaningarna och problemen i socialvetenskaplig forskning? Vilka perspektiv och redskap kan användas då man forskar om sociala problem, människobehandlande organisationer, omsorgsrelationer eller om det sociala arbetets praktik? Boken Forskningsmetodik för socialvetare är tänkt att fungera som vägvisare till olika perspektiv och sätt att arbeta inom det socialvetenskapliga fältet. Den behandlar forskningstraditioner som fallstudier, vardagslivsforskning, biografi-, berättelse- och emotionsforskning. Det ges även exempel på olika typer av material som kan användas i kunskapssökandet: akt-, vinjett- och internetforskning. Boken behandlar också interventions- och utvärderingsforskning, komparativ välfärdsforskning och den idag högst aktuella frågan om evidensbasering. Ett avslutande kapitel ägnas åt etiska dilemman och överväganden. Antologin är en orienterande kursbok och avsedd som ett konkret metodologiskt stöd för studerande på såväl grundnivå som avancerad nivå. Anna Meeuwisse är professor i socialt arbete vid Malmö högskola. Hans Swärd är professor i socialt arbete vid Lunds universitet, där också Rosmari Eliasson-Lappalainen, professor emerita, och Katarina Jacobsson, universitetslektor, är verksamma. Antologins 21 medverkande författare representerar ett flertal institutioner för socialt arbete, sociologi och andra socialvetenskapliga ämnen. Samtliga är forskare och har aktivt bidragit till utvecklingen av sina forskningsområden.

  • 33.
    Hydén, Lars-Christer
    Linköping University, Faculty of Arts and Sciences. Linköping University, The Tema Institute.
    Berättelser och mot-berättelser om psykiskt lidande2005In: Från psykiskt sjuk till psykiskt funktionshindrad / [ed] Lars-Christer Hydén, Lund: Studentlitteratur , 2005, 1, p. 217-226Chapter in book (Other academic)
    Abstract [sv]

    Från psykiskt sjuk till psykiskt funktionshindrad belyser de förändrin gar som ägt rum inom den svenska psykiatrin sedan början av 1990-talet , med speciell tyngdpunkt på psykiatrireformen 1994 och dess konsekven ser. Denna reform har bland annat lett till att den kommunala socialtj änsten fått ett allt större ansvar för omsorgen om personer med långva riga och svåra psykiska funktionshinder. Teman som lyfts fram är försk jutningen från begreppet ?psykisk sjukdom? till ?psykiskt funktionshin der?, vår kunskap kring psykiska funktionshinder och hur drabbade pers oner hanterar dessa i sin vardag. Vidare diskuteras de nya roller som anhöriga och frivilligorganisationer fått efter avvecklingen av de gam la mentalsjukhusen; de krav på delaktighet och inflytande över det egn a livet som psykiskt funktionshindrade ställer, något som också föränd rar villkoren för dem som arbetar med dessa frågor. Boken vänder sig s peciellt till personer som utbildar sig inom vård och omsorg

  • 34.
    Hydén, Lars-Christer
    Linköping University, Department of Medical and Health Sciences, Division of Health and Society. Linköping University, Faculty of Arts and Sciences.
    Bodies, embodiment and stories2013In: Doing Narrative Research / [ed] Molly Andrews, Corinne Squire, Maria Tamboukou, London: Sage Publications, 2013, 2, p. 126-141Chapter in book (Other academic)
    Abstract [en]

    Written by an international team of experts in the field, the second edition of this popular text considers both the theoretical underpinnings and practical applications of narrative research. The authors take the reader from initial decisions about forms of narrative research, through more complex issues of reflexivity, interpretation and the research context. Existing chapters have been updated to reflect changes in the literature and new chapters from eminent narrative scholars in Europe, Australia and the United States have been added on a variety of topics including narratives and embodiment, visual narratives, narratives and storyworlds, new media narratives and Deleuzian perspectives in narrative research. 

  • 35.
    Hydén, Lars-Christer
    Linköping University, The Tema Institute. Linköping University, Faculty of Arts and Sciences.
    Body and Soul. Psyche and Soma as Cultural and Narrative Resources1998In: Identities in Pain / [ed] Jonas Frykman, Nadia Seremetakis & Susanne Ewert, Lund: Nordic Academic Press , 1998, p. 29-53Chapter in book (Other academic)
  • 36.
    Hydén, Lars-Christer
    Linköping University, Faculty of Arts and Sciences. Linköping University, The Tema Institute.
    Broken and Vicarious Voices in Narratives2008In: Health, Culture and Illness: Broken Narratives / [ed] Lars-Christer Hydén and Jens Brockmeier, New York: Routledge , 2008, p. 36-53Chapter in book (Other academic)
    Abstract [en]

    This collection of essays examines the interrelations between illness, disability, health, society, and culture. The contributors examine how "narratives" have emerged and been utilized within these areas to help those who have experienced d injury, disability, dementia, pain, grief, or psychological trauma to express their stories. Encompassing clinical case studies, ethnographic field studies and autobiographical case studies, Health, Illness and Culture offers a broad overview and critical analysis of the present state of "illness narratives" within the fields of health and social welfare.

  • 37.
    Hydén, Lars-Christer
    Linköping University, Faculty of Arts and Sciences. Linköping University, The Tema Institute.
    Care utilization and the incidence of suicide. Suicide victims' contacts with primary health care and psychiatry in six psychiatric districts in the County of Stockholm from 1979 to 1990hy1997In: Acta Psychiatrica Scandinavica, ISSN 0001-690X, E-ISSN 1600-0447, Vol. 93, p. 442-446Article in journal (Refereed)
  • 38.
    Hydén, Lars-Christer
    Linköping University, Department of Medical and Health Sciences, Division of Health and Society. Linköping University, Faculty of Arts and Sciences.
    Cutting Brussels sprouts: Collaboration involving persons with dementia2014In: Journal of Aging Studies, ISSN 0890-4065, E-ISSN 1879-193X, Vol. 29, p. 115-123Article in journal (Refereed)
    Abstract [en]

    How people with dementia collaborate with other people is an area in need of more research and conceptualizations. Collaboration introduces a number of new possibilities and demands concerning cognitive and linguistic abilities and it is suggested that a theoretical framework that emphasize that cognitive resources are not exclusively individual, but are part of cognitive and communicative context. In this article focus is on joint activities and their collaborative organization is analyzed using an example involving persons with dementia working together with staff preparing a meal. The analysis shows that persons with dementia are able to collaborate in fairly advanced activities if they are supported in such a way that they can make use of the cognitive and linguistic resources of others, in particular cognitive functions having to do with planning and execution of actions. The organization of artifacts like kitchen tools can function as an external memory support. The results support a theoretical framework that help to understand what people can do together rather than focus on individual abilities. The results also indicate that is possible to learn how to organize collaboration involving persons with dementia by understanding how other persons abilities as well as artifacts can be used as external resources for support of cognitive and linguistic abilities. 

  • 39.
    Hydén, Lars-Christer
    Linköping University, The Tema Institute. Linköping University, Faculty of Arts and Sciences.
    Den "nya" psykiatrin - från sjukdom till handikapp1998In: Nya kulturer i psykiatrin / [ed] Stefan Sjöström, Lund: Studentlitteratur , 1998, p. 15-30Chapter in book (Other academic)
  • 40.
    Hydén, Lars-Christer
    Linköping University, Faculty of Arts and Sciences. Linköping University, The Tema Institute.
    Ensamhet eller tvåsamhet: om social dekontextualisering och kontextualisering2001In: Utbildning och Demokrati, ISSN 1102-6472, E-ISSN 2001-7316, Vol. 10, p. 11-26Article in journal (Refereed)
  • 41.
    Hydén, Lars-Christer
    Linköping University, Faculty of Arts and Sciences. Linköping University, The Tema Institute.
    Goffmans ansikte2002In: Jagen och rösterna: Goffman, Viveka och samtalet, Linköping: Tema Kommunikation, Linköpings universitet , 2002, p. 49-61Chapter in book (Other (popular science, discussion, etc.))
  • 42.
    Hydén, Lars-Christer
    Linköping University, Faculty of Arts and Sciences. Linköping University, The Tema Institute.
    Hemmet mitt emellan1997In: Hemmet i vården - vården i hemmet, Stockholm: Liber , 1997, p. 65-82Chapter in book (Other academic)
  • 43.
    Hydén, Lars-Christer
    Linköping University, Department of Medical and Health Sciences, Division of Health and Society. Linköping University, Faculty of Health Sciences.
    How to do things with others: joint activities involving persons with Alzheimer's disease2014In: Beyond loss: dementia, identity, personhood / [ed] Lars-Christer Hydén, Hilde Lindemann, Jens Brockmeier, New York: Oxford University Press, 2014, 1, p. 137-154Chapter in book (Refereed)
  • 44.
    Hydén, Lars-Christer
    Linköping University, Department of Medical and Health Sciences, Health and Society. Linköping University, Faculty of Arts and Sciences.
    Identity, Self, Narrative2010In: Beyond Narrative Coherence / [ed] Hyvärinen, M. Hyden, L.C. Saarenheimo, M. Tamboukou, M., John Benjamins Publishing Company, 2010, 1, p. 33-48Chapter in book (Other academic)
    Abstract [en]

    Beyond Narrative Coherence" reconsiders the way we understand and work with narratives. Even though narrators tend to strive for coherence, they also add complexity, challenge canonical scripts, and survey lives by telling highly perplexing and contradictory stories. Many narratives remain incomplete, ambiguous, and contradictory. Obvious coherence cannot be the sole moral standard, the only perspective of reading, or the criterion for selecting and discarding research material. "Beyond Narrative Coherence" addresses the limits and aspects of narrative (dis)cohering by offering a rich theoretical and historical background to the debate. Limits of narrative coherence are discussed from the perspective of three fields of life that often threaten the coherence of narrative: illness, arts, and traumatic political experience. The authors of the book cover a wide range of disciplines such as psychology, sociology, arts studies, political science and philosophy.

  • 45.
    Hydén, Lars-Christer
    Linköping University, Faculty of Arts and Sciences. Linköping University, The Tema Institute.
    Illness and narrative1997In: Sociology, ISSN 0038-0385, E-ISSN 1469-8684, Vol. 19, p. 48-69Article in journal (Refereed)
  • 46.
    Hydén, Lars-Christer
    Linköping University, Faculty of Arts and Sciences. Linköping University, The Tema Institute.
    Illness narratives2007In: Blackwell Encyclopedia of Sociology: Vol. I, A-B / [ed] George Ritzer, Cambridge: Blackwell , 2007, p. 2246-2248Chapter in book (Other academic)
    Abstract [en]

    The Blackwell Encyclopedia of Sociology is published in both print and online. Arranged across eleven volumes in A-Z format, it is the definitive reference source for students, researchers, and academics in the field. This ground-breaking project brings together specially commissioned entries written and edited by an international team of the world's best scholars and teachers. It provides: * Clear, concise, expert definitions and explanations of the key concepts * An essential reference for expert and newcomer alike, with entries ranging from short definitions of key terms to extended explorations of major topics * Materials that have historically defined the discipline, but also more recent developments, significantly updating the store of sociological knowledge * Introductions to sociological theories and research that have developed outside of the United States and Western Europe * Sophisticated cross-referencing and search facilities * Timeline, lexicon by subject area, bibliography, and index For further details on advisory editors and contributors together with a list of entries, go online to the Encyclopedia website: www.sociologyencyclopedia.com

  • 47.
    Hydén, Lars-Christer
    Linköping University, Faculty of Arts and Sciences. Linköping University, The Tema Institute.
    Inledning2000In: Ett liv som andra : livsvillkor för personer med funktionshinder / [ed] Peter Brusén, Lars-Christer Hydén, Lund: Studentlitteratur , 2000, p. 11-27Chapter in book (Other academic)
  • 48.
    Hydén, Lars-Christer
    Linköping University, Faculty of Arts and Sciences. Linköping University, The Tema Institute.
    Inledning2005In: Från psykiskt sjuk till psykiskt funktionshindrad / [ed] Lars-Christer Hydén, Lund: Studentlitteratur , 2005, 1, p. -229Chapter in book (Other academic)
    Abstract [sv]

    Från psykiskt sjuk till psykiskt funktionshindrad belyser de förändrin gar som ägt rum inom den svenska psykiatrin sedan början av 1990-talet , med speciell tyngdpunkt på psykiatrireformen 1994 och dess konsekven ser. Denna reform har bland annat lett till att den kommunala socialtj änsten fått ett allt större ansvar för omsorgen om personer med långva riga och svåra psykiska funktionshinder. Teman som lyfts fram är försk jutningen från begreppet ?psykisk sjukdom? till ?psykiskt funktionshin der?, vår kunskap kring psykiska funktionshinder och hur drabbade pers oner hanterar dessa i sin vardag. Vidare diskuteras de nya roller som anhöriga och frivilligorganisationer fått efter avvecklingen av de gam la mentalsjukhusen; de krav på delaktighet och inflytande över det egn a livet som psykiskt funktionshindrade ställer, något som också föränd rar villkoren för dem som arbetar med dessa frågor. Boken vänder sig s peciellt till personer som utbildar sig inom vård och omsorg

  • 49.
    Hydén, Lars-Christer
    Linköping University, Faculty of Arts and Sciences. Linköping University, The Tema Institute.
    Intersubjektivitetens elementära former: Erkännandets fragilitet2000In: Creative Crossroads - Electronic Honorary Publication Dedicated to Yvonne Wærn on Her Retirement, Linköping: Tema Kommunikation, Linköpings universitet , 2000Chapter in book (Other academic)
  • 50.
    Hydén, Lars-Christer
    Linköping University, Faculty of Arts and Sciences. Linköping University, The Tema Institute.
    Introduction: The Field of Illness Narratives2008In: Health, Culture and Illness: Broken Narratives / [ed] Lars-Christer Hydén and Jens Brockmeier, New York: Routledge , 2008, p. 196-Chapter in book (Other academic)
    Abstract [en]

    This collection of essays examines the interrelations between illness, disability, health, society, and culture. The contributors examine how "narratives" have emerged and been utilized within these areas to help those who have experienced d injury, disability, dementia, pain, grief, or psychological trauma to express their stories. Encompassing clinical case studies, ethnographic field studies and autobiographical case studies, Health, Illness and Culture offers a broad overview and critical analysis of the present state of "illness narratives" within the fields of health and social welfare.

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